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Symptoms ongoing

nataliet24
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nataliet24 Rookie
nataliet24
Posted

Is it worrying that I still don’t feel any better after being gluten free for nearly 7 months. Still have constant belly pain everyday and brain fog. Worrying I will have refractory coeliac I’m only 22 and had total villous atrophy 

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cyclinglady Grand Master
cyclinglady
Posted

What is your definition of being gluten free?  Do you eat out?  Eat processed foods?  Does anyone else prepare your food?  Do you live with gluten eaters?  Do you have safe kitchen practices?  

Ennis and I addressed this in a previous post.  We could really use some input from you.  As it stands now, we can only guess that you are not diet compliant.  

Have you been back to the doctors for follow-up testing?  Have you seen a dietician?  

I really doubt you have refractory.  It is so rare!  But only your doctor can verify this.  

 

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    • RMJ
      Celiac disease symptoms

      By RMJ · Posted

      I agree with @trents, they should have run a total IgA.  What was the normal range for the DGP IgA test?  Different labs use different units thus have different normal ranges.
    • Churro
      Celiac disease symptoms

      By Churro · Posted

      Thanks for your assistance. 
    • trents
      Celiac disease symptoms

      By trents · Posted

      Get your total IGA checked to make sure your celiac antibody test scores are trustworthy.   
    • Churro
      Celiac disease symptoms

      By Churro · Posted

      I do eat 4 slices of wheat bread with almond butter. Yes it was a reference to my iron consumption. 
    • trents
      Celiac disease symptoms

      By trents · Posted

      To give you a frame of reference for pretesting gluten consumption necessary to ensure valid antibody testing, here is the current recommendation for those who have been on a gluten free diet: The daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for at least two weeks. Not sure why you mentioned eggs and chicken. They are not sources of gluten. Was that in reference to dietary iron consumption?
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