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Antibodies High In 8 Yr Old - What Does It Mean?


kathy1

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kathy1 Contributor

Hi, I am new here. My husb was DX 2 weeks ago with Celiac (his mom has it too) and this board has been very valuable in educating me since I do the shopping and cooking in the family. Well, I took my 8 yr old son in for testing tuesday and the Dr called last night and said that his blood test came back "suspicious" and the antibodies were high. He will confir next week with the Gastroenterologist to see what he thinks. (This is the same Gastroenterologist that my mother in law and husband see). From your experiences with your own kids, do you have an opinion of what high antibodies mean?? Could it be a sign of something else?? He did not tell me what the actual #'s were. Does anyone know of the acceptable levels? My husband has no symptoms of celiac disease, but the Dr has recommends a gluten-free diet to prevent it. My son has no symptoms either, except he bulches frequently. I am really afraid the dr will call back with a positive diagnosis. Should I ask for further testing?

I appreciate any info you can send my way. THANKS!!


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    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
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