Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Repairing The Damage


apitbullnamedplug

Recommended Posts

apitbullnamedplug Newbie

I was diagnosed with this as a wee child, thought I grew out of it in high school and could be a normie, so subsequently lived a glorious life of pizzas, cakes and breads.

But 10 years later, a confounding lethargy and balding pate made me rethink my habits. Since then I'm 100% poison, er gluten, free and have never felt better.

My question to anyone else who may frequent this post is this:

What can be done to repair the damage done from those years of gluten? Is the damage permanent, or will my insides heal themselves?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest jhmom

Hi and welcome to the board! :D

I am sure you already know this, but Celiac is NOT something we outgrow, unfortunately we have to adhere to a strict gluten-free diet for the rest of our lives! You can still enjoy all your favs like pizza, cake, cookies and brownies, they just have to be gluten-free!! Open Original Shared Link sells a number of yummy things. Mi-Del makes gluten-free animal cookies, chocolate chip cookies and a couple of others. Amy's Organic makes a chees pizza on rice crust, it's pretty good too!

From what I understand it takes some time for your villi to heal, but I am pretty sure they do (please someone correct me if I am wrong).

Good luck to you and I hope you find some gluten-free treats that fix your sweet tooth :D

Guest gillian502

yes, the villi do heal after several months gluten-free. Sometimes it will take about 2 years for your insides to heal, depending on the amount of damage done. My villi were very damaged, and I have been gluten-free for 8 months now and have just had my second biopsy, which will show me if my villi have begun to heal. I certainly hope so, though I am different than most Celiacs because I am not doing so great on this diet, in many ways it has made me feel worse. Guess my GI tract has to get used to eating in a whole new way. But at least our insides do heal eventually, though we must never go off the diet unless we want all our damage back again!

  • 6 years later...
britbear Newbie

Just read a recent article that reasearch is finding that the damage to the small intestine is probably irreversible. Here is the link in case anyone is interested.

https://www.celiac.com/articles/1090/1/Neurological-Damage-Caused-by-Celiac-Disease-Not-Reversed-by-Gluten-Free-Diet/Page1.html

Makes it more important than ever to have my very young grandchilddren checked and watched for symtoms.

rosetapper23 Explorer

L-Glutamine purportedly helps heal the gut according to several celiac experts. I've tried it myself, and it helped a great deal.

psawyer Proficient

Just read a recent article that research is finding that the damage to the small intestine is probably irreversible. Here is the link in case anyone is interested.

https://www.celiac.com/articles/1090/1/Neurological-Damage-Caused-by-Celiac-Disease-Not-Reversed-by-Gluten-Free-Diet/Page1.html

Makes it more important than ever to have my very young grandchildren checked and watched for symptoms.

That article is about neurological damage, not intestinal damage.

I had severe damage to my small intestine (Marsh 4) when tested by biopsy in June of 2000. Five years later a follow-up endoscopy and biopsy found that my intestines had completely healed.

The only neurological symptom I had was migraine headaches. I had them regularly for decades. I have not had one in the more than ten years that I have been gluten-free.

Please note that this topic is originally from 2004, and information in it may be out of date.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,200
    • Most Online (within 30 mins)
      7,748

    Elisa Stutsman
    Newest Member
    Elisa Stutsman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Redanafs
      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
×
×
  • Create New...