Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Are Cheerios Really "Not Safe For Celiacs?" Or is General Mills Getting a Bad Rap?


Scott Adams

Recommended Posts

Scott Adams Grand Master
cheerios_CC--m01229_thumb.webp

Are Cheerios really "Not safe for celiacs?" Or is General Mills getting a bad rap? 

A recent story by Buzzfeed ignited confusion over whether Cheerios and other General Mills cereals are actually gluten-free and safe for people with celiac disease.


View the full article


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

NOPE, this was the last update from GFWD on the matter of oats and general mills.

"

Dear Gluten Free Watchdog community,

There are a few updates on oats to share with you…

Glanbia Gluten-Free Oats: Another Source of Purity Protocol Oats: Glanbia Agribusiness is a purchaser and processor of grain in Ireland. They have recently begun to sell their OatPure™ gluten-free oats to manufacturers in both North America and Europe, through their sister company, Glanbia Nutritionals. According to Glanbia, their OatPure™ oats are guaranteed to contain a level of gluten below 10 ppm. Also according to Glanbia, their oats have been licensed by Coeliac UK, the Coeliac Society of Ireland, and the Spanish Federation of Coeliac Associations (FACE) to carry the crossed grain symbol. Gluten Free Watchdog has had an extensive discussion with Glanbia. Based on the information provided to us, we have added OatPure™ gluten-free oats to our listing of suppliers of purity protocol oats. Please note however, that Glanbia does not sell directly to consumers. To read more about Glanbia gluten-free oats see https://www.glutenfreewatchdog.org/news/glanbia-gluten-free-oats-another-source-of-purity-protocol-oats/

PepsiCo/Quaker publishes a third paper on wheat/barley/rye contamination in oats: (Chen Y, et al. A stepwise, ‘test-all-positives’ methodology to assess gluten-kernel contamination at the serving-size level in gluten-free (gluten-free) oat production. Food Chemistry 2018;240:391-395). The article is open access and is available free of charge at http://www.sciencedirect.com/science/article/pii/S0308814617313067.

The abstract reads as follows:

“A step-wise, ‘test-all-positive-gluten’ analytical methodology has been developed and verified to assess kernel-based gluten contamination (i.e., wheat, barley and rye kernels) during gluten-free (gluten-free) oat production. It targets gluten-free claim compliance at the serving-size level (of a pouch or approximately 40–50 g). Oat groats are collected from gluten-free oat production following a robust attribute-based sampling plan then split into 75-g subsamples, and ground. R-Biopharm R5 sandwich ELISA R7001 is used for analysis of all the first15-g portions of the ground sample. A >20-ppm result disqualifies the production lot, while a >5 to <20-ppm result triggers complete analysis of the remaining 60-g of ground sample, analyzed in 15-g portions. If all five 15-g test results are <20 ppm, and their average is <10.67 ppm (since a 20-ppm contaminant in 40 g of oats would dilute to 10.67 ppm in 75-g), the lot is passed.”

Gluten Free Watchdog calls on ALL suppliers and manufacturers of gluten-free oats, whether purity protocol or mechanically/optically sorted, and their certifying bodies to reevaluate their testing methodology and requirements for certification, respectively.

General Mills gluten-free Cheerios and gluten-free Lucky Charms: Gluten Free Watchdog has received a number of inquiries about Cheerios and whether General Mills has made any changes to their testing protocol. General Mills confirmed yesterday (August 22) that there are no updates to report. We’ve also received questions about Lucky Charms and whether the same testing protocol is followed. General Mills also confirmed yesterday that the same testing protocol is followed for Cheerios and Lucky Charms.

Gluten Free Watchdog recommends that individuals with celiac disease and other gluten-related disorders not eat gluten-free Cheerios. This position will remain in effect until we are notified by General Mills that they are testing individual boxes of Cheerios and not relying on a "lot mean" to determine whether final product Cheerios contain less than 20 ppm gluten (all extractions from all boxes should test below 20 ppm gluten).

Please let me know if you have any questions.

Kind regards,

Tricia Thompson, MS, RD

Founder, Gluten Free Watchdog, LLC

"

Victoria1234 Experienced

The comment section at the end of the buzz feed article is pretty interesting.

cyclinglady Grand Master

How many people actually go in to report adverse reactions to food products?  Personally, I would hate to slander a company when I have no real data to back it up (I do not have a lab at home to test for gluten). ?  I typically just keep my mouth shut and avoid the product in the future as I am not willing to risk eating it again.     I think reactions to mechanically sorted oats could be well under reported.   So, this article boils down to a personal opinion by the author or hearsay and not actual science (maybe even damage control by General Mills).  

The millions of boxes as a defense for its safety for celiacs?    Cherrios are eaten by a huge population (at a miminum just about every single non-celiac toddler).  We know for a scientific fact, that about 1% of the population has celiac disease and 80% of those people are walking around UNDIAGNOSED.  I think the author failed to mention this.  If you do not know you have celiac disease and you are consuming a variety of  products containing gluten, why would you bother to report Cherrios as a reason for your latest bout of GI issues?  So, the majority of those people consuming those millions of cherrios boxes  might never report an adverse reaction.  (Maybe a piece of metal or an insect found in the box, but that is another story).  

I will stick to the Gluten Free Watchdog's advice.  Why?  She does not accept ANY corporate sponsorship.  She is not worried about any corporate financial support.  It CAN be "all about the money".  

Victoria1234 Experienced
58 minutes ago, cyclinglady said:

How many people actually go in to report adverse reactions to food products?  Personally, I would hate to slander a company when I have no real data to back it up (I do not have a lab at home to test for gluten). ?  I typically just keep my mouth shut and avoid the product in the future as I am not willing to risk eating it again.     I think reactions to mechanically sorted oats could be well under reported.   So, this article boils down to a personal opinion by the author or hearsay and not actual science (maybe even damage control by General Mills).  

The millions of boxes as a defense for its safety for celiacs?    Cherrios are eaten by a huge population (at a miminum just about every single non-celiac toddler).  We know for a scientific fact, that about 1% of the population has celiac disease and 80% of those people are walking around UNDIAGNOSED.  I think the author failed to mention this.  If you do not know you have celiac disease and you are consuming a variety of  products containing gluten, why would you bother to report Cherrios as a reason for your latest bout of GI issues?  So, the majority of those people consuming those millions of cherrios boxes  might never report an adverse reaction.  (Maybe a piece of metal or an insect found in the box, but that is another story).  

I will stick to the Gluten Free Watchdog's advice.  Why?  She does not accept ANY corporate sponsorship.  She is not worried about any corporate financial support.  It CAN be "all about the money".  

Excellent points.

  • 7 months later...
Michael2274 Newbie

We have a Nema tester at home and after my wife got sick twice from eating them we tested two different boxes and both came up positive for gluten. The Canadian's have made them remove the gluten-free label from their box.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    2. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,871
    • Most Online (within 30 mins)
      7,748

    Koyanna
    Newest Member
    Koyanna
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.