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We Have Just Found Out The Results Of Emmas Test....

Guest tracey and emma

By Guest tracey and emma
in Parents, Friends and Loved Ones of Celiacs

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Guest tracey and emma
Guest tracey and emma
Posted

hi i post hear a few weeks ago saying they were waiting for the hand count of my daughters biopsys. after an abnormal count was found in the first instance. well on the hand count they found the same, and with her symptoms; sleepy, diorea (although not all the time) reluctance to eat (so is tube fed) she had a fundoplication operation (so the could close her tummy so she could not vomit up wards anymore, diagnosed as server gastrophical reflux) and the fact that even with neocate formular pumped into her every night, she is just reached 9kgs at 2 1/2yrs!!! they have decided she probably has celiac. they have now taken a blood test, to check for antibodies as well.

so we are going on a gluten free diet! which would be fine.............but i have just moved with the family to germany, and don´t speak or read a word! (learning but german is so hard!!!!!) so how the hell do i read what she can and can not have!! i have an apointment with the dietican in a week as family are coming out next tuesday so i can go and get lists of words and talk though things! but what do i do till then?

just thought i would let you guys know as i promiced i would get back to you!

just a few quick questions..... if you don´t mind

does this have to be so gluten free that i have to completely even down to giving my son a bisuit and then geting emma a gluten free one, at the same time be extreamly carefull? and work surfaces do they need to be seperate? what about kitchen equipment? i have been told these things by friends but am not sure if this is going totally over the top!! or is it ?

i have no idear, what about buying meat do i have to ask for gluten free? i have been told this to! as you can see i have know idear what i am doing! and also silly one.... but again it is in german can she have heinz tomato sauce because she is going to ask for it tonight as after the operation it helps her to swallow?

sorry everyone feel like i am swimming in the ocean at the moment and have know idear how far i need to take the gluten restiction to! and any one by any chance got an ingredients list that she can not have in german! i know it is not likely but thought i would ask just in case!

thanks for any help

tracey and emma

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tarnalberry Community Regular
tarnalberry
Posted
hi i post hear a few weeks ago saying they were waiting for the hand count of my daughters biopsys. after an abnormal count was found in the first instance. well on the hand count they found the same, and with her symptoms; sleepy, diorea (although not all the time) reluctance to eat (so is tube fed) she had a fundoplication operation (so the could close her tummy so she could not vomit up wards anymore, diagnosed as server gastrophical reflux) and the fact that even with neocate formular pumped into her every night, she is just reached 9kgs at 2 1/2yrs!!! they have decided she probably has celiac. they have now taken a blood test, to check for antibodies as well.

so we are going on a gluten free diet! which would be fine.............but i have just moved with the family to germany, and don´t speak or read a word! (learning but german is so hard!!!!!) so how the hell do i read what she can and can not have!! i have an apointment with the dietican in a week as family are coming out next tuesday so i can go and get lists of words and talk though things! but what do i do till then?

just thought i would let you guys know as i promiced i would get back to you!

just a few quick questions..... if you don´t mind

does this have to be so gluten free that i have to completely even down to giving my son a bisuit and then geting emma a gluten free one, at the same time be extreamly carefull? and work surfaces do they need to be seperate? what about kitchen equipment? i have been told these things by friends but am not sure if this is going totally over the top!! or is it ?

i have no idear, what about buying meat do i have to ask for gluten free? i have been told this to! as you can see i have know idear what i am doing! and also silly one.... but again it is in german can she have heinz tomato sauce because she is going to ask for it tonight as after the operation it helps her to swallow?

sorry everyone feel like i am swimming in the ocean at the moment and have know idear how far i need to take the gluten restiction to! and any one by any chance got an ingredients list that she can not have in german! i know it is not likely but thought i would ask just in case!

thanks for any help

tracey and emma

I would encourage you to talk to your doctor (I presume you're dealing with one in Germany) and find a local support group. With the number of people over there who seemed to speak English when I visited, chances are, at least one person in the support group will speak English, and can help translate for you.

Jnkmnky Collaborator
Jnkmnky
Posted

Open Original Shared Link

There are also all sorts of web sites, some may be free, that translate languages. Just google german to english translators. All sorts of web sites pop up. Good luck. It should be a short enough list you need to memorize.

Guest Aziah
Guest Aziah
Posted

For the time being you could always order your groceries online until you can figure out the German labels. Here are two websites:

Open Original Shared Link

Open Original Shared Link

Carriefaith Enthusiast
Carriefaith
Posted
just a few quick questions..... if you don´t mind

does this have to be so gluten free that i have to completely even down to giving my son a bisuit and then geting emma a gluten free one, at the same time be extreamly carefull? and work surfaces do they need to be seperate? what about kitchen equipment? i have been told these things by friends but am not sure if this is going totally over the top!! or is it ?

i have no idear, what about buying meat do i have to ask for gluten free? i have been told this to! as you can see i have know idear what i am doing! and also silly one.... but again it is in german can she have heinz tomato sauce because she is going to ask for it tonight as after the operation it helps her to swallow?

sorry everyone feel like i am swimming in the ocean at the moment and have know idear how far i need to take the gluten restiction to! and any one by any chance got an ingredients list that she can not have in german! i know it is not likely but thought i would ask just in case!

Yeah, you have to keep work places separate and have separate condiment jars. I suggest buying meats, vegetables, plain rice, fruits, ect in Germany and I agree with Aziah that maybe you could purchase gluten-free foods online until you learn some German. Here are some more websites:

Open Original Shared Link

Open Original Shared Link Open Original Shared Link

Open Original Shared Link free.com/

I believe that Heinz tomatoe sauce is fine in Canada, but I don't know about other countries.

aikiducky Apprentice
aikiducky
Posted

I'm in Holland, not Germany, but heinz tomato sauce is gluten free here, and I think it's the same in germany, too.

I'll have a look around if i can find some info about gluten free foods in Germany...

Pauliina

German celiac society: Open Original Shared Link

There was only one page of info in English, but I think your best bet would be to contact them. I'm sure they could put you in touch with someone locally who speaks English and can help with shopping in the beginning.

In the meanwhile, plain unprocessed fruit, veggies, meat, fish, eggs...

Hope this helps!

Pauliina

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