Celiac.com Sponsor (A1):

Celiac.com Sponsor (A1-m):

  • You've found your Celiac Tribe! Join our like-minded, private community and share your story, get encouragement and connect with others.


    • Sign In
    • Sign Up


This topic is now archived and is closed to further replies.


Gluten Intolerence And Thyroid Problems

Recommended Posts

Have you done a stool test for parasitic, bacterial, or fungal infections? I suggest you do so and i'll refer you to a doc in your area if you wish. What about dairy and soy products? Are you still using those? Soy can mess up the thyroid as well. It has been scientifically proven that if you are gluten intolerant you most certainly have infections. (Giardia, cryptosporidium, c. difficile, blastocystis hominis, h. pylori, etc..) It's very common in people with celiac, so i would suggest you get tested for these to rule them out..

i'd definitely be interested in talking to someone about a more holistic approach to my health. so far i've been almost completely on my own. if you have any suggestions about where to go, i'd love to hear them.



Share this post

Link to post
Share on other sites
Soy can mess up the thyroid

Hi Thomas

I use a lot of soy milk, yoghurt etc and have been cutting it out this week

I bought Julia Ross 'the Mood Cure', as you reccomended in my Noisy Knee post. I have been reading the section on thyroid problems and realised that I have lots of the symptoms (especially cold hands and feet). Fibromyalgia also has many similar ones, brain fog, lack of concentration, weight gain etc. So I decided to check what my TSH level was on my tests last month. The doctor had said it was OK.

They faxed it through to me Well, its 2.96mu/L - Julia Ross quotes studies that say that in symptomatic people especailly woman over 40 that is too high.

The reference range is0 .3-3.0 as 'normal' but symptoms go when TSH is bought down to 1.5.- 2.0 indicating that the range is incorrect. I found the following and thought it might be of interest to people here:

http://thyroid.about.com/od/thyroiddrugstr.../l/blderryb.htm (I cut it a bit)

Derry: The consensus of thyroidologists decided in 1973 that the TSH was the blood test they had been looking for all through the years. This was about two years after I started practice. Having been taught how to diagnose hypothyroid conditions clinically I was in a position to watch to see what the relation of the TSH was to the onset of hypothyroidism. What I found was many people would develop classic signs and symptoms of hypothyroidism but the TSH was ever so slow to become abnormal, rise and confirm the clinical diagnosis. Sometimes it never did. Finally I began treat patients with thyroid in the normal manner I was taught. I could not see why I had to wait for the TSH to rise for me to be able to treat them.

If you remember it was a long time before the medical profession admitted that there were two new diseases to appear in the world that were not there before. Chronic fatigue and fibromyalgia were non-existent before 1980. This is seven years after the 1973 consensus meeting. So where did these two new diseases come from? The symptoms and signs of chronic fatigue and fibromyalgia were described in the literature in the 1930's as one way that low thyroid could be expressed. Treated early it was easily fixed with thyroid in adequate doses. But even then the clinicians had noticed that if a patient has low thyroid (chronic fatigue and fibromyalgia) for too long then it became more difficult to reverse all signs and symptoms regardless of what they were.

Mary Shomon: If, as Dr. Weetman suggests, the laboratory's reference range for "normal" TSH includes people who are in the process of developing hypothyroidism, do you feel that the reference range itself should be recalculated?

This all means even if the chronic fatigue patient does have an abnormal TSH the treatment will be inadequate to make them well again. The clinicians of the past (before the TSH) were astute and very observant and were able to diagnose and treat hypothyroidism correctly without the TSH for 80 years-- why do we need it now? They would be aghast at the total missing of the diagnosis of chronic fatigue and fibromyalgia.

Mary Shomon: You indicated that you feel chronic fatigue and fibromyalgia are both hypothyroid conditions. There are some physicians who feel that these two conditions are manifestation of difficult to diagnose hypothyroidism, and yet other studies claim there is no relationship. Can you explain why you feel there is a connection among these conditions?

David Derry: For many years the literature (before the TSH) supported the fact that if your symptoms responded to thyroid hormone you were low thyroid but especially if when you took the person off the thyroid and their symptoms returned. My own patients who develop chronic fatigue or fibromyalgia I treat them with thyroid and all --and I mean all-- of their symptoms disappear. If I stop the thyroid or if they stop it for some reason all the symptoms start to slowly come back over the following months. You might ask do I do thyroid function tests? The answer is yes if for no other reason that I am curious to know what they look like in the face of the patient's obvious clinical diagnosis. The other patients who come to me from outside my practice respond roughly in proportion to how long they have had it. But I have had lots of pleasant surprises of people badly disabled by fibromyalgia or chronic fatigue for six years or more who slowly over 6 months to a year their symptoms completely disappear. It is of course a delight to see this happen.

I would be interested to know if anyone has similar TSH levels to me and what symptoms you have? I have a doctors appointment on thursday (I want to be sent for knee x-rays) but I think I should also look into thyroid problems?



Mum of 11yo dx celiac disease Nov 05 by biopsy

Share this post

Link to post
Share on other sites
Well I have had my thyroid scan and ultrasound this week and now I am just waiting for the results. When the tech was doing the untrasound I felt like I was choaking (sp?). I didn't realize how tender my neck was! Guess my thyroid is enlarged after all. For those who have had to have the treatment for Hashimoto's (sp? again) what was it like? I am worried. I am starting a new job and going back to college. I am worried that something will have to be put on hold. What is difficult? Time consuming? I don't want to sould like I don't care about my health, it is just bad timing for something else to be going wrong!!! LOL.

I have Hashimoto Hypothyroidism, Narcolepsy, Cataply, Restless Leg Syndrome, anemia and arthritis.

My Dr. told me some of these things can be related. I've been told it is genetic but I am not aware of any other family members with the things I have with exception of arthritis.

Share this post

Link to post
Share on other sites
I have Hashimoto Hypothyroidism, Narcolepsy, Cataply, Restless Leg Syndrome, anemia and arthritis.

My Dr. told me some of these things can be related. I've been told it is genetic but I am not aware of any other family members with the things I have with exception of arthritis.

Lots of my Dad's family are very overweight except one tiny auntie. My family on both sides seem to be riddled with auto immune illness, many never diagnosed, I think.

Mum of 11yo dx celiac disease Nov 05 by biopsy

Share this post

Link to post
Share on other sites

chubbiegirl -- I read your blogg. I blogg too!

Have your thyroid checked. It could be the reason you can't loose weight, hair loss and sleep problems etc.

Susan sspitzer5 -- Is right once your thyroid is messed up there is no going back. I found that to be true for me. I was GLUTEN & DAIRY FREE for 4-years. At that time I ate night shade veggies and lots and lots of SOY, a big NO NO. I didn't know that at the time. Since I had RAI radiation on my thyroid. I haven't gottten worse, but I am NO BETTER then I was before. No I can't east night shade and soy. SOY makes my hair fall out in a big way, the doc said it is my thyroid.

Oh, and S-T-R-E-S-S is the worst thing of all. The biggest challange I have is living stress free to stay well.

I fear my life on a feeding tube. I blogg too! I have a story I will someday turn into a book. My dear beloved Auntie was handicaped (I havad Power of Attorney)and without my consent the nursinghome doc and hospital place a feeding tube in her and pumped her fill with dairy and gluten until it became unbearable for her and I. All I can say is -- Hospice has angels...

Share this post

Link to post
Share on other sites
I have hypothyroidism too, but found out that I don't have either of the main genes for Celiac. I'm most definitely gluten intolerant though, so there's a connection somewhere. My mother and both sisters are also on thyroid meds but none of them are off gluten.


I'm in the same boat as you. I recently was diagnosed with hypothyroidism, and as well had the blood test and small intestine sample test for celiac. Well, both the blood and intestine sample came back negative, but from my perspective I definitely have an intollerance to certain types of food, and if gluten is removed from my daily diet, my life improves a heck of a lot more.


Share this post

Link to post
Share on other sites

Ok, too tired to seach this on my own. Can you guys tell me the difference between

Hashimoto's (sp?

Graves Disease



See this site for definition of this and many more endocrine terms:http://www.endocrineweb.com/define.html

Hashimotos is an inflammtion of the thyroid gland caused by the immune systems attacking it - it sends lymphocytes in to attack - since the process takes months/years to complete - affected individuals may experience both hyper and hypo symptoms

Graves Disease- Hyperthyroidism caused by an overactive gland (which is usually enlarged -aka: goiter)

Thyroiditis - inflammation of the thyroid gland

Goiter - Enlargement of the thyroid gland for any reason.....can be called diffuse goiter if the swelling is smooth, nodular goiter is one with nodules

and just in case you thought that was all - there is something called "euthyroid sick syndrome" where thyroid test will show low levels when a person is sick with a lengthy illness, but there is nothing wrong with the gland.This is why most doctors hesitate to diagnose hypothyroidism or will want to re-do tests once the person is over the illness.


Type 1 diabetes - 1986

hypothyroid -1993

pernicious anemia

premature atrial beats



daughter is: age 15

central hypotonia and developmental delay

balance issues (rides an adult 3 wheel bike)

hypothyroid 1996

dermatographia - a form of angioedema 2002

celiac 2004 - by endoscopy

diagnosed Aspergers at age 7 - responded very well (HUGE difference) to gluten-free diet

recovered from Kawasaki (2003)

lactose intolerant - figured out in Oct/06

Gilberts syndrome (April/07)

allergy to stinging insects

scoliosis Jan 2008

nightshade intolerance - figured out April 2008

allergy to Sulfa antibiotics

son is 13

type 1 diabetic - 2003 diagnosed on his 9th birthday

celiac - 2004 by endoscopy

lactose intolerant - figured out Nov/06

Share this post

Link to post
Share on other sites