Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Disease and Anorexia

ValarieLynn

Recommended Posts

ValarieLynn Newbie
ValarieLynn
Posted

I was 15 diagnosed with IBS. and age of 33 I was diagnosed with anorexia which turned my world upside down to say the least!   When I had to start eating my stomach and intestines hurt constantly,  I started gaining weight but as I gained and time went on I looked more pregnant than trying to recover from anorexia.  The bloating really worsened  after my hysterectomy.  Finally it took my OB/GYN to finally notice and listen to me about the bloating and pain I was having.  I was tested and diagnosed with celiac disease then, which was last October.  Since being diagnosed with the celiac disease and being totally gluten free, some of the bloating has gone down.  I don't look 10 months pregnant any more.  I walk on a daily basis and try to eat at the most 1200 calories per day. I do eat  some candies and ice cream.....I did this even when I hardly ate any thing.... because of the long term anorexia I can't do heavy duty exercises and it doesn't take much to wear me out.  Does any one know how long it should take to get a flat belly again???  I cry cuz I can't wait till the day I can wear my regular jeans again!  I tried probiotics and they didn't seem to make a difference.  I do have to take stool softeners and laxatives to be able to have a bowel movement.  Is this just going to be a hurry up and wait situation for my intestines to recover?  HELP!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted
On 9/14/2017 at 1:10 PM, ValarieLynn said:

I was 15 diagnosed with IBS. and age of 33 I was diagnosed with anorexia which turned my world upside down to say the least!   When I had to start eating my stomach and intestines hurt constantly,  I started gaining weight but as I gained and time went on I looked more pregnant than trying to recover from anorexia.  The bloating really worsened  after my hysterectomy.  Finally it took my OB/GYN to finally notice and listen to me about the bloating and pain I was having.  I was tested and diagnosed with celiac disease then, which was last October.  Since being diagnosed with the celiac disease and being totally gluten free, some of the bloating has gone down.  I don't look 10 months pregnant any more.  I walk on a daily basis and try to eat at the most 1200 calories per day. I do eat  some candies and ice cream.....I did this even when I hardly ate any thing.... because of the long term anorexia I can't do heavy duty exercises and it doesn't take much to wear me out.  Does any one know how long it should take to get a flat belly again???  I cry cuz I can't wait till the day I can wear my regular jeans again!  I tried probiotics and they didn't seem to make a difference.  I do have to take stool softeners and laxatives to be able to have a bowel movement.  Is this just going to be a hurry up and wait situation for my intestines to recover?  HELP!!!

Welcome Valarie.  

I am glad you are seeing improvement.  Have you had follow-up care to measure your celiac antibodies?   This will help determine whether or not you are diet compliant.  

Open Original Shared Link

Also, some celiacs become temporarily lactose intolerant.  Does dairy bother you?  You might consider working with a dietician who is celiac savvy.  He/she can help insure you get the proper nutrients from the food you eat.  

Finally, it takes some celiacs a few years to recover.  It all depends on the extent of their damage within or outside of the GI tract.   Be patient!  (So hard, I know!) 

 

Scott Adams Grand Master
Scott Adams
Posted

You may wish to read some articles we've written on the topic you posted:

https://www.celiac.com/categories/Celiac--Disease--____--Related--Diseases--and--Disorders/Anorexia--Nervosa.....--Bulimia--and--Celiac--Disease-c-3485.html

ValarieLynn Newbie
ValarieLynn
Posted
  • Author

No I haven't....the doctor didn't say anything about the follow up care testing.   UGH!!  Thank you for the article!!

I read somewhere that it can take an adult 4-6 years to recover??  Don't know if this is true or not but I know being patient is the key....something I'm not. :)  

Thanks again for the info!!

knitty kitty Grand Master
knitty kitty
Posted

Celiac Disease causes malabsorption which results in malnutrition.  You may be deficient in the B complex vitamins and minerals. 

Open Original Shared Link

Thiamine (B1) deficiency  is associated with anorexia and Niacin (B3) with gastrointestinal problems like bloating.  B12 deficiency can cause fatigue.

Follow up care should include a check for vitamin and mineral deficiencies. 

Most Celiacs heal within two years, but some may take longer due to severity of damage and deficiencies.  

Hope this helps.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      45

      Severe severe mouth pain

      @Charlie1946, Sorry I sidetracked your thread a bit. Apologies. Proton pump inhibitors, like Omeprazole, change the pH in our gastrointestinal systems which allows opportunistic microbes to move in and take over. Have you been checked for SIBO? There's a significant link between length of Omeprazole use and SIBO. I had SIBO, thrush (Candida...
    2. Lkg5
      - Lkg5 replied to Charlie1946's topic in Related Issues & Disorders
      45

      Severe severe mouth pain

      My sebaceous hyperplasia and thrush disappeared when I stopped all dairy.
    3. Lkg5
      - Lkg5 commented on Scott Adams's article in Diagnosis, Testing & Treatment
      1

      Rapid Diagnosis of Celiac Disease Using Blood-Based Infrared Spectroscopy and Deep Learning

      Wow!!! 😂
    4. Charlie1946
      - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      45

      Severe severe mouth pain

      @knitty kitty Thank you so much for all that information! I will be sure to check it out and ask my doctor. I am just at a loss, I am on my 2nd round of miracle mouthwash and I brush and scrape my tongue and (sorry this is gross) it's still coated in the middle
    5. Aretaeus Cappadocia
      - Aretaeus Cappadocia posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      Traditional brown rice vinegars are made by fermenting brown rice and water with koji (Kōji 麹). The gluten risk comes from the method of preparing the koji: rice, wheat or barley may be used. Regardless of the starting grain, "koji" typically will be listed as an ingredient, and that term alone does not indicate gluten status. I called Eden Foods re...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,098
    • Most Online (within 30 mins)
      7,748
    BothySmithy
    Newest Member
    BothySmithy
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Severe severe mouth pain

      By knitty kitty · Posted

      @Charlie1946,  Sorry I sidetracked your thread a bit.  Apologies. Proton pump inhibitors, like Omeprazole, change the pH in our gastrointestinal systems which allows opportunistic microbes to move in and take over.  Have you been checked for SIBO?  There's a significant link between length of Omeprazole use and SIBO.  I had SIBO, thrush (Candida) and lichen planus and other problems while I was on Omeprazole.  I had to stop taking it.  It was a horrible time, so I understand how painful and frustrating it is.   You change your microbiome (the bacteria and microbes living inside you) by changing what you eat.  They eat what you eat.  Change the menu and you get different customers.   I changed my diet.  I cut out dairy because I was reacting to the casein and lactose.  I cut out all processed foods and most carbohydrates. I ate meat and veggies mostly, some fruit like apples and mandarin oranges.  By cutting out all the excess carbohydrates, lactose, and empty carbs in processed gluten-free foods, the opportunistic microbes get starved out.  SIBO bacteria send chemical messages to our brains demanding more carbs, so be prepared for carb cravings, but don't let the microbiome control you!   The skin and digestive system is continuous.  The health of our outside skin reflects the health of our gastrointestinal system.  Essential B vitamins, like Thiamine B 1 and especially Niacin B 3, are needed to repair intestinal damage and keep bad bacteria in check.  Niacin helps improve not only the intestinal tract, but also the skin.  Sebaceous Hyperplasia is linked to being low in Niacin B 3.  Lichen Planus is treated with Niacinamide, a form of Niacin B 3.   Vitamins are chemical compounds that our bodies cannot make.  We must get them from our food.  If our food isn't digested well (low stomach acid from Omeprazole causes poor digestion), then vitamins aren't released well.  Plus there's a layer of SIBO bacteria absorbing our vitamins first between the food we've eaten and our inflamed and damaged villi that may have difficulty absorbing the vitamins.  So, taking vitamin supplements is a way to boost absorption of essential nutrients that will allow the body to fight off the microbes, repair and heal.   Doctors are taught in medical learning institutions funded by pharmaceutical companies.  The importance of nutrition is downplayed and called old fashioned.  Doctors are taught we have plenty to eat, so no one gets nutritional deficiency diseases anymore.  But we do, as people with Celiac disease, with impaired absorption.  Nutritional needs need to be addressed first with us.  Vitamins cannot be patented because they are natural substances.  But pharmaceutical drugs can be.  There's more money to be made selling pharmaceutical drugs than vitamins.   Makes me wonder how much illness could be prevented if people were screened for Celiac disease much earlier in life, instead of after they've been ill and medicated for years.   Talk to your doctor and dietician about supplementing essential vitamins and minerals.   Interesting Reading: The Duration of Proton Pump Inhibitor Therapy and the Risk of Small Intestinal Bacterial Overgrowth: A Systematic Review and Meta-Analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC12250812/#:~:text=The long-term use of,overgrowth dynamics is less clear. Lichenoid drug eruption with proton pump inhibitors https://pmc.ncbi.nlm.nih.gov/articles/PMC27275/ Nicotinamide: A Multifaceted Molecule in Skin Health and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC11857428/
    • Lkg5
      Severe severe mouth pain

      By Lkg5 · Posted

      My sebaceous hyperplasia and thrush disappeared when I stopped all dairy.
    • Charlie1946
      Severe severe mouth pain

      By Charlie1946 · Posted

      @knitty kitty Thank you so much for all that information! I will be sure to check it out and ask my doctor.  I am just at a loss, I am on my 2nd round of miracle mouthwash and I brush and scrape my tongue and (sorry this is gross) it's still coated in the middle 
    • Aretaeus Cappadocia
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Aretaeus Cappadocia · Posted

      Traditional brown rice vinegars are made by fermenting brown rice and water with koji (Kōji 麹). The gluten risk comes from the method of preparing the koji: rice, wheat or barley may be used. Regardless of the starting grain, "koji" typically will be listed as an ingredient, and that term alone does not indicate gluten status. I called Eden Foods regarding their product "Organic Brown Rice Vinegar" (product of Japan) to ask how their product is made. They gave me a clear answer that they >do< use rice and they >do not< use wheat or barley in preparing their koji. FWIW, the product itself does not contain any labeling about gluten, gluten risk, or gluten safety. Based on Eden's statement, I am going to trust that this product is gluten safe and use it.
    • Scott Adams
      heaps of hope!

      By Scott Adams · Posted

      Your post nails the practical reality of living well with a celiac diagnosis. The shift from feeling restricted to discovering a new world of cooking—whether through a supportive partner making gluten-free spanakopita and gravy, or learning to cook for yourself—is exactly how many people find their footing. It turns a medical necessity into a chance to build kitchen skills, eat more whole foods, and actually enjoy the process. Your point that the basics—knife skills, food safety, and experimenting with spices—are all you really need is solid, helpful advice. It’s a good reminder that the diagnosis, while a pain, doesn’t have to stop you from eating well or having fun with food.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.