Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Results help ? 7 months in


healthysquirrel

Recommended Posts

healthysquirrel Enthusiast

Hey there !

hope all is well for you.  I’ve been struggling with all sorts of tenidinitis and vertigo issues so I haven’t been on the computer much, but I would love any advice if possible. I have been on a very strict gluten free diet for 6 or 7 months. Still have low iron and just got results back. Would love your opinion. I prepare all food myself except once where I was likely glutened. I am seeing haematologist next week, but I was wondering what you think. Parasites have been eliminated as a possible factor. Have a great day everyone :)1DEDE162-1217-4F46-8959-55513B2D9609.webp.fa1a46d4b74795dc9d334ad020618bf3.webp


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

What are your iron results?  Was ferritin (iron stores) taken?  Are you actually anemic (low hemoglobin)? 

The results you posted are your Immunoglobulins.  Looks like your IgE is high, but then it is Spring and allergy season is supposed to be pretty bad this year (at least in the US).  What riggers your allergies (e.g. cats, horses, mold, etc.)?

Have other autoimmune issues been ruled out that could cause tendinitis or vertigo?  

 

healthysquirrel Enthusiast

Hello Cyclinglady, 

My ferritin is at 28 and hemoglobin normal. Honestly 28 is super high for me, but maybe I feel the symptoms more, I used to live on adrenaline (former workaholic).

I have no thyroid issues, but am on my 2nd year of menopause. Getting a urine test, a blood test and a blood smear tomorrow. I live in Switzerland, but it is spring here too.

Cats, pollen, birch trees, perfumes, detergents etc trigger me. oh and apples, celery, soy etc.

At this point, I feel like I am allergic to myself

I can't thank you enough for your feedback. Do you have any other ideas of what I should be tested for?

BTW I do have vertigo right now, but haven't had a seizure since december. (had about 4, but hadn't had any 10 years prior or since, so at least that is cool)

cyclinglady Grand Master

I do not have any ideas except to research other autoimmune disorders.  Once you have one,  you can develop more AI issues.  Any possibility of drug side effects?  For example the FDA has a black box warning in a class of antibiotics called fluoroquinilines (e.g. Cipro by Bayer).  These can cause tendon issues. 

Here is a list of autoimmune disorders.  Not all are here, but it is a start.  

https://www.aarda.org/diseaselist/

Ones associated with vertigo:

https://www.hindawi.com/journals/jir/2018/5072582/

healthysquirrel Enthusiast

thanks very much Cyclinglady, these links are great! I take no drugs, but will need to take iron pills again. I will definitely take a good look at my supplements again. As you know they are highly processed no matter how "natural".

I am taking less supplements and eating really well, focusing on whole foods. I

Unfortunately, am feeling extremely anxious and down, so it is possible that it is making me dizzy.

I might start to get treatment for that, but want to hold off and try the natural route. It is just that it is becoming pretty unmanageable.

Thanks for your support and have a nice evening.

knitty kitty Grand Master

Healthysquirrel, 

Please have your doctor check your Vitamin D level!  

Vitamin D deficiency is related to vertigo

https://www.ncbi.nlm.nih.gov/pubmed/27386060

Vitamin D can help with high IgE

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5263170/

Low vitamin D and low ferritin are tied

https://www.ncbi.nlm.nih.gov/pubmed/29385099

Dry eye problems including blepharitis can be helped with vitamin d and vitamin a

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4726745/

And chronic pain can be helped by vitamin D

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3319727/

Vitamin D is needed for repair of plantar fasciitis

I used to suffer from all these things, too.  I was found to have terribly deficient vitamin D level.  I've supplemented and keep my vitamin D level above 70 nmol/l.  Vitamin D is a fat based vitamin which may not be absorbed properly by people with Celiac Disease.   

Hope this helps!

 

healthysquirrel Enthusiast

Dear @knitty kitty, 

thanks so much for your response, it answers lots of old questions I had when I did have a deficiency and I will also send this to my husband. It is so strange that I am no longer vitamin D deficient, but still have many of these issues, I guess it will take time. My vertigo has gotten so out of hand that I went to the doctor, she will send me to an ORL because it is likely a crystal. I tried to do the maneuver myself, but it didn't work. I guess I will continue going in the sun at least 10 minutes a day and taking my supplements :) thanks for all the links too, very helpful!

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



healthysquirrel Enthusiast

My vertigo completely went away, YEAAAAAAAAAH!

I really wish i were certain about why so I could help others. I did the epley maneuver again. I wasn't convinced that I did it right the first time. then it went away a few days later, so it really must have been a crystal. My vertigo was to the point where i had to hold on to things like desks and tables just to secure myself. Hope it is gone for good :) 

 

icelandgirl Proficient

Hi healthysquirrel,

I had a terrible bout of vertigo 2 years ago while on vacation.  I woke up to my world spinning, had to hold on to things to walk and was throwing up.  Luckily I remembered my mom having gone through it and called her.  She recommended the Epley.  My husband googled it and helped me through it.  It got rid of the vertigo and I haven't had it since, but it was awful.  It took a few days to feel completely normal again.  

It does sound like you had that too and have it taken care of...so glad you are feeling better!

healthysquirrel Enthusiast

thanks icelandgirl. it is quite dramatic isn't it? I admit that me and my friends were laughing quite a bit because it was so strange to be sitting there talking then feeling like I was falling, for me the spells didn't last long, but were super frequent.

I really can't imagine having it on vacation! ayyyy. glad you had the answers quickly!

PS are you living in iceland? My Amma was from there. 

icelandgirl Proficient

It's so dramatic!  I never want that to happen again!

I was born in Iceland and moved to the US when I was 8, but a lot of my family is still there.  Where in Iceland was your Amma from?

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Helen1984
    Newest Member
    Helen1984
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      so do you have celiac or not? 🤔 why are your vision issues undiagnosed? 😢 what does your ophthalmologist say?  do you have a serious vit A deficiency? what do you take for it? how long have you had celiac disease and how long did  it take to get a diagnosis?   if you are legally blind there are adaptive devices that will help you. I have vision difficulties as well but did not qualify (at least not yet)   do you have a vit A deficiency? why are you undiagnosed? what does your ophthalmologist say? I have a retinal specialist and he tells me my eye condition can not be fixed- until/unless it gets to the point of where surgery is safer since the surgery can leave me actually blind... so you want to wait til it gets really bad 🤪     I hope you find what works for you.    PS   the medication I started at the same time as the gluten challenge is obvious from the condition it's trying to treat. you can google it 😉 it is not an for any auto immune condition.   
    • knitty kitty
      @catnapt,  I apologize.  Obviously I've confused you with someone else.  I have vision problems due to undiagnosed Celiac complications.  Being legally blind, y'all look the same from here.   You still have not said which new medication you started taking.  Parathyroid disorders can affect antibody production.  Bone Loss Correlated with Parathyroid Hormone Levels in Adult Celiac Patients https://pubmed.ncbi.nlm.nih.gov/36619734/ Effect of vitamin B1 supplementation on bone turnover markers in adults: an exploratory single-arm pilot study https://pmc.ncbi.nlm.nih.gov/articles/PMC12075007/
    • catnapt
      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
    • catnapt
      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.