Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question About Biopsys And Blood Test

Guest tracey and emma

By Guest tracey and emma
in Parents, Friends and Loved Ones of Celiacs

Recommended Posts

Guest tracey and emma
Guest tracey and emma
Posted

hi everyone emma had a biopsy done a few weeks ago and with her symtoms as well they have told me that they suspect celiac disease. but today they got the results of the bood test. and it came back normal. with no evedence of C/D at all. what they are saying is that this is just the on set of C/D as her villi were normal to look at as well. so hear the question....... does the blood test always come back postive to celiac if that is what it is, or is it hit and miss? in other words can the bloods in the early stages come back as normal, even though it might still be C/D? any help would be greatful as emma cons is now on holiday for the next few weeks and i am really confused as to what to think? and our dietician just said stick for the time being to gluten free, and we will talk again in the new year. thanks for your help tracey and emma X X X

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


VydorScope Proficient
VydorScope
Posted
hi everyone emma had a biopsy done a few weeks ago and with her symtoms as well they have told me that they suspect celiac disease. but today they got the results of the bood test. and it came back normal. with no evedence of C/D at all. what they are saying is that this is just the on set of C/D as her villi were normal to look at as well. so hear the question....... does the blood test always come back postive to celiac if that is what it is, or is it hit and miss? in other words can the bloods in the early stages come back as normal, even though it might still be C/D? any help would be greatful as emma cons is now on holiday for the next few weeks and i am really confused as to what to think? and our dietician just said stick for the time being to gluten free, and we will talk again in the new year. thanks for your help tracey and emma X X X

How old is the child? In real small childern the tests do not seem to a be all that realiable. The Bispoy needs a signifgnat amount of damage be done before it has a good chance to succed in finding celiac disease, and litle ones normaly will not have that much damage built up thats to there extremly awsome healing powers. Simular issue with the blood test.

IMO, the response to the diet is the best indicator....

Guest tracey and emma
Guest tracey and emma
Posted
How old is the child? In real small childern the tests do not seem to a be all that realiable. The Bispoy needs a signifgnat amount of damage be done before it has a good chance to succed in finding celiac disease, and litle ones normaly will not have that much damage built up thats to there extremly awsome healing powers. Simular issue with the blood test.

IMO, the response to the diet is the best indicator....

emma is 2 1/2years old the biopsys came back as haveing a problem in the intestine and they were convinced that they were consitatant with C/D. but would not confirm on this test alone. is this normal to? tracey and thanks

VydorScope Proficient
VydorScope
Posted
emma is 2 1/2years old the biopsys came back as haveing a problem in the intestine and they were convinced that they were consitatant with C/D. but would not confirm on this test alone. is this normal to? tracey and thanks

In my epxerence pediatric GI's are very gun shy about calling it celiac disease. My son was 18mos old when he got his bisopy done.

Let me say this, IMO, if you see postive results from the diet, ingore the testing.

That aside, typicaly in adults a postive biopsy is considered teh "gold standard" in America to dx celiac disease. So if your child was 20 years older, I would say NO thats not normal, but at his age, its a bit harder to tell. I would say that it is probably an overly cautius GI doc and your son problaby has it, BUT I AM NOT A DOCTOR.

You were advised to stay on the gluten-free dfiet with him, and I completely agree with that. If you see a postive change with it , then you have your answer, IMO. :D

Guest nini
Guest nini
Posted

positive dietary response is the most reliable indicator. blood tests and biopsy's can only confirm a dx of celiac, they cannot completely rule it out because it may be in the early stages, there may not be enough damage to show up in blood tests yet, the villi may not be damaged yet or they didn't take enough samples from enough areas.

I have to say ITA with Vincent... keep your child on the diet and monitor her progress... my daughter's blood work was negative or inconclusive, she DID NOT have a biopsy because her Dr. wouldn't even consider it (besides I didn't think it was neccessary) but she responded miraculously to the diet, and has horrible reactions when accidentally exposed to gluten. SO, I have my answer, and it looks like you will have yours if she shows improvement on the gluten-free diet.

VydorScope Proficient
VydorScope
Posted
I have to say ITA with Vincent...

:huh: what is "ITA" ? :mellow:

Guest nini
Guest nini
Posted

ITA = I Totally Agree :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748
    ebrown
    Newest Member
    ebrown
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      Help I’m cross contaminating myself,

      By Scott Adams · Posted

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      My only proof

      By Scott Adams · Posted

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisone treatment for inflammation?

      By Scott Adams · Posted

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      I think I am gluten intolerant

      By Scott Adams · Posted

      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.