Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Left leg

Jdc27

Recommended Posts

Jdc27 Newbie
Jdc27
Posted

Hi- 

I was diagnosed 3.5 months ago and have been working really hard to be extra diligent about not letting any gluten sneak in. My blood work is improving (they have tested everything) and my antibody levels and vitamins are looking good on paper, but some things are still bothering me. 

My left leg from the knee down is having nerve issues. Sometimes it hurts. Yesterday, the bottom of my foot had a burning sensation. Either way it feels restless and achy. Doc said Celiac neuropathy usually presents on both sides which made me nervous. I'm also experiencing unexplained pressure in my face/head, kind of sinus-y. Just a bunch of random weird things. All that to say, I'm worn out from trying to figure out : If this is just the slow healing process and I need to be patient? 

If there are trace amounts of gluten that are getting in somewhere?

Or if I should be concerned about something else? (Though worrying isn't going to help me at all)

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted
19 minutes ago, Jdc27 said:

Hi- 

I was diagnosed 3.5 months ago and have been working really hard to be extra diligent about not letting any gluten sneak in. My blood work is improving (they have tested everything) and my antibody levels and vitamins are looking good on paper, but some things are still bothering me. 

My left leg from the knee down is having nerve issues. Sometimes it hurts. Yesterday, the bottom of my foot had a burning sensation. Either way it feels restless and achy. Doc said Celiac neuropathy usually presents on both sides which made me nervous. I'm also experiencing unexplained pressure in my face/head, kind of sinus-y. Just a bunch of random weird things. All that to say, I'm worn out from trying to figure out : If this is just the slow healing process and I need to be patient? 

If there are trace amounts of gluten that are getting in somewhere?

Or if I should be concerned about something else? (Though worrying isn't going to help me at all)

 

 

They could be because of other problems.  Maybe see an orthopedic doctor about the leg?

my hub and I , as well as half of the KC area, are experiencing pressure behind the " face" from allergens in the air right now.  The mold is especially bad here , but grass pollen was high last week. 

Victoria1234 Experienced
Victoria1234
Posted

Doesn't necessarily sound gluten related to me at this point. Allergies are still rotten this time of the year! You can suddenly be allergic to pollen or mold at any time your life if you weren't before. And I'd see your gp to get a referral for your knee sooner than later so it doesn't get worse.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      My journey is it gluten or fiber?

      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
    2. Roses8721
      - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      GI DX celiac despite neg serology and no biopsy

      Neg for HLA dq8 and dq2
    3. knitty kitty
      - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      GI DX celiac despite neg serology and no biopsy

      How can you be negative for HLA? What markers did you have here? Curiouser and curiouser...
    4. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      My journey is it gluten or fiber?

      Yes, I have noticed a big difference. I had serious malnutrition symptoms that my doctors couldn't figure out, so they blamed me, said I was "depressed" and washed their hands of me. At home, I could feel myself dying, and, with nothing left to lose, I relied on knowledge from my microbiology and nutrition classes at university. I went gluten free. I...
    5. Wheatwacked
      - Wheatwacked replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      GI DX celiac despite neg serology and no biopsy

      Yes, I would be good with the diagnosis. While NCGS isn't a malabsorptive disease like celiac disease, inflammation and restricted diets can impact Vitamin D levels. Recovery from either disease requires avoiding gluten. celiac disease may take a longer recovery than NCGS because in celiac disease there is intestional damage to the cilia that has...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,745
    • Most Online (within 30 mins)
      7,748
    NannySandy2006
    Newest Member
    NannySandy2006
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      Neg for HLA dq8 and dq2
    • knitty kitty
      GI DX celiac despite neg serology and no biopsy

      By knitty kitty · Posted

      How can you be negative for HLA?   What markers did you have here? Curiouser and curiouser...  
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      Yes, I have noticed a big difference.  I had serious malnutrition symptoms that my doctors couldn't figure out, so they blamed me, said I was "depressed" and washed their hands of me.  At home, I could feel myself dying, and, with nothing left to lose, I relied on knowledge from my microbiology and nutrition classes at university.  I went gluten free.  I started taking vitamins according to my nutritional deficiency symptoms.  Vitamins worked.  My health improved.  Now I'm here to help others.  Celiac disease causes malabsorption which results in malnutrition.  Doctors don't recognize the symptoms of Celiac disease and malnutrition. Benfotiamine has been shown to promote intestinal healing and digestion, improves diabetes and neuropathy and much more.  TTFD (Thiamax or TTFD-B1 Max) helps with brain function, neuropathy and lots more.  Every cell in the body needs thiamine to make energy so the cell can function.  Without sufficient thiamine, mitochondria die.  Every cell also needs thiamine and the other B vitamins to make life sustaining enzymes.  Thiamine has antiviral and antibacterial properties.   We may not be getting sufficient thiamine from our diets if we eat a lot of carbohydrates.  The more carbs one eats the more thiamine is needed to process them into energy.  If there's insufficient thiamine, the body stores the carbs as fat. This is called high calorie malnutrition.   We may not be getting sufficient thiamine from our diets if we eat a gluten free diet.  Gluten free flours and processed foods are not required to be enriched nor fortified with vitamins and minerals like their gluten containing counterparts.  Meats are the best sources of thiamine, but some veggies (beans, potatoes, squash) and fruits (citrus and berries) contain some thiamine.    Explore thiamine more here: https://hormonesmatter.com/thiamine-deficiency-causes-problems/
    • Wheatwacked
      GI DX celiac despite neg serology and no biopsy

      By Wheatwacked · Posted

      Yes, I would be good with the diagnosis.  While NCGS isn't a malabsorptive disease like celiac disease, inflammation and restricted diets can impact Vitamin D levels.  Recovery from either disease requires avoiding gluten.  celiac disease may take a longer recovery than NCGS because in celiac disease there is intestional damage to the cilia that has to self repair in addition to the nutritional deficiencies.   Nonceliac Gluten Sensitivity Dr. Weston Price's research in the 1930s showed that diets rich in minerals and fat-soluble vitamins (A, D3, K2) promoted well-mineralized teeth, while deficiencies led to weaker enamel. Fatty liver, Intermittent diarrhea, Severe abdominal distension Choline deficiency causes abnormal deposition of fat in the liver, which results in a condition called nonalcoholic fatty liver disease. In some people, choline deficiency causes muscle damage. https://lpi.oregonstate.edu/mic/other-nutrients/choline    Choline is a large part if the bile salts for fat digestion, Acetycholine, a neural transmitter, mitochondria membrane structure, and along with folate, B12, and B6 recycles homocysteine  High homocysteine can damage artery linings. Low vitamin D levels are associated with increased symptoms of depression and anxiety,  autoimmune diseases and most of your symptoms.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.