Looking for advice

[Kl428]

Sorry for the long post...back in September I started having unexplained bloating, nausea, and stomach pain. Had normal blood workup done and no findings. Had an abdominal/pelvic ct scan and that showed some ovarian cysts and what i was told were enlarged lymphnodes. Nothing that should be causing my symptoms. Symptoms pretty much stayed then got a bit worse in march/april. Another ct scan, same findings. Next step was a gastgoenterology appointment and he followed that up with an upper endoscopy. He found nothing unusual (although I still had no explanation for the enlarged lymphnodes).He said to follow up with him in August. Well since the beginning of june, I have started having an increase in the severity of my symptoms. More bloodwork (normal) and a new ct scan (same results) and no other answers. I have started having other issues as well (diarrhea, brainfog, horrible gas, and more intense bloating and stomach pain) I decided tonight to look on my patient portal at past test results and saw that the enlarged lymphnodes are noted to be in the celiac region on one of my ct scan reports. I was going to call my gastro doc tomorrow to see about following up and now I'm wondering if I should bring up a discussion about celiac?? (On a stranger note, my feeling worse since June coincides with me pretty much giving into my daily craving of toast, maybe too much gluten??) 

[kareng]

2 minutes ago, Kl428 said:

Sorry for the long post...back in September I started having unexplained bloating, nausea, and stomach pain. Had normal blood workup done and no findings. Had an abdominal/pelvic ct scan and that showed some ovarian cysts and what i was told were enlarged lymphnodes. Nothing that should be causing my symptoms. Symptoms pretty much stayed then got a bit worse in march/april. Another ct scan, same findings. Next step was a gastgoenterology appointment and he followed that up with an upper endoscopy. He found nothing unusual (although I still had no explanation for the enlarged lymphnodes).He said to follow up with him in August. Well since the beginning of june, I have started having an increase in the severity of my symptoms. More bloodwork (normal) and a new ct scan (same results) and no other answers. I have started having other issues as well (diarrhea, brainfog, horrible gas, and more intense bloating and stomach pain) I decided tonight to look on my patient portal at past test results and saw that the enlarged lymphnodes are noted to be in the celiac region on one of my ct scan reports. I was going to call my gastro doc tomorrow to see about following up and now I'm wondering if I should bring up a discussion about celiac?? (On a stranger note, my feeling worse since June coincides with me pretty much giving into my daily craving of toast, maybe too much gluten??) 

Celiac lymph nodes don't mean Celiac disease.  Celiac disease is not a disease of the lymph nodes in the "Celiac region/ Celiac artery" or elsewhere.  However, untreated  Celiac  disease can cause lymphoma.  Whatever you do, the doctors should be investigating those lymph  nodes.  

[Kl428]

Thank you. I have been thinking the same thing. At one point there was discussion about me seeing a hematologist but that has not happened yet. I will be calling the gastro doc first thing. Again, thank you for replying. 

[GFinDC]

Hi,

The celiac testing process is first a blood antibodies check 
(celiac panel), and then an endoscopy to take samples of the small intestine lining.  You need to be eating at least some gluten every day for 12 weeks before the blood antibodies test, and 2 weeks before the endoscopy.

Ask for the full celiac panel, not the screening test.  Some people don't show up on the screening test but do show positive on the full panel.  The blood tests look for anti-gliaden antibodies.

Treatment for celiac disease is the gluten-free diet, and we can help you get started on that.