Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dapsone reaction

Freephilly
 Share

Recommended Posts

Freephilly Newbie
Freephilly
Posted

Has anyone here ever had a bad experience with Dapsone?  I think I am either allergic to it or at least having a sensitivity to it as my rash has gotten even worse just 2 days into taking it.  

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted
18 minutes ago, Freephilly said:

Has anyone here ever had a bad experience with Dapsone?  I think I am either allergic to it or at least having a sensitivity to it as my rash has gotten even worse just 2 days into taking it.  

Are you eating completely gluten free?  I am not sure how many days it takes to start working.  Maybe that is a good question for your doctor?

knitty kitty Grand Master
knitty kitty
Posted
3 hours ago, Freephilly said:

Has anyone here ever had a bad experience with Dapsone?  I think I am either allergic to it or at least having a sensitivity to it as my rash has gotten even worse just 2 days into taking it.  

Foods high in iodine can make DH rash flare.  Avoid shellfish, idolized salt and dairy products.  

Dapsone contains sulfur.  Some Celiacs develop a sensitivity to Sulfites and other forms of sulfur.  Here's an article that explains it.

http://www.thepatientceliac.com/tag/celiac-disease-and-sulfite-intolerance/

I have a hypersensitivity to sulfur containing compounds and can't use Dapsone or other sulfa medications.   I need to avoid gluten, shellfish, idolized salt, seaweed, and dairy.  

DH is sometimes associated with vitamin B12, iron, or folate deficiencies.  Some Celiacs have a MTHFR gene mutation and require the methylated form of B12 and methylfolate.

Hope this helps.

 

squirmingitch Veteran
squirmingitch
Posted

One of the side effects of Dapsone is a skin rash. See:

Open Original Shared Link

 

Numerous people with dh who have taken Dapsone have had unacceptable side effects from taking Dapsone & some of those were rash. 

  • 2 weeks later...
Susan Cameron Newbie
Susan Cameron
Posted
On 6/6/2018 at 8:29 AM, squirmingitch said:

One of the side effects of Dapsone is a skin rash. See:

Open Original Shared Link

 

Numerous people with dh who have taken Dapsone have had unacceptable side effects from taking Dapsone & some of those were rash. 

I have been using Jamaiican Black Castor Oil on my DH. It stops the itching and burning instantly and is starting to clear up.  I will not take Dapsone. 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,165
    • Most Online (within 30 mins)
      7,748
    melindakathleen
    Newest Member
    melindakathleen
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...