Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doctor In Los Angeles

Edgar

By Edgar
in Doctors

Recommended Posts

Edgar Newbie
Edgar
Posted

I've been experiencing symptoms of Glueten intolerance for the past 5years. It began after a bout of extremely strong anti-biotics for a sinus infection. It first showed up as dizziness and brain fog, then built progressively over the past 5 years to include a range of symptoms from depression, anxiety and lack of sleep to brain fog, dizziness and severe gastro problems.

It was an allergist who first suggested wheat allergies. I followed up with not one but two GI doctors in Los Angeles and Burbank. One suggested celiacs, another refused to even consider it. Niether did testing and the one who thought I was celiacs seems to have been reitred under odd circumstances (You could say I've seen three GI guys. One of this doctors partners their practice saw me when I did a return visit and insisted the diagnosis of celiacs was a mistake).

I've been kind of floundering on my own since. I'd love a recommendation for a good GI doctor in Los Angeles who has experience with celiac disease.

I've been seeing a nutritionist for help. Aside from being a great accupuncurist, I haven't really gotten much help from her. She keeps prescribing enzymes and things designed to increase acid production. These only seem to make things worse. I know I feel better when I've been able to avoid glueten for even a few days but the symptoms are getting worse so I've resolved to get aggressive about diet and treatment with the new year. Suggestions for doctors in town are sincerely appreciated.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


uclangel422 Apprentice
uclangel422
Posted

I live in Sherman Oaks and I see Dr. Michael Hirt, he is a general internal medicine guy and he diagnosed me.

I also work in Burbank at a hospital and for G.I. guys, Dr. Kerry Weiner is supposed to be the best.

Edgar Newbie
Edgar
Posted
  • Author

I'm a little dubious about Dr. Weiner. It was a partner in his practice that refused to test me and insisted there was no such thing as a food allergy.

Edgar Newbie
Edgar
Posted
  • Author

I spoke with Dr. Pietzak at Children's Hospital. She referred me to Dr. Zipser in San Dimas. I set an appointment to see him in January. Thanks for the referrals.

nathela Rookie
nathela
Posted
I spoke with Dr. Pietzak at Children's Hospital. She referred me to Dr. Zipser in San Dimas. I set an appointment to see him in January. Thanks for the referrals.

I live in Los Feliz, in Los Angeles. I am also looking for a good celiac GI specialist in the area. So, if you like the new doctor, can you let me know? Thank you. I am going to research on naturepath.com... I heard it might be helpful. :)

uclangel422 Apprentice
uclangel422
Posted

I am so sorry that that happened to you with someone affiliated with my hospital. Thanks for telling me about that too, i will stay away from them if i ever need any GI work done.

  • 3 years later...
rpinette Newbie
rpinette
Posted
I spoke with Dr. Pietzak at Children's Hospital. She referred me to Dr. Zipser in San Dimas. I set an appointment to see him in January. Thanks for the referrals.

Edgar, where you happy with Dr. Pietzak? I too am looking for an LA based doctor. Thanks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nasalady Contributor
nasalady
Posted
Edgar, where you happy with Dr. Pietzak? I too am looking for an LA based doctor. Thanks.

Pietzak is exclusively a pediatric doctor, as far as I know. She wouldn't even see my little girl and had her seen by a younger GI doctor (Collins) at CHLA. We do like Dr. Collins, but even though Emma's DNA test revealed HLA DQ2, she wouldn't order a biopsy because Emma's bloodwork was negative. The celiac panel is notoriously inaccurate in young children. I put Emma on the gluten free diet and her eczema disappeared and she started to gain weight.

I saw Dr. Peter Rosenberg in Pasadena. He took me seriously and is a good listener. I think he's the best GI doctor that I've seen.

The only negative I have to report is that when my husband saw him recently (my husband has DH, which I've understood from this board to be an automatic diagnosis of celiac disease), he said that he wasn't convinced that Paul had celiac and wants him to have the celiac panel run even though he's been gluten free since JANUARY. I was surprised by this, because Rosenberg seemed to be up on the latest celiac research.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      20

      My only proof

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac...
    2. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together. Our bodies can make Taurine from meats consumed. Our bodies cannot make Thiamine and must consume thiamine from food. Meat is the best source of B vitamins like Thiamine. Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine...
    3. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      20

      My only proof

      @Jmartes71, I went to Doterra's site and had a look around. The Doterra TerraZyme supplement really jumped out at me. Since we, as Celiacs, often have digestive problems, I looked at the ingredients. The majority of the enzymes in this supplement are made using black mold, Aspergillus! Other enzymes are made by yeast Saccharomyces! Considering...
    4. Scott Adams
      - Scott Adams commented on Scott Adams's article in Additional Concerns
      2

      Gluten Transfer from Biodegradable Tableware: What a New Study Found and Why It Matters (+Video)

      Thanks for mentioning this, and here is an older article on the topic:
    5. Scott Adams
      - Scott Adams commented on Scott Adams's article in Gluten-Free Grains and Flours
      18

      Cricket Flour Makes Really Good Gluten-Free Bread

      Your concern about certified gluten-free cricket powder is completely valid, as cross-contamination in both feedstock and processing is a real issue. Currently, the availability of certified gluten-free options is limited, but brands like Chapul and Entomo Farms, which I believe have offered products processed in dedicated facilities and labeled gluten-free...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,543
    • Most Online (within 30 mins)
      7,748
    Jeanette K.
    Newest Member
    Jeanette K.
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      Supplements for those Diagnosed with Celiac Disease

      By lmemsm · Posted

      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.