Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Testing For Other Intolerances


covsooze

Recommended Posts

covsooze Enthusiast

I've had positive blood tests and am waiting for the biopsy before going gluten-free. However, I suspect I've got problems with other foods. How do I know if they are intolerances or just because my stomach/guts are damaged by celiac disease?

I think I've got problems with at least dairy and rice. when my GI symptoms are at their worse, there are many more foods that I can't tolerate.

I don't know whether to start off with a very limited diet then reintroduce things one by one to test them or get ELISA tests. Any recommendations? TBH, I've had enough of trying to work out what foods are problems - I've had issues with IBS and gatritis as well as celiac disease - so I'm thinking ELISA tests would be easier. Would they help start me off on the right track?

Finally, when would be best to do this? Should I get tested now or wait until I've been gluten-free a while? I'd like to be able to eliminate as many problems as possible from the word go with my diet - is that just wishful thinking?! ;)

Sorry this is rather rambly - I'm a bit confused about all this and trying to get my head round my soon-to-change relationship with food.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jenvan Collaborator

One place to start if you are suspecting certain foods is to keep a food journal. I did that and found links to issues with new foods--dairy, soy etc. I had a food intol. test several months after being gluten-free...a host of foods came back--and ones I never could have caught with a food journal. Alot of people get testing thru york allergy (yorkallergyusa) or great plains labs. I used great plains because I could get a food intol test and my insurance covered part of it. Another help is to go simple as you start gluten-free, and add in foods slowly to look for issues. I can give you more specific info too if you like (in a hurry right now--have a meeting ; )

covsooze Enthusiast

Thanks Jen! I think I will 'go simple' and if you've got any further info that would be great.

My bit of good news is that I had a call from the GI's secretary yesterday to say they've got me a cancellation slot for my gastroscopy - I'm having it at 1.30pm today :o So I can go gluten-free this evening :D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to NCalvo822's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Newly Diagnosed

    2. - knitty kitty replied to Rebeccaj's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      symptoms.

    3. - Rebeccaj replied to Rebeccaj's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      symptoms.

    4. - knitty kitty replied to CeliacPI's topic in Related Issues & Disorders
      8

      Lymphocytic Colitis with Celiac

    5. - knitty kitty replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Finding gluten free ingredients


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,508
    • Most Online (within 30 mins)
      7,748

    Bringmesunshine
    Newest Member
    Bringmesunshine
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Hello, @NCalvo822, Blood tests for Celiac Disease test for antibodies our bodies make in response to gluten exposure.  These Tg IgA 2 antibodies mistakenly attack our own bodies, causing problems in organs and tissues other than just the digestive tract.  Joints can ache, thyroid problems or the pancreas can develop.  Ataxia is just one of over two hundred symptoms of Celiac Disease. Some people with Celiac Disease also make tTg IgA 6 antibodies in response to gluten exposure.  The tTg IgA 6 antibodies attack the brain, causing ataxia.  These tTg IgA 6 antibodies are also found in people with Parkinson's disease, though they may not have Celiac Disease.  First degree relatives (parents, siblings, children) of those diagnosed with Celiac should be tested as well.  Celiac is genetic.  Your mom and sister should be tested for Celiac, too!   Definitely a good idea to keep to a gluten free diet.  
    • knitty kitty
      @Rebeccaj,  When you smell toast or pasta cooking, that means that particles of that food are floating around in the air.  Airborne gluten can then be inhaled and swallowed, meaning the food particles get into your digestive tract.   If you're careful to avoid gluten and are still having symptoms, those symptoms could be caused by vitamin deficiencies.  
    • Rebeccaj
      ok thanks for your advice. But my question was what happens when someone you know in a house is cooking pasta or toast that's flour  Airbourne without eating.?
    • knitty kitty
      Do discuss this recent article with your doctors.  Thiamine Vitamin B 1 is important to intestinal health.  Thiamine deficiency can occur in Celiac Disease due to malabsorption.  Supplementing with a B Complex, Benfotiamine, and Vitamin D can help symptoms.   Thiamine deficiency aggravates experimental colitis in mice by promoting glycolytic reprogramming in macrophages https://pubmed.ncbi.nlm.nih.gov/39890689/#:~:text=Our mechanistic study revealed that,necessary to protect against colitis. "Conclusion and implications: Our study provides evidence linking thiamine deficiency with proinflammatory macrophage activation and colitis aggravation, suggesting that monitoring thiamine status and adjusting thiamine intake is necessary to protect against colitis."
    • knitty kitty
      Do keep in mind that most gluten free flours are not enriched nor fortified with vitamins and minerals like gluten containing flours are required to do.   Consuming a diet high in carbohydrates without sufficient B vitamins to digest and process them into energy can lead to High Calorie Malnutrition and weight gain. Deficiency symptoms of B vitamins resemble gastrointestinal symptoms when after eating gluten.  Gastrointestinal Beriberi is a form of Thiamine deficiency.   Do talk to your doctors about supplementing with essential nutrients while on the gluten free diet, especially if you're consuming processed foods.
×
×
  • Create New...