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IgG tTG levels

laughingduck
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laughingduck Rookie
laughingduck
Posted

My 7 year old daughter was recently diagnosed with IgA deficiency and a positive IgG tTG blood test (after a false IgA test). Her IgG number was a “weak positive” at 28 (normal is <20, borderline is 20-25, positive is >25).  The doctor is not convinced she has it as “most of her patients have much higher numbers”. 
I am curious if anyone had their IgG tested before going gluten-free, and if so what were their numbers?  
Also, what are the chances of this being a false positive?
Her only symptoms are stomach pain and stunted growth. 
Thanks!

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cyclinglady Grand Master
cyclinglady
Posted
On 9/13/2018 at 4:20 AM, laughingduck said:

My 7 year old daughter was recently diagnosed with IgA deficiency and a positive IgG tTG blood test (after a false IgA test). Her IgG number was a “weak positive” at 28 (normal is <20, borderline is 20-25, positive is >25).  The doctor is not convinced she has it as “most of her patients have much higher numbers”. 
I am curious if anyone had their IgG tested before going gluten-free, and if so what were their numbers?  
Also, what are the chances of this being a false positive?
Her only symptoms are stomach pain and stunted growth. 
Thanks!

A positive on a celiac blood panel should be investigated further by a GI.  The complete celiac panel should be run.  It may provide more answers.  

What is your definition of stunted growth?  How Immunoglobulin A (IgA) deficient is she really?  The IgA test result for celiac disease diagnostic purposes needs to be really close to zero in order to invalidate the celiac disease blood test.  Just out of range will not impact the celiac disease blood tests.  

 

laughingduck Rookie
laughingduck
Posted
  • Author

Thank you for responding. 

Her IgA levels were undetectable (<0.1). The doctor tried to get “quantatative IgA” with the second bloodwork we did, but again it just came back as <0.1. 

By stunted growth I mean she is in 3%ile for weight and she had a hand bone scan done two years ago which showed her bone growth as 2 years behind. They said this could be constitutional growth delay and left it that. Now that we have this new info I have to wonder if it is related to celiac or something else. 

We are seeing a pediatric GI in December. 

cyclinglady Grand Master
cyclinglady
Posted

This additional information certainly points more towards a celiac disease diagnosis. 

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