Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need your knowledge, please

Katzpajamas

By Katzpajamas
in Coping with Celiac Disease

Recommended Posts

Katzpajamas Newbie
Katzpajamas
Posted

  Last December, I was horribly sick. Suddenly, questioning gluten; I didn't eat any. The change was beyond enormous, and I could not ever bring myself to voluntarily eat it, again. It was as if I was finally, not being electrocuted!  A nasty, blistering rash went away, at the same time. Now, I am saving for a gene test, because my doctor didn't know that gluten must be present to obtain a proper view of transglutiminase  antibodies. Wow.

  Since I am 54, and see visible differences in my facial structure, etc., I can see in pictures, that I was sick, as a small child.

  Question: does anybody know, and would you please, tell me about the possible lesions, formed on the inside of a Celiac sick person's small intestines? I know that I've read, several times, that someone who has been sick should avoid all forms of wheat, for about as long as they've been sick, (on this forum, sometimes), but I can't find the info.. I would be very grateful, for knowledge!

  Wheat includes ingredients like, xanthan gum, natural flavors and maltodextrin.  I know, I've been reacting to something (a gamut of symptoms, including blistering rash, tinnitus, digestive horrors, neurological symptoms, neck and back pain, etc.!)  I eat no gluten, at any time, ever. Very sure.

  Thanks, for your help! ?

Kathee

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Victoria1234 Experienced
Victoria1234
Posted
6 hours ago, Katzpajamas said:

I know that I've read, several times, that someone who has been sick should avoid all forms of wheat, for about as long as they've been sick

Welcome!

this statement is odd and sadly, untrue. You must avoid gluten for the rest of your life if you are celiac or non celiac gluten sensitive.

the damage will repair itself over the course of months to years without gluten exposure.

Ennis-TX Grand Master
Ennis-TX
Posted
7 hours ago, Katzpajamas said:

  Last December, I was horribly sick. Suddenly, questioning gluten; I didn't eat any. The change was beyond enormous, and I could not ever bring myself to voluntarily eat it, again. It was as if I was finally, not being electrocuted!  A nasty, blistering rash went away, at the same time. Now, I am saving for a gene test, because my doctor didn't know that gluten must be present to obtain a proper view of transglutiminase  antibodies. Wow.

  Since I am 54, and see visible differences in my facial structure, etc., I can see in pictures, that I was sick, as a small child.

  Question: does anybody know, and would you please, tell me about the possible lesions, formed on the inside of a Celiac sick person's small intestines? I know that I've read, several times, that someone who has been sick should avoid all forms of wheat, for about as long as they've been sick, (on this forum, sometimes), but I can't find the info.. I would be very grateful, for knowledge!

  Wheat includes ingredients like, xanthan gum, natural flavors and maltodextrin.  I know, I've been reacting to something (a gamut of symptoms, including blistering rash, tinnitus, digestive horrors, neurological symptoms, neck and back pain, etc.!)  I eat no gluten, at any time, ever. Very sure.

  Thanks, for your help! ?

Kathee

Xantham gum is not a gluten ingredient but many celiacs develop a intolerance to it. Gluten is found in the grains Wheat, Barley, Rye, and their relatives and cross breeds. It is also contained in ingredients like malt, in some forms of natural flavors, etc. There is a full listing of ingredients to avoid on the site, I might also suggest reading the newbie 101 section. Many also initially have reactions a few other foods, not gluten but just intolerant to them like dairy is a common one as the enzymes to break down dairy are produced by the tips of the villi which are blunted/damaged/destroyed first by the disease.   Oats are common issue due to cross contamination, even gluten free ones sometimes causing issues with some celiacs and we suggest avoiding them for awhile til you heal. You can try reintroducing them later after healing.

The damaged intestines will heal over time, it took over 3 years before mine healed mostly. I have some others issues in the nerve and neurological department that have not healed completely and will take decades from my understanding. You will probably find you have other food intolerance issues crop up, keep a food diary writing down EVERYTHING you eat and how you fix it with exact seasonings etc. Then write how you feel hours later.  Look for patterns with seasonings, foods, ingredients and you might track down some other foods you need to remove as they might not agree with you til you heal some more.

https://www.celiac.com/forums/topic/91878-newbie-info-101/

https://www.celiac.com/celiac-disease/forbidden-gluten-food-list-unsafe-ingredients-r182/

https://www.celiac.com/forums/topic/117090-gluten-free-food-alternatives-list/

Katzpajamas Newbie
Katzpajamas
Posted
  • Author

  Thank you, so much, for your help and your time.  'Blunted/damaged villi'. Of course. 

  I did find a list of ingredients, other than gluten (on this site), to avoid.

https://www.celiac.com/celiac-disease/forbidden-gluten-food-list-unsafe-ingredients-r182/

  I truly, appreciate your kindnesses, especially Victoria and Ennis. ?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Francis M
      - Francis M replied to Francis M's topic in Gluten-Free Restaurants
      2

      The Happy Tart review

      When my wife attempted to open the online card in the store with a cashier, it would not work. We then showed the owner the link to the card, the online receipt that I got upon purchase, and even my bank statement confirming the purchase. That did not satisfy her, since she said she needed the link to open to reveal the gift ID num. They even admitted they...
    2. trents
      - trents replied to Francis M's topic in Gluten-Free Restaurants
      2

      The Happy Tart review

      Was the card itself lost or just the record or both?
    3. Francis M
      - Francis M posted a topic in Gluten-Free Restaurants
      2

      The Happy Tart review

      We were flabergasted that the owner would not acknowledge a $50 e-gift card I purchased for my celiac wife. My wife tried to open it in the store and was informed there had been a system change and they could not find the record. No worries, she was told, just talk to management. Six months later, and numerous absurd back and forths, and the owner literally...
    4. trents
      - trents replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Ibuprofen

      Yes, some people do get withdrawal from gluten but gluten withdrawal doesn't usually cause gut pain. Maybe more like general body aches and discomfort. We have articles on gluten withdrawal on this forum. You might do a search for them. Applesauce is very acidic and some brands have added vitamin C (ascorbic acid) which makes them more acidic. This can...
    5. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Ibuprofen

      Do you or anyone know alot about ibuprofen I wasn't sure if I was eating too much apple sauce. Something is making my pain so much worse I'm referring to the intense pins and needles in my feet and lower legs. Jaw actually has tardive dystonia and muscle spasms throughout my back Almost like an opposite effect that a pain reliever...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,852
    • Most Online (within 30 mins)
      7,748
    Cherie T
    Newest Member
    Cherie T
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Francis M
      The Happy Tart review

      By Francis M · Posted

      When my wife attempted to open the online card in the store with a cashier, it would not work. We then showed the owner the link to the card, the online receipt that I got upon purchase, and even my bank statement confirming the purchase. That did not satisfy her, since she said she needed the link to open to reveal the gift ID num. They even admitted they had a systems problem around that time.
    • trents
      The Happy Tart review

      By trents · Posted

      Was the card itself lost or just the record or both?
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      We were flabergasted that the owner would not acknowledge a $50 e-gift card I purchased for my celiac wife. My wife tried to open it in the store and was informed there had been a system change and they could not find the record. No worries, she was told, just talk to management. Six months later, and numerous absurd back and forths, and the owner literally informs me there have been "bad actors", so she can't make good on this lost gift card. In other words, she accused me of lying and committing fraud... over $50! Please be careful with your orders and purchases here.
    • trents
      Ibuprofen

      By trents · Posted

      Yes, some people do get withdrawal from gluten but gluten withdrawal doesn't usually cause gut pain. Maybe more like general body aches and discomfort. We have articles on gluten withdrawal on this forum. You might do a search for them. Applesauce is very acidic and some brands have added vitamin C (ascorbic acid) which makes them more acidic. This can damage the stomach lining if you eat it too often. Especially if your stomach lining is already compromised. Ibuprofen inhibits the body's ability to rebuild the stomach's protective mucosal lining. That's why it can cause peptic ulcers. As strange as it may sound, low level irritation/inflammation stimulates the body to rebuild the stomach lining. There are two steps in this rebuilding process known as COX 1 and COX 2. Ibuprofen represses both COX 1 and COX 2. Celecoxcib, a prescription anti inflammatory, inhibits only COX 2, making it less likely to cause damage to the gut lining.
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Do you or anyone know alot about ibuprofen  I wasn't sure if I was eating too much apple sauce.   Something is making my pain so much worse  I'm referring to the intense pins and needles in my feet and lower legs.  Jaw actually has tardive dystonia and muscle spasms throughout my back Almost like an opposite effect that a pain reliever would do. I'm fairly new to this. Whatever is going on seems to be worsening  Do people get a withdrawal effect from gluten?  It's extremely painful 😖  I'll post that question or research on the site  Thank you everyone for responding 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.