Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weird recovery symptoms?


SheenaM

Recommended Posts

SheenaM Apprentice

So I was just diagnosed as "probably" celiac a couple weeks ago at age 30. The probably is because the presentation of my signs and symptoms is a little strange. I have been on a gluten free diet for about 2-3 weeks. I have always had what we thought was chronic eczema which has been getting steadily worse for the last 5 years or so, and it no longer seems to be responding to steroid creams. Suddenly now after starting the gluten-free diet, my feet are itching enough to drive me crazy and have the lowest profile most barely noticible bumps ever. My question is, has anyone had "mild" DH that could be misdiagnosed as eczema? If so, how long did it take to go away after you started the diet? Also, for anyone else diagnosed as an adult, how long did it take before you started seeing real results? I feel like my body is almost going through a weird withdrawal phase. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



notme Experienced

i had 'withdrawal' symptoms when i first started strictly gluten free.  i drank lots of water, took hot showers and rest, rest rest.   can you take benedryl until your itch clears up?  i still avoid iodine (bc if it's dh, iodine can aggravate it) so, lay off the fish and switch to uniodized salt for awhile, maybe that will help. 

where's squirmy?  she always has the best dh suggestions :) 

welcome to the forum and i hope you get relief soon!

SheenaM Apprentice

Hey Thanks! I did more research and found the iodine thing. I had actually switched to more fruit as a healthy alternative to gluten based snacks and I am one of those people that uses salt on grapefruit >.<  I also just found out that at least one of my meds has wheat in it so I haven't actually been as good as I thought on the diet. Theres a lot of learning to do when you first start. 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      7

      Am I nuts?

    2. - lalan45 replied to GlorietaKaro's topic in Super Sensitive People
      7

      Am I nuts?

    3. - knitty kitty commented on Scott Adams's article in Ataxia, Nerve Disease, Neuropathy, Brain Damage and Celiac Disease
      2

      Could Gluten and Alzheimer’s Be Linked? New Research Uncovers Surprising Protein Parallels (+Video)

    4. - SamAlvi posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      High TTG-IgG and Normal TTG-IgA

    5. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,837
    • Most Online (within 30 mins)
      7,748

    Chat
    Newest Member
    Chat
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • GlorietaKaro
      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
    • lalan45
      You’re not crazy—some people have severe neurological and physical reactions to gluten, not just digestive issues. While testing can be tricky without eating gluten, documenting symptoms and seeing a specialist familiar with atypical celiac or gluten-related disorders can help. Your reactions are real, and it’s valid to be cautious.
    • SamAlvi
      Anti TTG (IgA) 2.430 U/mL Anti TTG (IgG) 288.2 U/mL
    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.