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Desperate for help

Scaredycat
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Scaredycat Newbie
Scaredycat
Posted
(edited)

I have neuropathy in hands and feet which is spreading up my arms and legs. I was diagnosed with low b12 and have been having three injections a week since April but the neuropathy is getting worse. Years ago I suffered a couple of bouts of ibs but, apart from colic if I overdo fruit and veg, my digestion is fine. Despite having a really good diet I was also vit d deficient and have low IgA. Another random symptom is that my front teeth have yellowed but with a horizontal white stripe across them. The thing scaring me to death is that I've lost 10lbs for no good reason.  Is there any chance some of this could be gluten related? 

Edited by Scaredycat
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trents Grand Master
trents
Posted

Abolutely! All the issues you described have been tied to Celiac disease. Have you been diagnosed with Celiac disease yet? And if so, are you being conscientious in avoiding gluten?

If you have not been diagnosed you need to have testing done.  But make sure you have not gone off gluten until after the testing or the testing will not be accurate.

Scaredycat Newbie
Scaredycat
Posted
  • Author

Thank-you for the info. No I  haven't been tested. I had assumed the problem was low b12 caused by taking omeprazole for GERD. I stopped taking it and the reflux has responded quite well to probiotics. However I've also been diagnosed with MGUS which can cause neuropathy and can develope into myeloma. Adding that information to weight loss I might just die of fright! Coeliac disease would definitely be preferable.

Ennis-TX Grand Master
Ennis-TX
Posted

Yeah Celiac will cause the B-vitamins issues with damaged intestines Vitamin D is another huge one and magnesium. The neuropathy could be either caused by the deficiency of B-vitamins and magnesium OR it could be gluten ataxia. 
Do look at getting tested talk to you doctor about the FULL celiac panel, and perhaps go ahead and see about arranging the scope. You have to be eating gluten daily for testing so do not stop for now.
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GFinDC Veteran
GFinDC
Posted

Hi SC,

There is a common expectation that people with celiac disease have digestive symptoms.  But that is not always true.  Often they have symptoms outside the gi tract instead.  Some people have no symptoms at all and they call that silent celiac.  Or people can get a skin rash called DH (dermatitis herpetiformis) or develop gluten ataxia or a  host of other AI (
auto-immune) conditions or symptoms.  So celiac can be really hard to diagnose by symptoms since they are so varied or non-existent.

The thing to do is get a full celiac disease antibody panel.  If you test positive on the antibodies, then they do an endoscopy.

The white stripe across your teeth can be a sign of changes in nutrition, due to celiac disease or starvation.  The same thing can happen on fingernails.

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