Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Journey

EmilyLMT

By EmilyLMT
in Coping with Celiac Disease

Recommended Posts

EmilyLMT Rookie
EmilyLMT
Posted

Hello Everyone!

I've been watching the entries these past couple months and really getting a kick out of the responses. My favorite today was, "annoying comments." HAHA! Been there before...sigh!

I thought I would go ahead and make my first entry and become of part of this wonderful support group!

My history starts back when I was a wee little girl belching beyond belief and even embarressing my 3 brothers because of my skills. Aparently they weren't skills but a disorder that I just discovered back around June of 2005. Everything started to get worse, very worse. So, I made an appointment with a holistic doctor to mainly find out why my mentrual cycles were so crazy, and we ended up talking most of the time about all of the digestive disorders I was going through (I was thinking they were just normal). She suggested a book "Eat Right for Your Type" by Peter D'Adamo. So immediately I got the book, and followed the basic steps of 'wheat is your enemy!' and WALAH! Cured! I was amazed after about 24 hours of not eating wheat, bread, pasta etc. I was feeling like a new woman and tickled pink about my new discovery.

I did go through a slight depression and some denial after realizing gluten was in everything. Then I just got tired of feeling so ill and told myself it was time to be true to myself and to my poor abused intestines. Needless to say the menstrual cycles regulated too as a part of my lifestyle change.

My favorite bread I found is Millet Bread by Deland Bakery and I buy it at Health Foods Unlimited here in Dayton, Ohio. You can also buy it online, and their bagels are scrumptious! I also read a book called "Dangerous Grains" by James Braly which REALLY helped my understand the actual physiological effects of what's really going on in our bodies when we eat wheat or gluten. I'm the type of person that wants to know how everything works, even right down to the cellular level. Another book I really enjoy is "Gluten Free Groumet" by Bette Hagman. Every recipe I've tried in there has been fabulous and delicious. She really has discovered ways to make gluten-free bread very moist.

So right now I'm just living my life reading labels and enjoying the act of cooking gluten free meals that my husband will enjoy also. He's been such a blessing in my life and so supportive! Don't get me wrong, I have my bad days of depression and feeling ill if I accidentially ingest it, but I'm trying to maintain the positive attitidue, I guess that's the only way to survive!

But I wanted to thank everyone for their humor and good insight to this new lifestyle we've all been a part of!!

Emily LMT

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


hez Enthusiast
hez
Posted

Welcome to the board! I have found this board to be a life saver! It truly is a great group of people.

Hez

Guest Rad
Guest Rad
Posted

Hi Emily . . .

WELCOME to the Board ! ! ! I just joined myself three days ago, and have gotten a real education from this Board. These are intelligent, funny (I'm Gellin') kind of people who are taking Celiac seriously. Thank you for your book recommendations. I've made a list of product recommendations from fellow Board members, and just yesterday picked up some new grocery items I would have never looked for before.

Dianna

Becky6 Enthusiast
Becky6
Posted

Welcome!! This board has been so helpful to me!

Rachel--24 Collaborator
Rachel--24
Posted

Emily,

Welcome to the board :D

Good for you for listening to your body, educating yourself and having a positive attitude about the whole thing. ;)

Jenn2005 Contributor
Jenn2005
Posted

Hi Emily Welcome to the board. It has been a real life saver for me and my husband. There is a lot of helpful information here and a lot of super caring and supportive people to help with your questions and concerns on your "journey". Good Luck.

Jennifer

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,022
    • Most Online (within 30 mins)
      7,748
    Pesto
    Newest Member
    Pesto
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Scott Adams · Posted

      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      Fighting for a name

      By Scott Adams · Posted

      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Celiac getting dentures

      By NanCel · Posted

      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.