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Possible dh

Dotster

By Dotster
in Dermatitis Herpetiformis

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Dotster Newbie
Dotster
Posted

Hi, I believe I may have DH, it became really bad about 3 years ago when I had bilateral large red lesions, blisters and the most unbelievable itch sometimes without a rash. I get it on my feet legs head under my arms and arms, it usually starts with a prickle or stinging sometimes I see or feel blisters but I always get large red lesions which itch like mad for a while start to fade then restart itching etc, I have tried all sorts of creams to no avail. I also had bowel problems a negative coeliac blood screen but diagnosed gluten intolerant,

I've been gluten free for 15 months the skin rashes all went after 3 to 4 months until I got caught out with hidden gluten twice and all the symptoms were back, 2 months later and nearly gone, doctor has now referred me to dermatology as she thinks it is possibly dh.

I'm guessing I will need to eat gluten for testing but I don't want to start yet as its a possible 12 week wait for an appointment.

Does anyone else get these large lesions? Does your rash leave scars mine start off purple, I have been taking fexofenadine which I'm not sure has helped or the rash has just faded

Sorry for a long post so many questions x tia

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squirmingitch Veteran
squirmingitch
Posted

Yes, large lesions are possible. Yes, they leave scars -- colors range from purplish to tan to white - they will all fade away eventually. 

Eating out is like playing Russian roulette. 

Follow the suggestions given by apprehensiveengineer in this thread.

 

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