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Results help ? 7 months in

healthysquirrel
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healthysquirrel Enthusiast
healthysquirrel
Posted

Hey there !

hope all is well for you.  I’ve been struggling with all sorts of tenidinitis and vertigo issues so I haven’t been on the computer much, but I would love any advice if possible. I have been on a very strict gluten free diet for 6 or 7 months. Still have low iron and just got results back. Would love your opinion. I prepare all food myself except once where I was likely glutened. I am seeing haematologist next week, but I was wondering what you think. Parasites have been eliminated as a possible factor. Have a great day everyone :)1DEDE162-1217-4F46-8959-55513B2D9609.webp.fa1a46d4b74795dc9d334ad020618bf3.webp

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cyclinglady Grand Master
cyclinglady
Posted

What are your iron results?  Was ferritin (iron stores) taken?  Are you actually anemic (low hemoglobin)? 

The results you posted are your Immunoglobulins.  Looks like your IgE is high, but then it is Spring and allergy season is supposed to be pretty bad this year (at least in the US).  What riggers your allergies (e.g. cats, horses, mold, etc.)?

Have other autoimmune issues been ruled out that could cause tendinitis or vertigo?  

 

healthysquirrel Enthusiast
healthysquirrel
Posted
  • Author

Hello Cyclinglady, 

My ferritin is at 28 and hemoglobin normal. Honestly 28 is super high for me, but maybe I feel the symptoms more, I used to live on adrenaline (former workaholic).

I have no thyroid issues, but am on my 2nd year of menopause. Getting a urine test, a blood test and a blood smear tomorrow. I live in Switzerland, but it is spring here too.

Cats, pollen, birch trees, perfumes, detergents etc trigger me. oh and apples, celery, soy etc.

At this point, I feel like I am allergic to myself

I can't thank you enough for your feedback. Do you have any other ideas of what I should be tested for?

BTW I do have vertigo right now, but haven't had a seizure since december. (had about 4, but hadn't had any 10 years prior or since, so at least that is cool)

cyclinglady Grand Master
cyclinglady
Posted

I do not have any ideas except to research other autoimmune disorders.  Once you have one,  you can develop more AI issues.  Any possibility of drug side effects?  For example the FDA has a black box warning in a class of antibiotics called fluoroquinilines (e.g. Cipro by Bayer).  These can cause tendon issues. 

Here is a list of autoimmune disorders.  Not all are here, but it is a start.  

https://www.aarda.org/diseaselist/

Ones associated with vertigo:

https://www.hindawi.com/journals/jir/2018/5072582/

healthysquirrel Enthusiast
healthysquirrel
Posted
  • Author

thanks very much Cyclinglady, these links are great! I take no drugs, but will need to take iron pills again. I will definitely take a good look at my supplements again. As you know they are highly processed no matter how "natural".

I am taking less supplements and eating really well, focusing on whole foods. I

Unfortunately, am feeling extremely anxious and down, so it is possible that it is making me dizzy.

I might start to get treatment for that, but want to hold off and try the natural route. It is just that it is becoming pretty unmanageable.

Thanks for your support and have a nice evening.

knitty kitty Grand Master
knitty kitty
Posted

Healthysquirrel, 

Please have your doctor check your Vitamin D level!  

Vitamin D deficiency is related to vertigo

https://www.ncbi.nlm.nih.gov/pubmed/27386060

Vitamin D can help with high IgE

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5263170/

Low vitamin D and low ferritin are tied

https://www.ncbi.nlm.nih.gov/pubmed/29385099

Dry eye problems including blepharitis can be helped with vitamin d and vitamin a

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4726745/

And chronic pain can be helped by vitamin D

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3319727/

Vitamin D is needed for repair of plantar fasciitis

I used to suffer from all these things, too.  I was found to have terribly deficient vitamin D level.  I've supplemented and keep my vitamin D level above 70 nmol/l.  Vitamin D is a fat based vitamin which may not be absorbed properly by people with Celiac Disease.   

Hope this helps!

 

healthysquirrel Enthusiast
healthysquirrel
Posted
  • Author

Dear @knitty kitty, 

thanks so much for your response, it answers lots of old questions I had when I did have a deficiency and I will also send this to my husband. It is so strange that I am no longer vitamin D deficient, but still have many of these issues, I guess it will take time. My vertigo has gotten so out of hand that I went to the doctor, she will send me to an ORL because it is likely a crystal. I tried to do the maneuver myself, but it didn't work. I guess I will continue going in the sun at least 10 minutes a day and taking my supplements :) thanks for all the links too, very helpful!

 

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healthysquirrel Enthusiast
healthysquirrel
Posted
  • Author

My vertigo completely went away, YEAAAAAAAAAH!

I really wish i were certain about why so I could help others. I did the epley maneuver again. I wasn't convinced that I did it right the first time. then it went away a few days later, so it really must have been a crystal. My vertigo was to the point where i had to hold on to things like desks and tables just to secure myself. Hope it is gone for good :) 

 

icelandgirl Proficient
icelandgirl
Posted

Hi healthysquirrel,

I had a terrible bout of vertigo 2 years ago while on vacation.  I woke up to my world spinning, had to hold on to things to walk and was throwing up.  Luckily I remembered my mom having gone through it and called her.  She recommended the Epley.  My husband googled it and helped me through it.  It got rid of the vertigo and I haven't had it since, but it was awful.  It took a few days to feel completely normal again.  

It does sound like you had that too and have it taken care of...so glad you are feeling better!

healthysquirrel Enthusiast
healthysquirrel
Posted
  • Author

thanks icelandgirl. it is quite dramatic isn't it? I admit that me and my friends were laughing quite a bit because it was so strange to be sitting there talking then feeling like I was falling, for me the spells didn't last long, but were super frequent.

I really can't imagine having it on vacation! ayyyy. glad you had the answers quickly!

PS are you living in iceland? My Amma was from there. 

icelandgirl Proficient
icelandgirl
Posted

It's so dramatic!  I never want that to happen again!

I was born in Iceland and moved to the US when I was 8, but a lot of my family is still there.  Where in Iceland was your Amma from?

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      iron digestibility

      By knitty kitty · Posted

      @glucel,  There's a strong correlation between thiamine deficiency, hypoxia, and insomnia.  Thiamine is needed to help red blood cells carry oxygen.  In thiamine deficiency, hypoxia (lack of oxygen in tissues) occurs, and this can result in insomnia. Hypoxia causes systemic inflammation, increases inflammatory markers, and is associated with cardiovascular events.  Curiously, thiamine deficiency is correlated with excessive daytime sleepiness and oversleeping.   I found a combination of Tryptophan, Pyridoxine B 6, magnesium, and L-theanine works very well for inducing sleep.  Sometimes, I add Passion Flower Extract and/or Sweet Melissa.  There's no side effects the next morning with Passion Flower, it just induces sleepiness.  Sweet Melissa is groovy, and has anti-inflammatory effects on the digestive system.   I prefer to take 250 mg Benfotiamine and 100 mg Thiamine TTFD in the mornings and another dose of Benfotiamine at lunch.  I try not to take any thiamine after four p.m. because it keeps my brain so energized and wanting to think... Oh, I do take a combination of another form of thiamine (sulbutiamine), Pyridoxine and Cobalamine for a pain reliever sometimes, but I can sleep after taking that.  But thiamine does help regulate circadian rhythm.   Make sure you're getting Omega Three fats! They'll help you satisfy that late night carb craving with fewer carbs.  Flaxseed oil, olive oil, sunflower seed oil.  Nuts and nut butters, like walnuts and cashews, are good, too, if you can tolerate them.    Try taking the 100mg thiamine HCl before your aerobics and see if there's a difference.  Sweet dreams! References: Network Pharmacology Analysis of the Potential Pharmacological Mechanism of a Sleep Cocktail. ......(Skip to Section Four) https://pmc.ncbi.nlm.nih.gov/articles/PMC11201840/ Effects of Melissa officinalis Phytosome on Sleep Quality: Results of a Prospective, Double-Blind, Placebo-Controlled, and Cross-Over Study https://pubmed.ncbi.nlm.nih.gov/39683592/
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      Thanks to everybody for your help. I reread the dr's notes from the biopsy procedure and it seems I had worse than atrofied villi. It was termed flattened mucosa. So while iron ferratin levels are normal my bet is, as kitty alluded to, iron not getting into cells. I have dr appointment next mo but don't hold out a lot of hope, There is strong correlation of low red blood cells and insomnia so at least I finally solved that one after few yrs of being mislead. I intend to take stop taking 100 mg b1 at noon time and start 150 mg benfotiamin. I may or may not add the the 100 mg b1evening meal. BTW, last night had 1/3 lb beef. potato then 2 bowls cereal and an apple later in the eve. I generally do my areobics before supper so maybe that contributes to the hunger.  
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