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ClareMM
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ClareMM Newbie
ClareMM
Posted

I am about to be tested for celiac disease. I had NEGATIVE blood test but POSITIVE gene test. My dr still wants me tested by GI as I have lots of the symptoms. 

I am starting to worry that my biopsy will be negative & I’ll still have all these mysterious symptoms and illness. 

I’m sure this has been asked before so I’ll keep it quick and simple. Yes or No? 

WHO HAD A  *NEGATIVE* blood test but positive biospsy????? 

Thanks

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rehh05 Apprentice
rehh05
Posted

I did. I had been gluten free or mostly gluten free for a couple of years prior to testing, though. After the negative celiac blood tests, the GI doc gave me the gene test to rule out celiac and was surprised to have that come back showing I had the genes. He then did the biopsies and was even more surprised to find the damage ... he then diagnosed me with celiac. Five years later I had another endoscopy with biopsies and he was tickled to see that all the damage had healed... so he felt he had made the right call and I was following the diet carefully. I had horrible D and all kinds of symptoms until I was healed. 

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