Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Testing

lamusto

Recommended Posts

lamusto Newbie
lamusto
Posted

Just a quick observation and question about genetic testing, et.al.   I suspect that the tummy aches and diarrhea, a bit of ADD, over the course of over 7 years a few other things might be gluten problems, be they celiac disease or sensitivity.  Having read many comments about the use or uselessness of genetic testing, for me right now - it might be a good thing for the following reasons: first cost.  Due to reasons not worth going into at this point, much of it would come out of pocket until January.  Given the lower cost of the genetic testing, for me, would help me to narrow it down.  If he does not have the gene(s), then I can at least rule out a strong genetic component - which has it's use.  i realize that 40% or so had the gene(s) anyway, but it still helps me narrow the matter down.  That does not mean I cannot pursue further testing in January for blood antibody markers, etc. or other issues.  For me it's a start.  In light of that, is Enterolab reliable for that genetic testing?  I have seen various things about testing and it's reliability here which I understand.  I only was unclear about how reliable Enterolab was on the genetic testing.  Thanks in advance for your replies.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

I wouldn't use Enterolab for anything.  The genetic tests are probably accurate but a lot of the other stuff they "test" for isn't medically accepted.

I got my genetic test from Quest.  But it seems to me that the basic Celiac blood panel (for antibodies) was about the same price as the genetic test.  You can call them and ask.

lamusto Newbie
lamusto
Posted
  • Author
2 minutes ago, kareng said:

I wouldn't use Enterolab for anything.  The genetic tests are probably accurate but a lot of the other stuff they "test" for isn't medically accepted.

I got my genetic test from Quest.  But it seems to me that the basic Celiac blood panel (for antibodies) was about the same price as the genetic test.  You can call them and ask.

I don't see a clear distinction between looking for antibodies verses looking for particular genes.  That part wasn't clear to me from reading their options.  I don't think  one can order the strict genetic test without the stool test.  But I submitted a question to them regarding that.  Thank you so much for your reply.  I will look into "Quest".

Gemini Experienced
Gemini
Posted
2 hours ago, lamusto said:

I don't see a clear distinction between looking for antibodies verses looking for particular genes.  That part wasn't clear to me from reading their options.  I don't think  one can order the strict genetic test without the stool test.  But I submitted a question to them regarding that.  Thank you so much for your reply.  I will look into "Quest".

Enterolab's gene testing is very reliable as gene testing is very common now and straightforward.  There is nothing questionable about it.  However, the other stool testing that they offer is not currently recognized as reliable and it isn't.  You cannot test for Celiac Disease utilizing stool samples, as of yet.  Maybe someday someone will come up with one that is peer reviewed and accepted by mainstream medicine but don't waste your money on it now. 

I had my gene testing done through Enterolab because doctors didn't do gene testing for Celiac 12 years ago when I was diagnosed. The blood work version done in hospitals was too expensive and they have antibody testing for Celiac.  I was diagnosed with Celiac through blood work from mainstream medical doctors, along with positive genetic tests from Enterolab. You should be able to order gene testing by itself through them but if they bundle it with other tests, I wouldn't bother.

 

ravenwoodglass Mentor
ravenwoodglass
Posted

In addition to the advice you have already gotten one caution. If you should happen to not have one of the 2 genes most commonly checked for it isn't for sure that you couldn't be celiac. There are rare cases, like mine, where people are diagnosed celiac but don't carry one of those two genes.  Getting a celiac panel is IMHO a better route to take.  Also if you have a low income or no insurance check with your local hospital as some will do a sliding fee scale on tests done through them.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Me,Sue
      - Me,Sue posted a topic in Introduce Yourself / Share Stuff
      0

      Knowing what to do when feeling unwell.

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed...
    2. Francis M
      - Francis M replied to Francis M's topic in Gluten-Free Restaurants
      8

      The Happy Tart review

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    3. Scott Adams
      - Scott Adams replied to Francis M's topic in Gluten-Free Restaurants
      8

      The Happy Tart review

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling...
    4. Scott Adams
      - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      3

      Stomach burning and neuropathy

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The...
    5. Scott Adams
      - Scott Adams replied to Me,Sue's topic in Related Issues & Disorders
      2

      Nausea

      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular? Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,852
    • Most Online (within 30 mins)
      7,748
    LG2
    Newest Member
    LG2
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
    • Scott Adams
      Nausea

      By Scott Adams · Posted

      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.