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Impact of blowing a gluten free diet by accident even if you have no symptoms


Zigzag

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Zigzag Rookie

I am asystematic, having recently been diagnosed through blood work as Celiac.  I am gluten free 95% percent of the time but since I am new at this game, I slip up at times; like eating  a mini milky way (found out it has malt), or a bowl of rice crispies (rice) but it has some malt. or a bag of "ready rice" that reading closely has malt. There are a few other examples that I won't go into. But my question is: with is no reactions observed, small amounts taken in; did I do further damage and backtrack any progress that I may have made even being 95% gluten-free? In the 6 weeks since I was diagnosed, I have never consciously gone off the diet... only be accident. Everything I read they say stay very strict, but what does that really mean?


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tessa25 Rising Star

Hate to give you bad news, but with celiac 95% is as bad as 0%, because the antibody reaction lasts a couple of months. Even if you don't feel it. It gets easier with time and knowledge.

Zigzag Rookie

wow... thanks... I better learn the rules fast and read the fine print before I eat anything.  Does that mean even cross contamination will do me in even if I don't feel anything if it should happen?

tessa25 Rising Star

Yes.

ch88 Collaborator

It probably depends on the person.  I think there is some tolerance. You may be able to get away with eating one crumb per day, or something, without it destroying your gut. That is not recommended though.  

It takes up to 2 weeks to heal the gut if you are healthy and a lot longer in some cases. 

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    • trents
      Should not be a problem except for the most sensitive celiacs. The amount of gluten that would get in the air from cooking alone has got to be miniscule. I would be more concerned about cross contamination happening in other ways in a living environment where others are preparing and consuming gluten-containing foods. Thinks like shared cooking surfaces and countertops. And what about that toaster you mentioned?
    • knitty kitty
      Hello, @NCalvo822, Blood tests for Celiac Disease test for antibodies our bodies make in response to gluten exposure.  These Tg IgA 2 antibodies mistakenly attack our own bodies, causing problems in organs and tissues other than just the digestive tract.  Joints can ache, thyroid problems or the pancreas can develop.  Ataxia is just one of over two hundred symptoms of Celiac Disease. Some people with Celiac Disease also make tTg IgA 6 antibodies in response to gluten exposure.  The tTg IgA 6 antibodies attack the brain, causing ataxia.  These tTg IgA 6 antibodies are also found in people with Parkinson's disease, though they may not have Celiac Disease.  First degree relatives (parents, siblings, children) of those diagnosed with Celiac should be tested as well.  Celiac is genetic.  Your mom and sister should be tested for Celiac, too!   Definitely a good idea to keep to a gluten free diet.  
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      @Rebeccaj,  When you smell toast or pasta cooking, that means that particles of that food are floating around in the air.  Airborne gluten can then be inhaled and swallowed, meaning the food particles get into your digestive tract.   If you're careful to avoid gluten and are still having symptoms, those symptoms could be caused by vitamin deficiencies.  
    • Rebeccaj
      ok thanks for your advice. But my question was what happens when someone you know in a house is cooking pasta or toast that's flour  Airbourne without eating.?
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