Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dyslexic? Daughter With Reading Problems

DonnaD

Recommended Posts

DonnaD Apprentice
DonnaD
Posted

Does anyone else have a problem with their child's reading?

My 11yo celiac disease daughter is very bright but hates reading and her spelling is really terrible. Her verbal skills and art are very advanced, she is very good at science.

This all the more noticable as we are a family of bookworms! Just about the only book she actually read to the end was the first Harry Potter on holiday this year it took her all week, my other daughter read it in 2 days. She never reads for pleasure.

She does have Brown's syndrome, also known as superior oblique tendon sheath syndrome, one eye does not move up as far as the other and this causes double vision when looking up, not down. At a recent optitions check it had got much better and was not very noticable. She has been complaining that when she reads that the words get blurry and she has to shut and open her eyes and keep re-focusing. This has not improved being 99.9% gluten-free. Although she is much calmer and more focused and her concentration has really improved. The Optition could not find any other eye problems, she has 20/20 vision.

Could this have anything to do with Coeliac? I have 2 copies of HLA-DQB1*0501 which is linked to neuro problems so she would have this gene from me and a mystery one from her father who blood tested negative. I do think she inherited my spelling gene sadly! - I can't spell, and neither could my Dad.

I would really appreciate any input on this problem. It takes ages in the UK to get anything done about this sort of thing and we are moving to France soon so I really need to know what is going on and who to refer her to.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


VydorScope Proficient
VydorScope
Posted

If you list any sympton of any disorder and ask "can it be from Celiac" you are garenteed to get ppl to say YES. Wether or not its true I can not say.

I am Dyslexic, and I rececntly tested at a "early 5th grade level" for spelling and grammer (I am a 30yr college graduate), and I was just diagnosed with celiac disease this month. So is it connected or am I just the way I am ? Dunno for sure, dunno that there is any real signifignat quality/quanity research in the area of mental impact of celiac disease yet. There needs to be, becuase my own experence with myself and my son tells me there IS a mental impact of some kind. Hence the imfamous "brain fog" symptons.

DonnaD Apprentice
DonnaD
Posted
  • Author
If you list any sympton of any disorder and ask "can it be from Celiac" you are garenteed to get ppl to say YES. Wether or not its true I can not say.

I am Dyslexic, and I rececntly tested at a "early 5th grade level" for spelling and grammer (I am a 30yr college graduate), and I was just diagnosed with celiac disease this month. So is it connected or am I just the way I am ? Dunno for sure, dunno that there is any real signifignat quality/quanity research in the area of mental impact of celiac disease yet. There needs to be, becuase my own experence with myself and my son tells me there IS a mental impact of some kind. Hence the imfamous "brain fog" symptons.

Thanks Vincent,

I did try 'googling' dyslexia and celiac but didn't find anthing much. I am feeling a bit guilty about her as I have been nagging her to read and knew she hated it but it never occured to me that there might be an actual problem until she started asking to get her eyes checked. I get terrible brain fog too.

VydorScope Proficient
VydorScope
Posted
Thanks Vincent,

I did try 'googling' dyslexia and celiac but didn't find anthing much. I am feeling a bit guilty about her as I have been nagging her to read and knew she hated it but it never occured to me that there might be an actual problem until she started asking to get her eyes checked. I get terrible brain fog too.

Learning to read/write with dyslexia is a challange, but doable. My posts here are not any where near perfect, but they are legible. :) Teaching childern to deal with dyslexia is fairly well known at this stage, and most schools have ppl that can do it. It is important that you get on this right away, the younger she when she learns to "cope" the eaiser it will be. I would assume it was a permant part of her and not realted to celiac disease and hope that I was wrong if I was you. Only time will tell for sure... Thats just my suggestion.

ianm Apprentice
ianm
Posted

My son hates to read and write but he runs circles around everyone in math. He is also very mechanically oriented and very hands-on. I don't make a big deal about it because that is how engineers are and he is probably doomed to become one. :lol: All of the men on my side of the family are engineers. Every engineer I know can barely read, write, speak or spell. It is probably just the way the brain is hard-wired to work.

Guest tracey and emma
Guest tracey and emma
Posted

hi i have dyslexica to. they are questioning if have coeliacs as well but i am waiting to see if my daughter is confirmed first. Before i go for tests.

but dyslexica is not a problem for me. apart from spelling!!!!( i know it is dreadful!) and these days it is more recognised than it was when i was growing up. they just told my family i was lazy! but now at 31yrs i have re-learnt and am now very succsesful in everything i do. so for a child growing up with this it really is not a problem as long as it is recognised. and to be truthfull i have no idear what it is like not to be dyslixic (and i know i spell the name of it wrong!!) take care tracey

DonnaD Apprentice
DonnaD
Posted
  • Author

Thanks everyone, I will post the results once I have had her tested.

She is very creative and has always wanted to take everything to bits, perhaps she will be an engineer!

Donna

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. lizzie42
      - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Son's legs shaking

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc. Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food....
    2. Scott Adams
      - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
    3. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Son's legs shaking

      @lizzie42, You're being a good mom, seeking answers for your son. Cheers! Subclinical thiamine deficiency commonly occurs with anemia. An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal. Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps...
    4. Scott Adams
      - Scott Adams replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Bob red mill gluten free oats

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this...
    5. knitty kitty
      - knitty kitty replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease. Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease. Though having the genes for Celiac...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,869
    • Most Online (within 30 mins)
      7,748
    MaryannHall
    Newest Member
    MaryannHall
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      Anti-endomysial Antibody (EMA) Testing

      By Scott Adams · Posted

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      @lizzie42, You're being a good mom, seeking answers for your son.  Cheers! Subclinical thiamine deficiency commonly occurs with anemia.  An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal.   Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps, as well as aggression and irritability, confusion, mood swings and behavior changes.  Thiamine is essential to the production of neurotransmitters like serotonin and dopamine which keep us calm and rational.   @Jsingh, histamine intolerance is also a symptom of Thiamine deficiency.  Thiamine is needed to prevent mast cells from releasing histamine at the slightest provocation as is seen in histamine intolerance.  Thiamine and the other B vitamins and Vitamin C are needed to clear histamine from the body.  Without sufficient thiamine and other B vitamins to clear it, the histamine builds up.  High histamine levels can change behavior, too.  High histamine levels are found in the brains of patients with schizophrenia.  Thiamine deficiency can also cause extreme hunger or conversely anorexia.   High carbohydrate meals can precipitate thiamine deficiency because additional thiamine is required to process carbohydrates for the body to use as fuel.  The more carbohydrates one eats daily, the more one needs additional thiamine above the RDA.  Thiamine is water soluble, safe and nontoxic even in high doses. Keep in mind that gluten-free processed foods like cookies and such are not required to be fortified and enriched with vitamins and minerals like their gluten containing counterparts are.  Limit processed gluten-free foods.  They are often full of empty calories and unhealthy saturated fats and additives, and are high in histamine or histamine release triggers.  It's time you bought your own vitamins to supplement what is not being absorbed due to malabsorption of Celiac disease.  Benfotiamine is a form of Thiamine that has been shown to improve intestinal health as well as brain function. Do talk to your doctors and dieticians about supplementing with the essential vitamins and minerals while your children are growing up gluten free.  Serve nutritionally dense foods.  Meats and liver are great sources of B vitamins and minerals. Hope this helps!  Keep us posted on your progress!
    • Scott Adams
      Bob red mill gluten free oats

      By Scott Adams · Posted

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      High TTG-IgG and Normal TTG-IgA

      By knitty kitty · Posted

      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease.   Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease.  Though having the genes for Celiac is not diagnostic in and of itself, taken with the antibody tests, the anemia and your reaction to gluten, it may be a confirmation you have Celiac disease.   Do discuss Gastrointestinal Beriberi with your doctors.  In Celiac disease, Gastrointestinal Beriberi is frequently overlooked by doctors.  The digestive system can be affected by localized Thiamine deficiency which causes symptoms consistent with yours.  Correction of nutritional deficiencies quickly is beneficial.  Benfotiamine, a form of thiamine, helps improve intestinal health.  All eight B vitamins, including Thiamine (Benfotiamine), should be supplemented because they all work together.   The B vitamins are needed in addition to iron to correct anemia.   Hope this helps!  Keep us posted on your progress!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.