Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

People are very angry towards non gluten eaters....


Victoria1234

Recommended Posts

Victoria1234 Experienced

The comments on this are insane. I had no idea there was so much animosity towards gluten-free people.

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master
11 minutes ago, Victoria1234 said:

The comments on this are insane. I had no idea there was so much animosity towards gluten-free people.

 

Many people think of it as  joke.....I sell at farmer markets and label my stuff gluten free. Being made fun of, poked jokes at, laughed at, criticized...yeah it is daily the comments I get are crazy and fucked up. I have snapped a few times even (highlight of my life was turning to one person who insulted me and joked about gluten where I switched to japanese and asked them "Would you like to try dying once" while smiling and they just walked off). Heck at my dads shop they had a worker that thought poisoning me was funny -_-, well til he got his pay docked each time he did something stupid.

I have a animosity for gluten eaters, I have to leave the room if they are eating, it for me anyway is like watching someone eat a box of rat poison, or drink antifreeze. Bugs the hell out of me and I loose that perspective we are the same species.....like they devolve to some alien creature consuming something poisonous.  Like "I eat that I am on the floor and sick for days.....are you OK?!" I can not get over it.

Victoria1234 Experienced
1 hour ago, Ennis_TX said:

Many people think of it as  joke.....I sell at farmer markets and label my stuff gluten free. Being made fun of, poked jokes at, laughed at, criticized...yeah it is daily the comments I get are crazy and fucked up. I have snapped a few times even (highlight of my life was turning to one person who insulted me and joked about gluten where I switched to japanese and asked them "Would you like to try dying once" while smiling and they just walked off). Heck at my dads shop they had a worker that thought poisoning me was funny -_-, well til he got his pay docked each time he did something stupid.

I have a animosity for gluten eaters, I have to leave the room if they are eating, it for me anyway is like watching someone eat a box of rat poison, or drink antifreeze. Bugs the hell out of me and I loose that perspective we are the same species.....like they devolve to some alien creature consuming something poisonous.  Like "I eat that I am on the floor and sick for days.....are you OK?!" I can not get over it.

Thanks for letting me know. My town is super liberal and luckily I don't get any of that here. I'd be very angry. I work in a town that is different, so I don't bring it up at all.

Awol cast iron stomach Experienced

Wow 

I did know of the horrible thoughts and aggression towards gluten-free eaters. I have experienced personally before in several work places being gluten-free prior to my gluten challenge an array of behaviors quite frankly imho that should be considered a violation/ discrimination of  legally protected disability state/federal laws. I was undiagnosed at the time but was gluten-free.

I was constantly offered cake and other gluten products to see if I would eat it. If I was out of office I came in to find gluten items all over my desk or on the filing cabinet on the other side of my station wall where my work files were. The cabinet I went in and out of daily.

I was told gluten-free eaters were crazy by a former boss. He would ostracize me in front of newly hired employees. He would constantly "invite" me with a group to lunch to go somewhere gluten filled pizza, Italian etc. Then he'd say oh wait you can't eat that can you? He would say it in a mockery fashion with a smart Alec look on his face. I could see the other coworkers discomfort. He did this regularly. 

He is the same one when I did not participate in work pizza parties that told Employees -I was a stuck up , introvert, who didn't get along with others. Since I ate at my desk and went for a walk vs. attend the party. He left out I ate gluten-free. Obviously the man had issues much deeper than celiac and really should not be a supervisior of anybody. He had numerous employees over the years before I got there who asked to switch departments. I was his lone employee and went through 7 coworkers in 3 years when they attempted to hire someone.

I asked to switch departments or bosses but was told personality conflicts and disagreements are  not a valid reason for requesting position changes. My coworkers (in other depts/bosses)were shocked as others got reassigned. 

Apparently , I heard from other employees this man once trained to be a EMT/paramedic in college courses, but was unable to find or be hired as one. feeling fiesty once I responded well it's possible he failed the psychological portion due to his lack of empathy and bedside manner traits an emergency worker should have and a fire department would seek. 

I had other co workers at another job leave articles in my inbox about how gluten free diet is not real etc. 

I was thankful for the decent employees at the various jobs I had who treated me with respect and kindness. Who remembered I had food issues and always stated they were sorry I could not participate in the food events, but if there was any place we could order from for me to let them know. 

Ennis I love that your Dad docked the pay of the poisioner who harmed you. That is touching.

Gluten dude's dudette/ wife go get 'em lady!

As for the Dr on the posting who said gluten-free is a fad and said it doesn't apply to celiacs, if you are a professional act like one. You can't make a blanket general gluten-free derogatory statement and say it doesn't apply to celiacs only AFTER you offended one of their loved one /supporters. Your bedside manner is severely lacking and perhaps the medical field is not a fit for you. As for celiacs sadly many of us have experienced Dr's of your caliber before. That's why we keep a community to suggest and support each other and share the Dr's who have the traits , skills, and knowledge to attend to celiacs. 

As for David not enough space or time to address you clearly you have transference going on target at celiacs.....

Thanks V

I think I got some celiac venom out- how therapeutic.

 

Victoria1234 Experienced
1 hour ago, Awol cast iron stomach said:

Wow 

I did know of the horrible thoughts and aggression towards gluten-free eaters. I have experienced personally before in several work places being gluten-free prior to my gluten challenge an array of behaviors quite frankly imho that should be considered a violation/ discrimination of  legally protected disability state/federal laws. I was undiagnosed at the time but was gluten-free.

I was constantly offered cake and other gluten products to see if I would eat it. If I was out of office I came in to find gluten items all over my desk or on the filing cabinet on the other side of my station wall where my work files were. The cabinet I went in and out of daily.

I was told gluten-free eaters were crazy by a former boss. He would ostracize me in front of newly hired employees. He would constantly "invite" me with a group to lunch to go somewhere gluten filled pizza, Italian etc. Then he'd say oh wait you can't eat that can you? He would say it in a mockery fashion with a smart Alec look on his face. I could see the other coworkers discomfort. He did this regularly. 

He is the same one when I did not participate in work pizza parties that told Employees -I was a stuck up , introvert, who didn't get along with others. Since I ate at my desk and went for a walk vs. attend the party. He left out I ate gluten-free. Obviously the man had issues much deeper than celiac and really should not be a supervisior of anybody. He had numerous employees over the years before I got there who asked to switch departments. I was his lone employee and went through 7 coworkers in 3 years when they attempted to hire someone.

I asked to switch departments or bosses but was told personality conflicts and disagreements are  not a valid reason for requesting position changes. My coworkers (in other depts/bosses)were shocked as others got reassigned. 

Apparently , I heard from other employees this man once trained to be a EMT/paramedic in college courses, but was unable to find or be hired as one. feeling fiesty once I responded well it's possible he failed the psychological portion due to his lack of empathy and bedside manner traits an emergency worker should have and a fire department would seek. 

I had other co workers at another job leave articles in my inbox about how gluten free diet is not real etc. 

I was thankful for the decent employees at the various jobs I had who treated me with respect and kindness. Who remembered I had food issues and always stated they were sorry I could not participate in the food events, but if there was any place we could order from for me to let them know. 

Ennis I love that your Dad docked the pay of the poisioner who harmed you. That is touching.

Gluten dude's dudette/ wife go get 'em lady!

As for the Dr on the posting who said gluten-free is a fad and said it doesn't apply to celiacs, if you are a professional act like one. You can't make a blanket general gluten-free derogatory statement and say it doesn't apply to celiacs only AFTER you offended one of their loved one /supporters. Your bedside manner is severely lacking and perhaps the medical field is not a fit for you. As for celiacs sadly many of us have experienced Dr's of your caliber before. That's why we keep a community to suggest and support each other and share the Dr's who have the traits , skills, and knowledge to attend to celiacs. 

As for David not enough space or time to address you clearly you have transference going on target at celiacs.....

Thanks V

I think I got some celiac venom out- how therapeutic.

 

I am so sorry you had to go thru all that awol. 

Awol cast iron stomach Experienced
1 minute ago, Victoria1234 said:

I am so sorry you had to go thru all that awol. 

Thank you.

I am too.

Ennis had it worse as my bully did not sabotage my food.

I hope to one day find a place that appreciates my work ethic, and is tolerant, and respectful of my illness.

Victoria1234 Experienced
32 minutes ago, Awol cast iron stomach said:

Thank you.

I am too.

Ennis had it worse as my bully did not sabotage my food.

I hope to one day find a place that appreciates my work ethic, and is tolerant, and respectful of my illness.

I can tell you that having to walk thru a room of cookies and cakes to go to the bathroom was very difficult for me 10 years ago. I was in tears daily. But no one actively offered them to me nor were they sabotaging my food like they did with Ennis. It's hard enough these days watching the kids at school eat their gluten filled lunches. You'd think I'd be used to this by now but I'm still a ? baby.

i believe you will find a great employer that will be thrilled to have you! Just keep networking and polish up that resume the best you can. I'm in the same boat, looking for a new school :) 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to suek54's topic in Dermatitis Herpetiformis
      6

      Awaiting dermatitis herpetiformis confirmation following biopsy

    2. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      6

      Awaiting dermatitis herpetiformis confirmation following biopsy

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    5. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,257
    • Most Online (within 30 mins)
      7,748

    KariNoMoreGluten
    Newest Member
    KariNoMoreGluten
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @suek54, I have Dermatitis Herpetiformis, too.  I found taking Niacin B3 very helpful in clearing my skin from blisters as well as improving the itchies-without-rash (peripheral neuropathy).  Niacin has been used since the 1950's to improve dermatitis herpetiformis.   I try to balance my iodine intake (which will cause flairs) with Selenium which improves thyroid function.   Interesting Reading: Dermatitis herpetiformis effectively treated with heparin, tetracycline and nicotinamide https://pubmed.ncbi.nlm.nih.gov/10844495/   Experience with selenium used to recover adrenocortical function in patients taking glucocorticosteroids long https://pubmed.ncbi.nlm.nih.gov/24437222/   Two Cases of Dermatitis Herpetiformis Successfully Treated with Tetracycline and Niacinamide https://pubmed.ncbi.nlm.nih.gov/30390734/   Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Nicotinic acid therapy of dermatitis herpetiformis (1950) https://pubmed.ncbi.nlm.nih.gov/15412276/
    • suek54
      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
    • trents
      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.