Recently diagnosed and clueless

[CluelessCeliac]

I had symptoms since almost a year and a half but major symptoms since last July which was include bloating, acidity, Gerd. I got misdiagnosed with having stomach bacteria I.e. H-pyroli and took a variety of antibiotics and other acidity medication before I was diagnosed with Celiac disease in November and my world came crashing down! I'm only 28 and the fact that I can never eat normally freaked me out. 

Nonetheless I opted to switch my diet to trying and being completely gluten free. I stick to rice and was doing a lot of millets such as sorghum, pearl and finger millets but was facing constipation since these millets are extremely dry so I've stopped those too. I stick to rice mainly as one of the meals and have veggies ( salads, stir fried etc) for the other meal. I've completely cut out lactose as I thought this was causing my stomach to be uneasy. 

 

My question is in spite of not eating out and sticking to home food, I still feel uneasy in my abdomen a couple of hours after lunch and then for the rest of the day. I eat fruits and try and avoid any processed food even if it has a gluten free stamp on it. My upper abdomen feels a little hard and if I apply the slightest pressure on it, a volley of burns follow through. I sometimes suffer from extreme headache, I don't know if it's because of the gas building up in my stomach. 

 

2 months into being gluten free and I still don't feel better. My IgA levels have dropped from 300 to about 67 in 2 months. But inspite of this I don't feel better. Did anyone else have similar symptoms when they were first diagnosed with Celiac? Being a naturally born worrier I sometimes can't help thinking it's cancer. My Vitamin B12 and D levels aren't that great either. 

 

Please Help! 

 

 

[Ennis-TX]

  On 1/31/2018 at 3:52 AM, CluelessCeliac said:

I had symptoms since almost a year and a half but major symptoms since last July which was include bloating, acidity, Gerd. I got misdiagnosed with having stomach bacteria I.e. H-pyroli and took a variety of antibiotics and other acidity medication before I was diagnosed with Celiac disease in November and my world came crashing down! I'm only 28 and the fact that I can never eat normally freaked me out. 

Nonetheless I opted to switch my diet to trying and being completely gluten free. I stick to rice and was doing a lot of millets such as sorghum, pearl and finger millets but was facing constipation since these millets are extremely dry so I've stopped those too. I stick to rice mainly as one of the meals and have veggies ( salads, stir fried etc) for the other meal. I've completely cut out lactose as I thought this was causing my stomach to be uneasy. 

 

My question is in spite of not eating out and sticking to home food, I still feel uneasy in my abdomen a couple of hours after lunch and then for the rest of the day. I eat fruits and try and avoid any processed food even if it has a gluten free stamp on it. My upper abdomen feels a little hard and if I apply the slightest pressure on it, a volley of burns follow through. I sometimes suffer from extreme headache, I don't know if it's because of the gas building up in my stomach. 

 

2 months into being gluten free and I still don't feel better. My IgA levels have dropped from 300 to about 67 in 2 months. But inspite of this I don't feel better. Did anyone else have similar symptoms when they were first diagnosed with Celiac? Being a naturally born worrier I sometimes can't help thinking it's cancer. My Vitamin B12 and D levels aren't that great either. 

 

Please Help! 

 

 

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You probably need to supplement on those B-vitamins til you heal I use Liquid Health Stress and Energy and the Neurological Support 1tbsp each 3 times a day before a meal, they are liquid so you just mix them in a drink. How is your BM? Do you go daily? If you have constipation/hard stool I would consider Natural Vitality Calm with small doses 1/4 tsp starting and slowly up to the full 2tsp 1/4 tsp at a time over a week to two til you get loose stools then back off (Dosing to tolerance) As constipation can be a sign of magnesium deficiency another major issue with this disease.

Now on to your bloating issues, you mentioned a round of antibiotics....this might have led to a candida issue, it did with me last time I was on them. It basically might have killed off the good bacteria in your gut and let a fungus called candida which is normally kept in check go out of control. This fungus feeds on carbs and sugars. If your on the standard gluten free diet your going to get lots of gas, bloating, etc. With this. Look up the symptoms and talk to a doctor see if it matches if it does, you will have to go to a low carb diet and take something like CandidaFX for a month or so to kill it off. Try a keto/low carb diet for now removing fruit, grains, sugars. and starchy veggies, going to meat, and leafy greens. If the bloat goes down you will have a idea of the issue.

Sounds like your doing great with the diet and your numbers are coming down alright, just look over the newbie 101 sections to double check everything. Might be some traces in tiny amounts slipping in sometimes, perhaps in a CCed cookware or condiment jar? I doubt it but just a thought.

[Jmg]

First off, we were all clueless at one point, so you are in good company

2 months is still relatively early days for the diet, some take 6-12 months to get full recovery. It's also not always a steady progression, you get good and bad days.

in addition to Ennis's good advice above have you considered removing dairy entirely, not just lactose. Some celiac are lactose intolerant and can recover this as their vili heals, but a smaller number can't tolerate dairy proteins and that's what I found,. Something you could try.

also are you vegetarian? Easing off on those grains may help, they may be tough to digest as you e said yourself. 

Basically you need to treat these first 6 months on the diet as a heal your gut time, eating whole foods, as to be fair you are doing, maybe trying some fermented foods, bone broth (if you aren't veggie) and doing best to help your body heal.

having said all that you do seem to be doing most of that, so maybe some more time needed for your body to recover further?

best of luck

matt