Weak Positive, Family History, Rash, Endoscope

[viajera919]

Hello, all!

My mom and sister have biopsy and bloodwork confirmed celiac. I have had a terrible rash on my ankle for years. It was always worse after eating and the dermatologist never really knew what to do but give me steroid cream which helped temporarily. I also get tired after meals. I eat a very clean, no processed food diet so besides some whole wheat noodles and occasional soy sauce or pita bread, I don’t get a ton of gluten in my diet.

 

I got my bloodwork done IGA total was fine so no deficiency. tTG IGA was 32.2 and flagged high. Lab says 0-14.9 is reference normal. 

I went for my endoscopy today and my doctor said it was a weak positive, that my gut didn’t show signs of celiac but we’ll have to see what pathology says since we have a family history. 

Im just looking for experience with weak positives and no apparent gut damage but family history and what you’ve done. I know I’ll need to wait on pathology but I’m curious!  Thank you! 

[GFinDC]

Hello Viajera919,

Welcome to the forum!

Since you don't eat much gluten, you may not get an accurate test result.  Generally, it's recommended a person eat gluten every day for at least 2 weeks before and endoscopy.   For blood antibodies, they recommend 12 weeks of eating gluten.  So your results are kind of unpredictable, since you aren't eating  gluten regularly.

But, you did have one positive antibody test, so something is going on.  You only need one positive antibody to have celiac.  The damage that can be seen by the eye is usually severe cases.  But sometimes celiac damage is only visible under a microscope.  So if the doc saw some damage by eye, that is probably an indication the microscope will show celiac.