Could it be Celiac Disease?

[Allybobo]

Hi there,

I am a 21 y/o female that is living in pain every day. I would like to share my background with you first of all. 

As a young child, I noticed I wasn't eating enough and I would have these unexplainable pains that I was told was anxiety. I've been underweight for as long as I can remember. Pains, anxiety, and the lack of eating resulted in me later being diagnosed with leukemia cancer at age 9. 

Last year in 2017, I was at my best. I practice bodybuilding and reached a weight of 123lbs at 5" 4'. Unfortunately, I developed awful digestive disorders that kept landing me in the ER. A month later of brutal torture, I underwent emergency gallbladder surgery to remove the inflamed gallbladder because again, I wasn't eating and I was extremely ill. 

I was told it is a fairly "easy" procedure, but I was in pain no matter despite receiving morphine. The medicines that were supposed to "help" made me feel worse, so I chose to deal with the pain. It's been literally almost 9 months and I still haven't recovered entirely. 

I have AWFUL symptoms such as bile diarrhea, loss of appetite, bloating, loose stools (yellow), trapped gas, nausea (not as often), and intense abdominal pain in my abdominopelvic region. It is not my stomach, the release of gas doesn't provide immense relief; rather only temporary because more gets stuck. It is typically in the area of my intestines. Whatever I eat, I have to take digestive & gallbladder enzymes. I take probiotics too. 

I am so underweight and fatigued all the time. I am scared to eat any sort of food besides for the BRAT diet on days like this. I can't live like this anymore as I've lost a dangerous amount of 14 lbs and nothing is working for me to gain it back... 

Anyway, currently, I am in the "all clear" by my GP. All my blood work demonstrates proper levels (he didn't specify if he did the test for the antibodies; I'll have to reach out to him). I had an ultrasound recently which obviously showed no abnormalities.

Do these signs + symptoms seem familiar to you? I have been carefully introducing gluten-free foods into my life, but am not entirely gluten-free at this moment. I also need to add my diet includes low-fat everything and lactose-free due to my intolerances. 

I know this isn't a group of professionals. I am reaching out to this group as an individual who's been experiencing unexplainable symptoms and food intolerances.  

Thank you. 

 

[cyclinglady]

9 hours ago, Allybobo said:

Hi there,

I am a 21 y/o female that is living in pain every day. I would like to share my background with you first of all. 

As a young child, I noticed I wasn't eating enough and I would have these unexplainable pains that I was told was anxiety. I've been underweight for as long as I can remember. Pains, anxiety, and the lack of eating resulted in me later being diagnosed with leukemia cancer at age 9. 

Last year in 2017, I was at my best. I practice bodybuilding and reached a weight of 123lbs at 5" 4'. Unfortunately, I developed awful digestive disorders that kept landing me in the ER. A month later of brutal torture, I underwent emergency gallbladder surgery to remove the inflamed gallbladder because again, I wasn't eating and I was extremely ill. 

I was told it is a fairly "easy" procedure, but I was in pain no matter despite receiving morphine. The medicines that were supposed to "help" made me feel worse, so I chose to deal with the pain. It's been literally almost 9 months and I still haven't recovered entirely. 

I have AWFUL symptoms such as bile diarrhea, loss of appetite, bloating, loose stools (yellow), trapped gas, nausea (not as often), and intense abdominal pain in my abdominopelvic region. It is not my stomach, the release of gas doesn't provide immense relief; rather only temporary because more gets stuck. It is typically in the area of my intestines. Whatever I eat, I have to take digestive & gallbladder enzymes. I take probiotics too. 

I am so underweight and fatigued all the time. I am scared to eat any sort of food besides for the BRAT diet on days like this. I can't live like this anymore as I've lost a dangerous amount of 14 lbs and nothing is working for me to gain it back... 

Anyway, currently, I am in the "all clear" by my GP. All my blood work demonstrates proper levels (he didn't specify if he did the test for the antibodies; I'll have to reach out to him). I had an ultrasound recently which obviously showed no abnormalities.

Do these signs + symptoms seem familiar to you? I have been carefully introducing gluten-free foods into my life, but am not entirely gluten-free at this moment. I also need to add my diet includes low-fat everything and lactose-free due to my intolerances. 

I know this isn't a group of professionals. I am reaching out to this group as an individual who's been experiencing unexplainable symptoms and food intolerances.  

Thank you. 

 

Welcome! 

Yes, you can have celiac disease, but the only way to know is to get tested.  Ask your GP to run a full celiac antibodies panel.   Do not go gluten free until all testing is complete and that included an endoscopy.  

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I am sorry that you are not well.  I can share that I had a non-functioning gallbladder and if I had known that I had celiac disease, I think I could have avoided surgery.  

Something is wrong!  Keep advocating for your health!