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What could I have other than Celiac?

Nixie12
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Nixie12 Newbie
Nixie12
Posted

A couple months ago I developed insomnia. My doctor thought I could have a stomach issue (strong correlation between the stomach and sleep) so she tested me for several different allergies. I tested negative for gluten but my IGA came back high. She told me I had celiac and to start a gluten free diet. My sleep had started getting better prior to going gluten free. I’ve been gluten free for about 6-8 weeks and I’ve developed stomach issues that I didn’t have before. I’ve made an appointment to see a GI doctor because I’m wondering if I might not have Celiac and my gluten free diet is irritating something. If I don’t have celiac, why else would I have high IGA results? 

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kareng Grand Master
kareng
Posted
6 minutes ago, Nixie12 said:

A couple months ago I developed insomnia. My doctor thought I could have a stomach issue (strong correlation between the stomach and sleep) so she tested me for several different allergies. I tested negative for gluten but my IGA came back high. She told me I had celiac and to start a gluten free diet. My sleep had started getting better prior to going gluten free. I’ve been gluten free for about 6-8 weeks and I’ve developed stomach issues that I didn’t have before. I’ve made an appointment to see a GI doctor because I’m wondering if I might not have Celiac and my gluten free diet is irritating something. If I don’t have celiac, why else would I have high IGA results? 

You need to get a copy of those test results.  I hesitate to answer because I am not sure if they are talking about total serum IGA - which is not directly related to Celiac or a TTg IGA test is elevated.

The simple explanation of serum IGA is - it is taken to see if you can make IGAs that are "counted" for the ttg Iga Celiac test.  a few people don't make enough of them so they need  a different blood test.  The total IGA being high needs to be looked at by a doctor - but if that is what this one is talking about - he/she is an idiot and has diagnosed you incorrectly.  

Nixie12 Newbie
Nixie12
Posted
  • Author

It looks like I had two tests done. One serum IGA that was high and one TTG IGA that was considered a weak positive - 5.1 (weak positive range 4-10). 

kareng Grand Master
kareng
Posted
2 hours ago, Nixie12 said:

It looks like I had two tests done. One serum IGA that was high and one TTG IGA that was considered a weak positive - 5.1 (weak positive range 4-10). 

Before you decide you are a Celiac( or let a doctor decide) you might want to get checked for other autoimmune diseases that can cause a slightly high TTG IGA and a very high total IGA

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