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Legend13

Enlarged tonsil and pain on RHS

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im wondering if anyone can shed any light on this. I have been back and forward to the doctor with what appears to be a slightly enlarged tonsil and a pain that radiates down my neck and under my jaw, all just on the right side. excercise seems to aggrevate it but apart from that it remains pretty much constant. i wouldnt say its sore, but im just aware of this constant discomfort in my tonsil. its been going on now for around 12 weeks.

bit of background info that may or may not be related. i was diagnosed with celiac disease earlier this year but have been gluten-free for 7 months now. i have also been back and forth to a GI doctor as i have mildly inflamed bowels that are causing pain.

could the tonsil problem be related to my bowel problems or does it sound like something else altogether?

i have had blood tests that all came back fine, and my doc has currently got me on a PPI incase it is being caused by reflux but its not making any difference to be honest.

any help would be greatfully recieved.

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Legend13,

See this thread it might help you.

https://www.celiac.com/forums/topic/122593-tonsillectomy/?tab=comments#comment-997652

Here is nice online article overview from medicinenet about the broad spectrum of issues including tonsils that can be effected by an EBV infection.

https://www.medicinenet.com/the_broad_spectrum_of_epstein-barr_virus_disease/views.htm

quoting

The manifestations of primary EBV infection include:

 

Taking some Magnesium Glycinate and the Amino Acid Lysine might help fight/keep the EBV outbreak in control.

Here is some research about the connections of EBV and a Magnesum deficiency.

http://simmaronresearch.com/2015/08/epstein-barr-virus-the-magnesium-connection/

this information was linked in the above thread but in case you don't have time to read the whole thread this is some quick hit links.

I hope this is helpful but it is not medical advice.

Consider what I say; and the Lord give thee understanding in all things” this included.

2 Timothy 2:7

Posterboy by the grace of God,

 

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9 hours ago, Legend13 said:

im wondering if anyone can shed any light on this. I have been back and forward to the doctor with what appears to be a slightly enlarged tonsil and a pain that radiates down my neck and under my jaw, all just on the right side. excercise seems to aggrevate it but apart from that it remains pretty much constant. i wouldnt say its sore, but im just aware of this constant discomfort in my tonsil. its been going on now for around 12 weeks.

bit of background info that may or may not be related. i was diagnosed with celiac disease earlier this year but have been gluten-free for 7 months now. i have also been back and forth to a GI doctor as i have mildly inflamed bowels that are causing pain.

could the tonsil problem be related to my bowel problems or does it sound like something else altogether?

i have had blood tests that all came back fine, and my doc has currently got me on a PPI incase it is being caused by reflux but its not making any difference to be honest.

any help would be greatfully recieved.

Legend13,

You are right to suspect the PPIs as not helping you or your acid reflux.

Here is a nice overview of GERD from fox news 5+ years ago and taking PPIs might be making your acid reflux not better but worse.

https://www.foxnews.com/health/gerd-or-nerd-new-type-of-heartburn-doesnt-respond-to-drugs

they say quoting

  "up to one-half of GERD patients don't get complete relief from even the strongest acid-reducing medications, called proton-pump inhibitors (PPIs), and most don't have any evidence of acid erosion when doctors examine their esophagus with an endoscope."

the problem is when we try to stop PPI's we often get hyperacid secretion when stopping making us feel worse than when we started the PPIs.

you probably had a lot of stress before (like your Celiac diagnosis) in the year before your acid reflux/GERD diagnsosis.

quoting the above article again.

"A 2004 study of 60 patients conducted at the University of California, Los Angeles, found that those with severe, sustained stress in the previous six months were more likely to have heartburn symptoms during the next four months."

taking a step down approach of two weeks between "step down" doses and going LOW CARB can help you transition off the PPIs.

PPIs are approved for only a 14 day use and they are being over used today.

And longer term use of PPIs (greater than 6 months) can cause you to have low Magnesium levels. ... according to the simmaron research (linked above) it (Low Magnesium Levels) could be causing the EBV virus to bond to the Magnesium site receptor's in your body causing including and up to tonsillitis when we are low in Magnesium.

here is the FDA warning on PPIs and low magnesium levels.

https://www.fda.gov/drugs/drugsafety/ucm245011.htm

Magnesium Citrate or Magnesium Glycinate is a good form to supplement with or if that is not convenient you can use Epsom salts in your bath to help get more magnesium into to your routine.  Any nuts especially Almonds and Cashews are good sources of Magnesium.

you might also read this thread about extreme bloat common with acid reflux.

https://www.celiac.com/forums/topic/122303-extreme-bloat-help/

I think it could help you.  It helped brandi1969.

I hope it is helpful but it is not medical advice.

good luck on your continued journey.

As always “Consider what I say; and the Lord give thee understanding in all things” this included.

2 Timothy 2:7

Posterboy by the grace of God,

 

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Just a suggestion:  I've had a pain like that under my jaw and down my shoulder on the left side.  It was constant.  I went to an ear, nose and throat specialist and found it was a blocked saliva gland!  The dr. was able to remove it manually. It was a tiny crystal-like block that had plugged the gland.  The dr. told me to suck on a lemon or drink plain lemon juice to keep it unplugged and to drink more water.  I thought perhaps my experience might help you.

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Have you been checked for Eosinophilic esophagus?  Eosinophils are a type of white blood cells that infiltrate and cause inflammation.  They can infiltrate the throat and cause inflammation there. Eosinophilic esophagus happens with Celiac Disease sometimes.  Sometimes it's due to food allergies like wheat, dairy, and soy.  

https://www.mayoclinic.org/diseases-conditions/eosinophilic-esophagitis/symptoms-causes/syc-20372197

There's a link at the bottom of the page to treatment for EOE.  

Hope this helps!

 

On 11/9/2018 at 2:30 PM, Legend13 said:

im wondering if anyone can shed any light on this. I have been back and forward to the doctor with what appears to be a slightly enlarged tonsil and a pain that radiates down my neck and under my jaw, all just on the right side. excercise seems to aggrevate it but apart from that it remains pretty much constant. i wouldnt say its sore, but im just aware of this constant discomfort in my tonsil. its been going on now for around 12 weeks.

bit of background info that may or may not be related. i was diagnosed with celiac disease earlier this year but have been gluten-free for 7 months now. i have also been back and forth to a GI doctor as i have mildly inflamed bowels that are causing pain.

could the tonsil problem be related to my bowel problems or does it sound like something else altogether?

i have had blood tests that all came back fine, and my doc has currently got me on a PPI incase it is being caused by reflux but its not making any difference to be honest.

any help would be greatfully recieved.

 

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Many thanks to everyone for there responses. It’s certainly given me a few things to speak to my ENT about tomorrow. Will let u know how I get on. 

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I have been having a very similar issue for some time now.  Unfortunately, no diagnosis yet.  I will look forward to learning what you learn from your ENT appointment today.  (And I have also made note of the salivary issue mentioned...the docs have not checked for that and along with the inflamed tonsil, I have swelling under my tongue in the floor of my house, very sensitive ear and slight swelling under my ear).  Thanks, y'all.  I have all but given up on finding help for this issue.

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I met with my ENT yesterday who reckons Iv got a chronic case of tonsillitis. I’m not overly convinced myself, but he’s given me a 4 week course of antibiotics to see if it clears things up. 

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Legend13, I hope your ENT is correct with diagnosis and that you find healing.  Do let us know how you get along.  And thank you for reporting back after your ENT visit.  Be well.

 

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