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- Aretaeus Cappadocia replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications9FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions
I am working on a response to this FDA request for comments on gluten. Part of it will be my suggestions, like yours, but a big part of it will be my collected stories of navigating products with ambiguous gluten disclosures, like your Lubriderm story. I plan to name the brands not to shame them but to give the regulators clear facts they can check and evaluate... -
- knitty kitty replied to Jmartes71's topic in Related Issues & Disorders3Keytones
@Jmartes71, Talk to your doctor and dietician about checking for nutritional deficiencies and supplementing with essential vitamins, minerals and Omega threes. Vitamins like Niacin B3, Thiamine B 1, Vitamin C, Vitamin D and Omega three fats are important to maintaining the protective layer of skin. Try incorporating Tallow balm (I use Ancient... -
- Aretaeus Cappadocia replied to Known1's topic in Introduce Yourself / Share Stuff7
Diagnosed Marsh stage 3C in January 2026
You may want to consider getting a food dehydrator for your motorcycle touring. I evaluated getting one but decided against it because my personal business case didn't justify the costs (I occasionally travel by car and food bulk is not as much of an issue). However, if I wanted to travel by motorcycle as often as you I probably would have gotten one. -
- knitty kitty replied to oceangirl's topic in Gluten-Free Foods, Products, Shopping & Medications18
Lubriderm-gluten-free?
Good morning, @Known1, When new to Celiac disease, It's extremely easy to blame all reactions on gluten contamination in products. Be aware that Celiac disease causes a state of hyper vigilance of our immune system. Our over stimulated immune system can react to chemicals in products and foods that normally are tolerable. Bananas contain... -
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By Aretaeus Cappadocia · Posted
I am working on a response to this FDA request for comments on gluten. Part of it will be my suggestions, like yours, but a big part of it will be my collected stories of navigating products with ambiguous gluten disclosures, like your Lubriderm story. I plan to name the brands not to shame them but to give the regulators clear facts they can check and evaluate. -
By knitty kitty · Posted
@Jmartes71, Talk to your doctor and dietician about checking for nutritional deficiencies and supplementing with essential vitamins, minerals and Omega threes. Vitamins like Niacin B3, Thiamine B 1, Vitamin C, Vitamin D and Omega three fats are important to maintaining the protective layer of skin. Try incorporating Tallow balm (I use Ancient Traditions Tallow Balm) to help nourish your skin's need for fats. Thiamine supplementation helps control SIBO bacteria and other bacterial or viral infections. Taking a combination of Thiamine B 1 with Cobalamine B 12 and Pyridoxine B6 helps alleviate pain. These vitamins together work as well as over the counter pain relievers. Taken with pain relievers, the analgesic effects are increased. I'm concerned about the ketones. Our bodies burn stored fat when we're stressed and when we're low in thiamine. Do talk to your doctor about whether you can start taking Thiamine and B vitamins again soon. Thiamine deficiency can be life threatening. A state of confusion is also indicative of a Thiamine deficiency. Tannins in black and green teas break down Thiamine making it unavailable to the body. Avoid drinking large amounts of teas with tannins. Try herbal teas like chamomile, peppermint or ginger teas instead. I like drinking mineral water. I hope you feel better soon. Keep us posted on your progress! -
By Aretaeus Cappadocia · Posted
You may want to consider getting a food dehydrator for your motorcycle touring. I evaluated getting one but decided against it because my personal business case didn't justify the costs (I occasionally travel by car and food bulk is not as much of an issue). However, if I wanted to travel by motorcycle as often as you I probably would have gotten one. -
By knitty kitty · Posted
Good morning, @Known1, When new to Celiac disease, It's extremely easy to blame all reactions on gluten contamination in products. Be aware that Celiac disease causes a state of hyper vigilance of our immune system. Our over stimulated immune system can react to chemicals in products and foods that normally are tolerable. Bananas contain natural rubber latex allergens. Many people, including me, react to bananas because of the latex allergens which can prompt a contact dermatitis reaction from handling the peels, or a more serious, possibly anaphylactic reaction if eaten. Because we can't be absolutely sure about ingredient purity, it's beneficial to use products without all those mystery ingredients. I use Vintage Traditions Tallow Balm. Tallow balm is made from rendered beef fat, used for thousands of years for moisturizing skin and naturally gluten free. You're familiar with how oil floats on water. Our skin on the outside acts as that protective oil layer which protects our water based insides. Tallow absorbs quickly and easily into the skin without leaving a greasy or waxy feel. Beef fat is more similar to our own fat, and so is more easily assimilated. Artificial moisturizers made with mineral oil and petrochemicals, and plant oil based moisturizers are not absorbed as well and can leave a greasy or waxy feel after applying. I have Dermatitis Herpetiformis, so keeping my skin healthy is important. Tallow Balm improves skin by delivering those helpful fats which are needed to build that protective layer. My blisters heal faster and with less scarring when I use Tallow Balm regularly. Interesting Reading: Crossreactivity between allergens in natural rubber latex and banana studied by immunoblot inhibition https://pubmed.ncbi.nlm.nih.gov/8729673/ Vintage Traditions https://www.vintagetradition.com/ -
I haven't been up to date with taking my vitamins these past few months since I've been dealing with blood work and things that don't want you to have vitamins for imaging and mri's , scans.Im getting confused so I'm just not taking it to not disrupt the tests.My skin has issues.Im dealing with burning sibo pain .Im being extremely sensitive at my age my tolerance level after menopause and glutenfree has been terrible. I was advised to drink lots of carbohydrates by pcp as well which I do drink lot's of water and several teas a day.Thankyou
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