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Dyslexic? Daughter With Reading Problems

DonnaD

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DonnaD Apprentice
DonnaD
Posted

Does anyone else have a problem with their child's reading?

My 11yo celiac disease daughter is very bright but hates reading and her spelling is really terrible. Her verbal skills and art are very advanced, she is very good at science.

This all the more noticable as we are a family of bookworms! Just about the only book she actually read to the end was the first Harry Potter on holiday this year it took her all week, my other daughter read it in 2 days. She never reads for pleasure.

She does have Brown's syndrome, also known as superior oblique tendon sheath syndrome, one eye does not move up as far as the other and this causes double vision when looking up, not down. At a recent optitions check it had got much better and was not very noticable. She has been complaining that when she reads that the words get blurry and she has to shut and open her eyes and keep re-focusing. This has not improved being 99.9% gluten-free. Although she is much calmer and more focused and her concentration has really improved. The Optition could not find any other eye problems, she has 20/20 vision.

Could this have anything to do with Coeliac? I have 2 copies of HLA-DQB1*0501 which is linked to neuro problems so she would have this gene from me and a mystery one from her father who blood tested negative. I do think she inherited my spelling gene sadly! - I can't spell, and neither could my Dad.

I would really appreciate any input on this problem. It takes ages in the UK to get anything done about this sort of thing and we are moving to France soon so I really need to know what is going on and who to refer her to.

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VydorScope Proficient
VydorScope
Posted

If you list any sympton of any disorder and ask "can it be from Celiac" you are garenteed to get ppl to say YES. Wether or not its true I can not say.

I am Dyslexic, and I rececntly tested at a "early 5th grade level" for spelling and grammer (I am a 30yr college graduate), and I was just diagnosed with celiac disease this month. So is it connected or am I just the way I am ? Dunno for sure, dunno that there is any real signifignat quality/quanity research in the area of mental impact of celiac disease yet. There needs to be, becuase my own experence with myself and my son tells me there IS a mental impact of some kind. Hence the imfamous "brain fog" symptons.

DonnaD Apprentice
DonnaD
Posted
  • Author
If you list any sympton of any disorder and ask "can it be from Celiac" you are garenteed to get ppl to say YES. Wether or not its true I can not say.

I am Dyslexic, and I rececntly tested at a "early 5th grade level" for spelling and grammer (I am a 30yr college graduate), and I was just diagnosed with celiac disease this month. So is it connected or am I just the way I am ? Dunno for sure, dunno that there is any real signifignat quality/quanity research in the area of mental impact of celiac disease yet. There needs to be, becuase my own experence with myself and my son tells me there IS a mental impact of some kind. Hence the imfamous "brain fog" symptons.

Thanks Vincent,

I did try 'googling' dyslexia and celiac but didn't find anthing much. I am feeling a bit guilty about her as I have been nagging her to read and knew she hated it but it never occured to me that there might be an actual problem until she started asking to get her eyes checked. I get terrible brain fog too.

VydorScope Proficient
VydorScope
Posted
Thanks Vincent,

I did try 'googling' dyslexia and celiac but didn't find anthing much. I am feeling a bit guilty about her as I have been nagging her to read and knew she hated it but it never occured to me that there might be an actual problem until she started asking to get her eyes checked. I get terrible brain fog too.

Learning to read/write with dyslexia is a challange, but doable. My posts here are not any where near perfect, but they are legible. :) Teaching childern to deal with dyslexia is fairly well known at this stage, and most schools have ppl that can do it. It is important that you get on this right away, the younger she when she learns to "cope" the eaiser it will be. I would assume it was a permant part of her and not realted to celiac disease and hope that I was wrong if I was you. Only time will tell for sure... Thats just my suggestion.

ianm Apprentice
ianm
Posted

My son hates to read and write but he runs circles around everyone in math. He is also very mechanically oriented and very hands-on. I don't make a big deal about it because that is how engineers are and he is probably doomed to become one. :lol: All of the men on my side of the family are engineers. Every engineer I know can barely read, write, speak or spell. It is probably just the way the brain is hard-wired to work.

Guest tracey and emma
Guest tracey and emma
Posted

hi i have dyslexica to. they are questioning if have coeliacs as well but i am waiting to see if my daughter is confirmed first. Before i go for tests.

but dyslexica is not a problem for me. apart from spelling!!!!( i know it is dreadful!) and these days it is more recognised than it was when i was growing up. they just told my family i was lazy! but now at 31yrs i have re-learnt and am now very succsesful in everything i do. so for a child growing up with this it really is not a problem as long as it is recognised. and to be truthfull i have no idear what it is like not to be dyslixic (and i know i spell the name of it wrong!!) take care tracey

DonnaD Apprentice
DonnaD
Posted
  • Author

Thanks everyone, I will post the results once I have had her tested.

She is very creative and has always wanted to take everything to bits, perhaps she will be an engineer!

Donna

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