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Recent Activity
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- Stegosaurus posted a topic in Super Sensitive People0trehalose intolerance
For the past 3 years, I’ve bloated from most powders, e.g. gelatin, Bulk Supplements glutamine. I don’t eat processed food at all. I know now I’ve had SIBO for 3 years. I’ve been keto for 12 years, except 3 years ago I started eating more starch and fruit. Appears trehalose, a disaccharide of glucose, is used as a stabilizer in LOTS of food, and there a...- 1
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- common additive
- dysbiosis caused enzyme loss
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- Aretaeus Cappadocia commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease14Study Looks at Iron Levels and Celiac Disease Development
Interesting article and food for thought (no pun). I read the original article and I thought there were some weaknesses in their approach that they did not acknowledge. First, while the UK biobank is a wonderful resource and I'm happy to see this kind of study using it, I don't understand how people were selected to participate in the biobank (it...- celiac disease
- deficiency
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- knitty kitty replied to glucel's topic in Super Sensitive People10iron digestibility
Thiamine helps iron function in cells. Thiamine also helps with glucose intolerance (pre-diabetic state) and can prevent diabetes. Thiamine improves blood pressure and cardiovascular diseases. Interesting Reading: Thiamine (Vitamin B1)—An Essential Health Regulator https://pmc.ncbi.nlm.nih.gov/articles/PMC12251314/ The Association B... -
- knitty kitty replied to Colleen H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease5
Celiac gluten intolerance storm or attack
Benfotiamine is a form of thiamine which has a fatty tail attached to it. This fatty tail allows it to slip into a cell by merging the fatty tail with the fatty cell membrane. Thiamine Hydrochloride must enter into a cell by using a thiamine transporter, sort of like a stage door with a bouncer for VIP guests only. Thiamine and Folate use the same...
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Posts
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By Stegosaurus · Posted
For the past 3 years, I’ve bloated from most powders, e.g. gelatin, Bulk Supplements glutamine. I don’t eat processed food at all. I know now I’ve had SIBO for 3 years. I’ve been keto for 12 years, except 3 years ago I started eating more starch and fruit. Appears trehalose, a disaccharide of glucose, is used as a stabilizer in LOTS of food, and there are glowing articles about it being a safe low glycemic index sweetener. But there’s evidence it adversely impacts the gut biome. "...realistic trehalose consumption from natural sources could be estimated at < 0.3 g per person per day (USA)." It’s commonly used in "baked goods, breakfast cereals, rice and pasta, processed vegetables, fruit (dried and juiced), milk products, meat and fish products, sweets, chewing gum, and ice cream...the FDA GRAS report for trehalose considers a potential mean consumption level of 34.43 g day...three epidemic strains of Clostridium difficile have evolved independent mechanisms to better metabolize this nutrient resource." https://pmc.ncbi.nlm.nih.gov/articles/PMC6546318/ "Trehalose binds water, prevents oxidation, and preserves the structure of food during freezing and heating. It also improves the taste while causing slightly milder blood glucose spikes. These properties made trehalose a common food additive in: Dried and frozen food Instant food (noodles, rice, soups) Sugar coatings and fillings Baked goods Seafood Most manufacturers label trehalose under “added sugars” or “natural flavors.” People who don’t tolerate mushrooms probably lack trehalase." https://supplements.selfdecode.com/blog/trehalose-health-benefits/#Trehalose_Food_Sources Note that FDA allows food labels to exclude mention of any component that is <0.5%. It’s called the averaging rule, and the component is not on the label. A food can have very many components that are each <0.5%. So reading the label is no assurance that you know what you’re consuming. https://www.allergy-insight.com/trehalose-intolerance/ "...trehalose intolerance is caused by a deficiency of the enzyme trehalase...can be genetic, or caused by severe gastroenteritis and other gut diseases." https://pubmed.ncbi.nlm.nih.gov/18777247/ Characterization of alpha,alpha-trehalase released in the intestinal lumen by the probiotic Saccharomyces boulardii "...trehalase deficiency is more common than is believed and that oral administration of S. boulardii could be beneficial in patients with digestive symptoms caused by trehalose intolerance." I ferment fruit juice with Florastor to greatly increase the colony count. It's easy and delicious. I drink 1/2 cup with any trehalose source, and it helps. -
By knitty kitty · Posted
Thiamine helps iron function in cells. Thiamine also helps with glucose intolerance (pre-diabetic state) and can prevent diabetes. Thiamine improves blood pressure and cardiovascular diseases. Interesting Reading: Thiamine (Vitamin B1)—An Essential Health Regulator https://pmc.ncbi.nlm.nih.gov/articles/PMC12251314/ The Association Between Vitamin B1 Deficiency and Anemia Among Elderly Patients at a Rural Hospital in Japan: A Cross-Sectional Study https://pubmed.ncbi.nlm.nih.gov/38021762/ The Iron Deficiency Response of Corynebacterium glutamicum and a Link to Thiamine Biosynthesis https://pmc.ncbi.nlm.nih.gov/articles/PMC7205493/ Association of vitamin B1 with cardiovascular diseases, all-cause and cardiovascular mortality in US adults https://pmc.ncbi.nlm.nih.gov/articles/PMC10502219/ -
By knitty kitty · Posted
Benfotiamine is a form of thiamine which has a fatty tail attached to it. This fatty tail allows it to slip into a cell by merging the fatty tail with the fatty cell membrane. Thiamine Hydrochloride must enter into a cell by using a thiamine transporter, sort of like a stage door with a bouncer for VIP guests only. Thiamine and Folate use the same transporters to enter cells. In thiamine deficiency, these transporters shut down and thiamine hydrochloride can no longer enter through those transporters. Folate, too, can have difficulty entering cells through the transporters, which can result in anemia. High doses of Thiamine Hydrochloride must be taken to "storm the gates" and force the transporters to reopen. Higher concentrations of Thiamine Hydrochloride outside cells cause movement of Thiamine to the lower concentration inside cells by passive diffusion. However, if subclinical thiamine deficiency has gone on for a while, there are fewer and fewer thiamine transporters present on the cell membranes. So even high dose thiamine hydrochloride may not get into cells as effectively as Benfotiamine with its lipid tail that can allow thiamine to slip in easily. People with autoimmune diseases tend to have fewer thiamine transporters and low thiamine blood levels. Benfotiamine has been shown to improve depression, anxiety, neuropathy, and fatigue. Benfotiamine helps protect the myelin sheaths that protect nerves. References: High dose thiamine improves fatigue in multiple sclerosis https://pmc.ncbi.nlm.nih.gov/articles/PMC3736110/ Vitamin B1 Intake in Multiple Sclerosis Patients and its Impact on Depression Presence: A Pilot Study https://pmc.ncbi.nlm.nih.gov/articles/PMC7551277/ -
By Aretaeus Cappadocia · Posted
Hi, I just wanted to comment on this aspect. If I understood correctly, your tTg-IgA went from >250 to 218 in about 7 weeks (Jan 21 to ~Mar 13) with known inadvertent gluten ingestions during that time. To my knowledge, clinicians usually wait until 3-6 months of true gluten free diet (no shade) before retesting for celiac IgA levels. I don't want to discount any of the symptoms you are seeing but it's possible that you haven't been truly gluten free long enough to start seeing real benefits. The biology of celiac is such that gluten acts less like a dose-response 1:1 situation and more like a flywheel that has momentum. It takes time for it to slow down and every glutening adds momentum to the celiac flywheel, that is, adds more time until it can slow down. Also, much like is described in the Gluten-free 101 article, make sure you've gone through your kitchen and pantry to clean out all the leftover crumbs from your past life, rewash pans, etc, ziplock any risk items that you have to keep (eg wheat flour for the non-celiacs in your family). While doing it, maybe wear a particle mask and wash your hands for extra safety. Good luck to you! -
I must admit I felt the same as you about the load being lightened when I came across people on this forum back in 2013 and saw that others had the same symptoms as me. I had so many weird and wonderful symptoms that I thought something else other coeliac disease was going on. Being a hypochondriac, I worried about them all! It is incredible the damage that gluten and deficiencies can inflict, but also strange how symptoms vary from one coeliac to another. Also, the speed of recovery. Two friends that were diagnosed at the same time as me responded very quickly to the gluten-free diet, it took me longer, but I got there in the end, thankfully!
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