Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Zelnorm

danikali

By danikali
in Coping with Celiac Disease

Recommended Posts

jenvan Collaborator
jenvan
Posted

Deb--

Something I'll mention again too... Metamucil and Citricel never helped me actually. It is only the real, natural psyllium I've had success with...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


loraleena Contributor
loraleena
Posted
Hi everyone! How are your holidays going?

I haven't written in a long time! Anyway, I reccently went to the famous Dr. Green in New York City for help with everything because I was having way too many problems to cope on my own and I was sick of the doctors that I've had not helping.

Anyway, he gave me zelnorm to help keep me regular. I've been taking it in moderate for the past few days now, but I'm very skeptical on medicine like this. Especially since this drug, specifically, is so new. Anyway, I'm sure some or most of you have come to this crossroad, so I have some questions:

1. Have you had any side effects on Zelnorm?

2. Do you know if you depend on this drug to go the bathroom, does it make it worse when you go off of the pill?

3. Is it like every other laxitive that eventually, you need to "up" the dose?

4. If you haven't taken it, and had the option to, why didn't you?

5. If you do take it, do you think it helps? Are there any bad aspects of it that you have noticed?

6. Anything else you might want to add about this drug?

Thanks guys! Even though I'm going to the suposed expert of Celiac Disease, I know I can always depend on this forum to give me honest, helpful and "real" answers, more than any doctor.

I would be concerned about taking presription drugs. Western medicine is only concerned about covering up symptoms, not curing anything. These drugs usually have detrimental effects on other organ symstems. You may have other things going on such as candida overgrowth , parasites ect. You should read Natural Cures They Don't Want You to Know About.

julie5914 Contributor
julie5914
Posted

I can tell you what is BAD to eat. :D I have been in the emergency room for impaction. Great fun. So, if you are gluten free, you probably have no prob with this, but processed foods are killer. I used to eat frozen dinners all the time. That was when things were bad. Cheese was already mentioned - I think other dairy can be a culprit sometimes too. Carbs that aren't whole grain are really the bad guys. Pain meds are bad. I think Jen already listed everything imaginable that can help. :P

jenvan Collaborator
jenvan
Posted

Julie--impaction--wow, that is bad! glad you're okay now!

tiredofdoctors Enthusiast
tiredofdoctors
Posted

Not to be grose, but I feel that I am the queen of constipation. :P I take Zelnorm 6 mg per day, colace (2 in pm at bedtime), and eat about 12 prunes each day, not to mention salads, fresh fruits and veggies and adding flax seed to everything I eat. Still, I only "produce" about once every 10 days. Because I have had IBS in the past -- but it was the don't go 3 days, then diarrhea for 3 days type -- then I told the GI doc who did my bloodtesting and biopsy about the change (it was at 6 months when I told him) (BTW: I'm celiac negative, but have gluten ataxia) -- he gave me the Zelnorm. I thought I had not noticed a difference and was complaining about that fact to my husband. Then, I ran out of my prescription and didn't refill it. I found that it did make a small difference (2-3 days less). The neuro doc is afraid it is because of decreased peristalsis in the intestines due to the neurological damage -- still have to find out about that. Have tried Metamucil, Citrucel and psyllium -- mostly made me bloated with gas! -- but still haven't found a good "remedy". Still going to stick with the Zelnorm, though -- something is better than nothing.

jenvan Collaborator
jenvan
Posted

tiredofdocs-

i am sorry to hear about all that... i've posted most of my ideas :) i will say i have a new psyllium that i really like--no D or gas etc....and the ones i had before did that...it seems to be 'gentle.' so you are 100% gluten-free? have you looked at other foods like dairy as a culprit? so you are going to follow-up on neuro damage?

tiredofdoctors Enthusiast
tiredofdoctors
Posted

Hi Jen! Haven't looked at milk as the culprit. Haven't had a milk allergy before, maybe need to explore it with food challenges, then testing. Thanks for the idea. I am a "dairy gal." As far as the neuro aspects, it's being explored ad nauseum, quite frankly. I'm really getting tired of all the tests, but still really need ideas -- what's a girl to do, huh? :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jenvan Collaborator
jenvan
Posted

Cking out dairy is worth a try...it def gives me C...and there are many others who get the same effects here.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,776
    • Most Online (within 30 mins)
      7,748
    peskywabbit
    Newest Member
    peskywabbit
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Celiac attack confusion and anxiety

      By Colleen H · Posted

      Hi all ! Can a celiac attack be so intense that it causes your entire body to work in reverse? Meaning really bad pain,  neuropathy and muscle,  jaw pain,  the stomach issues , Horrible anxiety and confusion??  I had a Tums and you would think I ate poison. My jaw and stomach did not like it . Not the norm for me. Things that are simple are just out of control. Anyone ever have this happen??  I'm trying to figure out what I ate or did to bring on a celiac like attack. I had an idea before but yesterday I didn't have any gluten unless it was in a medication ?! Any positive suggestions ??  Thank you 
    • Scott Adams
      Gluten free stuff

      By Scott Adams · Posted

      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • trents
      Gluten free stuff

      By trents · Posted

      Tammy, in the food industry, "gluten free" doesn't mean the same thing as "no gluten". As Scott explained, the FDA (Food and Drug Administration) allows food companies to use the "gluten-free" label as long as the product does not contain more than 20 ppm (parts per million) of gluten. This number is based on studies the FDA did years ago to determine the reaction threshold for those with celiac disease. And the 20 ppm figure works for the majority of celiacs. There are those who are more sensitive, however, who still react to that amount. There is another, stricter standard known as "Certified Gluten Free" which was developed by a third party organization known as GFCO which requires not more than 10 ppm of gluten. So, when you see "GFCO" or "Certified Gluten Free" labels on food items you know they are manufactured with a stricter standard concerning gluten content. Having said all that, even though you may read the disclaimer on a food item that says the spices may contain wheat, barley or rye (the gluten grains), you should be able to trust that the amount of gluten the spices may contain is so small it allows the total product to meet the requirements of gluten free or certified gluten free labeling. I hope this helps.
    • Tammy Pedler
      Gluten free stuff

      By Tammy Pedler · Posted

      As soon as I see gluten free I read the labels. I always find stuff that I cannot have on the products them selfs. Like spices, when the labels says  everything listed and then after like say garlic salt then the next thing is spices. When it says that that can contain wheat and other things I can’t have.. 
    • Scott Adams
      Do some people with Celiacs develop hypoglycemia?

      By Scott Adams · Posted

      While hypoglycemia isn't a direct, classic symptom of celiac disease, it's something that some individuals with well-managed celiac disease report, and there may be a few plausible explanations for why the two could be connected. The most common theory involves continued damage to the gut lining or nutrient deficiencies (like chromium or magnesium) that can impair the body's ability to regulate blood sugar effectively, even after gluten is removed. Another possibility is delayed stomach emptying (gastroparesis) or issues with the hormones that manage blood sugar release, like glucagon. Since your doctors are puzzled, it may be worth discussing these specific mechanisms with a gastroenterologist or endocrinologist. You are certainly not alone in experiencing this puzzling complication, and it highlights how celiac disease can have long-term metabolic effects beyond the digestive tract.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.