Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wondering if I am gluten intolerant


TonyJohnson

Recommended Posts

TonyJohnson Newbie

I have had bouts of burning, itching hands accompanied with little blisters for few years. Doc says it "contact dermatitis" and prescribed creams but they never work.  They usually will go away after a few days on their own so I stopped even mentioning it to the doc. I also get little pimply blisters in my scalp, usually shortly after I notice the hands flaring up, they are also itchy as well.  Also accompanied by a mild itch all over, arms, legs, and backside as well.  The symptoms come on fast and are usually cleared up in a day or so.  I have never been able to tie them to any particular even or food/drink, nor have I ever really thought about trying until lately. Regarding the hands - when this flares up they will itch and burn so bad I tend to scratch and rub them raw sometimes. It gets unbearable at points.

I always have a bit of gas and feel a little bloated, sometimes worse that others (wife will attest to that lol).   Was diagnosed with diverticulosis a few years back and have had a bout with diverticulitis (inflamed and needed meds to get it under control). Keep it under control since with fiber supplements daily.

I'm always tired, can't lose weight even with dieting and the gastric band I had installed a couple of years ago. Trouble concentrating and holding attention to tasks at hand for years.

Never would have thought about putting any of these together in a "pot of symptoms" until my wife read an article on gluten intolerance and celiac's.  I am going to make an appointment to see my doc and try to get him to run some test for gluten intolerance but am not really sure what to say to him.  

I have been reading some posts on here and you all seem like a great group of helpful and informative people.. So any suggestions? :)

Looking forward to some ideas!

Tony


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jmg Mentor

Hi Tony and welcome :)

I put together a mini FAQ awhile ago for posts such as yours. Take a look and see if the links within are of help: 

The info on tests is a little out of date, the top two listed are now no longer in general use. Otherwise hopefully the info gives you something to work on. 

42 minutes ago, TonyJohnson said:

 I am going to make an appointment to see my doc and try to get him to run some test for gluten intolerance but am not really sure what to say to him.

The main advice is STAY ON GLUTEN whilst you wait to see him and then for any testing. The mistake so many of us make is to suspect, try removing it, notice a response then find out that testing has become a hundred times harder!

Best of luck 

Matt

TonyJohnson Newbie

Thanks Jmg!  I will check it out now.

Jmg Mentor

I think you could also usefully start keeping a food journal. Doesn't have to be War and Peace just:

7:00 am Toast w/butter & strawberry jam, Weetabix, Coffee - Feel OK, little indigestion

11:00 Coffee and Digestive biscuits x 2 - Itchy scalp, headache

Etc. etc. Main point is to get in the habit of noting down what you eat, when and how you feel. You'd be amazed at how useful this could prove to be in identifying what, if anything, is affecting you.

 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,999
    • Most Online (within 30 mins)
      7,748

    Wendy Jo
    Newest Member
    Wendy Jo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
    • JoJo0611
      TTG IgA reference range 0.0 to 14.9 KU/L
    • trents
      What was the reference range for that test? Each lab uses different reference ranges so a raw score like that makes it difficult to comment on. But it looks like a rather large number.
    • JoJo0611
      I have had the tTG-IgA blood test my result are >250.0  I am waiting for the appointment with the gastroenterologist for endoscopy and biopsies.    what are the chances it’s not coeliacs.  waiting and not knowing is so hard. Especially the eating of gluten knowing it may be causing you more harm and coping with the symptoms. 
    • knitty kitty
      @sleuth, Has your son been checked for nutritional deficiencies?  All of those symptoms can be caused by malnutrition.  I had severe malnutrition that went unrecognized by my doctors.  Intense fatigue, brain fog, depression, anxiety, and gastrointestinal distress are symptoms of deficiencies in the eight essential B vitamins, especially Thiamine B1, which becomes low first because the demand is higher when we're sick.     Celiac Disease causes inflammation and damage of the intestinal lining which inhibits absorption of essential nutrients.  Checking for nutritional deficiencies is part of proper follow up care for people with celiac disease.   Is your son taking any vitamin supplements?  Most supplements contain thiamine mononitrate which in not readily absorbed and utilized by the body.  Benfotiamine is a form of thiamine that is shown to promote intestinal healing.  Benfotiamine is available over the counter.  Benfotiamine is safe and nontoxic.   Is your son eating processed gluten-free foods?  Gluten-free processed foods are not required to be enriched with vitamins like their gluten containing counterparts.   Is your son following a low histamine diet?  Histamine is released as part of the immune response to gluten and other foods high in histamine.  High levels of histamine in the brain can cause anxiety, insomnia, and depression.  The body needs the B vitamins to make the enzyme Diamine Oxidase (DAO) to break down and clear histamine.  DAO supplements are available over the counter.  Vitamin C helps clear histamine as well.  Some people find over the counter antihistamines helpful as well, but they're not for long term use.   Nicotine has antihistamine-like properties, but can also irritate the gut.  Tobacco, from which nicotine is derived, is a nightshade (like tomatoes, potatoes, peppers and eggplant).  Nightshades contain alkaloids which affect gastrointestinal permeability, causing leaky gut syndrome.  Nicotine can cause gastrointestinal irritation and alter for the worse the microbiome. Safer alternatives to Nicotine that have antihistamine properties include Lemon Balm (Sweet Melissa),  Passion Flower, Chamomile, and Bilberry.  They can be taken as supplements, extracts, or tea.  These will help with the anxiety, insomnia and depression in a much safer way. Oolong tea is also helpful.  Oolong tea contains the amino acid L-Theanine which helps the digestive tract heal.  (L -Theanine supplements are available over the counter, if not a tea drinker.)  Tryptophan, a form of Niacin B3, also helps calm digestive symptoms.  Another amino acid, L-Lysine, can help with anxiety and depression.  I've used these for years without problems.   What ways to cope have you tried in the past?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.