Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question About Biopsys And Blood Test

Guest tracey and emma

By Guest tracey and emma
in Parents, Friends and Loved Ones of Celiacs

Recommended Posts

Guest tracey and emma
Guest tracey and emma
Posted

hi everyone emma had a biopsy done a few weeks ago and with her symtoms as well they have told me that they suspect celiac disease. but today they got the results of the bood test. and it came back normal. with no evedence of C/D at all. what they are saying is that this is just the on set of C/D as her villi were normal to look at as well. so hear the question....... does the blood test always come back postive to celiac if that is what it is, or is it hit and miss? in other words can the bloods in the early stages come back as normal, even though it might still be C/D? any help would be greatful as emma cons is now on holiday for the next few weeks and i am really confused as to what to think? and our dietician just said stick for the time being to gluten free, and we will talk again in the new year. thanks for your help tracey and emma X X X

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


VydorScope Proficient
VydorScope
Posted
hi everyone emma had a biopsy done a few weeks ago and with her symtoms as well they have told me that they suspect celiac disease. but today they got the results of the bood test. and it came back normal. with no evedence of C/D at all. what they are saying is that this is just the on set of C/D as her villi were normal to look at as well. so hear the question....... does the blood test always come back postive to celiac if that is what it is, or is it hit and miss? in other words can the bloods in the early stages come back as normal, even though it might still be C/D? any help would be greatful as emma cons is now on holiday for the next few weeks and i am really confused as to what to think? and our dietician just said stick for the time being to gluten free, and we will talk again in the new year. thanks for your help tracey and emma X X X

How old is the child? In real small childern the tests do not seem to a be all that realiable. The Bispoy needs a signifgnat amount of damage be done before it has a good chance to succed in finding celiac disease, and litle ones normaly will not have that much damage built up thats to there extremly awsome healing powers. Simular issue with the blood test.

IMO, the response to the diet is the best indicator....

Guest tracey and emma
Guest tracey and emma
Posted
How old is the child? In real small childern the tests do not seem to a be all that realiable. The Bispoy needs a signifgnat amount of damage be done before it has a good chance to succed in finding celiac disease, and litle ones normaly will not have that much damage built up thats to there extremly awsome healing powers. Simular issue with the blood test.

IMO, the response to the diet is the best indicator....

emma is 2 1/2years old the biopsys came back as haveing a problem in the intestine and they were convinced that they were consitatant with C/D. but would not confirm on this test alone. is this normal to? tracey and thanks

VydorScope Proficient
VydorScope
Posted
emma is 2 1/2years old the biopsys came back as haveing a problem in the intestine and they were convinced that they were consitatant with C/D. but would not confirm on this test alone. is this normal to? tracey and thanks

In my epxerence pediatric GI's are very gun shy about calling it celiac disease. My son was 18mos old when he got his bisopy done.

Let me say this, IMO, if you see postive results from the diet, ingore the testing.

That aside, typicaly in adults a postive biopsy is considered teh "gold standard" in America to dx celiac disease. So if your child was 20 years older, I would say NO thats not normal, but at his age, its a bit harder to tell. I would say that it is probably an overly cautius GI doc and your son problaby has it, BUT I AM NOT A DOCTOR.

You were advised to stay on the gluten-free dfiet with him, and I completely agree with that. If you see a postive change with it , then you have your answer, IMO. :D

Guest nini
Guest nini
Posted

positive dietary response is the most reliable indicator. blood tests and biopsy's can only confirm a dx of celiac, they cannot completely rule it out because it may be in the early stages, there may not be enough damage to show up in blood tests yet, the villi may not be damaged yet or they didn't take enough samples from enough areas.

I have to say ITA with Vincent... keep your child on the diet and monitor her progress... my daughter's blood work was negative or inconclusive, she DID NOT have a biopsy because her Dr. wouldn't even consider it (besides I didn't think it was neccessary) but she responded miraculously to the diet, and has horrible reactions when accidentally exposed to gluten. SO, I have my answer, and it looks like you will have yours if she shows improvement on the gluten-free diet.

VydorScope Proficient
VydorScope
Posted
I have to say ITA with Vincent...

:huh: what is "ITA" ? :mellow:

Guest nini
Guest nini
Posted

ITA = I Totally Agree :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Have Tru Joy Sweets Choco Chews been discontinued??

      They both do. The peanuts add nutrients to the treat. Tootsie Roll: Sugar, Corn Syrup, Palm Oil, Condensed Skim Milk, Cocoa, Whey, Soy Lecithin, Artificial and Natural Flavors. M&M Peanut: milk chocolate (sugar, chocolate, skim milk, cocoa butter, lactose, milkfat, peanuts, soy lecithin, salt, natural flavor), peanuts, sugar, cornstarch; less...
    2. Scott Adams
      - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Have Tru Joy Sweets Choco Chews been discontinued??

      But M&M's contain milk, and would not be at all like a Tootsie Roll.
    3. Jmartes71
      - Jmartes71 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets...
    4. Wheatwacked
      - Wheatwacked replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Have Tru Joy Sweets Choco Chews been discontinued??

      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values. Both are made with sugar, not high fructose corn syrup. I use them as a gluten free substitute...
    5. Theresa2407
      - Theresa2407 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

      I see it everyday on my feeds. They go out and buy gluten-free processed products and wonder why they can't heal their guts. I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field. Some days I would just like to scream. So much better when we had support groups and being able to teach...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,269
    • Most Online (within 30 mins)
      7,748
    BrandonR
    Newest Member
    BrandonR
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Wheatwacked · Posted

      They both do.  The peanuts add nutrients to the treat. Tootsie Roll: Sugar, Corn Syrup, Palm Oil, Condensed Skim Milk, Cocoa, Whey, Soy Lecithin, Artificial and Natural Flavors. M&M Peanut: milk chocolate (sugar, chocolate, skim milk, cocoa butter, lactose, milkfat, peanuts, soy lecithin, salt, natural flavor), peanuts, sugar, cornstarch; less than 1% of: palm oil, corn syrup, dextrin, colors (includes blue 2 lake, blue 1 lake, red 40, yellow 6 lake, yellow 5, yellow 6, blue 1, yelskim milk contains caseinlow 5 lake, blue 2, red 40 lake), carnauba wax, gum acacia. glycemic index of Tootsie Rolls ~83 gycemic index of M&M Peanuts ~33   The composition of non-fat solids of skim milk is: 52.15% lactose, 38.71% protein (31.18% casein, 7.53% whey protein), 1.08% fat, and 8.06% ash.   https://onlinelibrary.wiley.com/doi/10.1002/9781118810279.ch04  Milkfat carries the fat soluble vitamins A, D, E, and K. The solids-not-fat portion [of milk] consists of protein (primarily casein and lactalbumin), carbohydrates (primarily lactose), and minerals (including calcium and phosphorus). https://ansc.umd.edu/sites/ansc.umd.edu/files/files/documents/Extension/Milk-Definitions.pdf
    • Scott Adams
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Scott Adams · Posted

      But M&M's contain milk, and would not be at all like a Tootsie Roll.
    • Jmartes71
      Doctors and Celiac.com

      By Jmartes71 · Posted

      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets for disability because I show no signs of celiac BECAUSE IM GLUTENFREE! Actively dealing with sibo and skin issues.Depression is the key because thats all they know, im depressed because medical has caused it because of my celiac and related issues. I should have never ever been employed as a bus driver.After 3 years still healing and ZERO income desperately trying to get better but no careteam for celiac other than stay away frim wheat! Now im having care because my head is affected either ms or meningioma in go in tomorrow again for more scans.I know im slowly dying and im looking like a disability chaser
    • Wheatwacked
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Wheatwacked · Posted

      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values.  Both are made with sugar, not high fructose corn syrup.  I use them as a gluten free substitute for a peanut butter sandwich.  Try her on grass fed, pasture fed milk. While I get heartburn at night from commercial dairy milk, I do not from 'grassmilk'.     
    • Theresa2407
      Doctors and Celiac.com

      By Theresa2407 · Posted

      I see it everyday on my feeds.  They go out and buy gluten-free processed products and wonder why they can't heal their guts.  I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field.  Some days I would just like to scream.  So much better when we had support groups and being able to teach them properly. I just had an EMA blood test because I haven't had one since my Doctor moved away.  Got test results today, doctor ordered a D3 vitamin test.  Now you know what  type of doctors we have.  Now I will have to pay for this test because she just tested my D3 end of December, and still have no idea about my EMA.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.