Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Much Gluten To Consume Beffore Testing


TestyTommy

Recommended Posts

TestyTommy Rookie

I'm a newbie, and I've been going through the message board archives to learn more about celiac. One of the things I've read in several places is that you are supposed to eat about 3 slices of bread for 3 months in order for the celiac test to be accurate.

Does anyone know the origin of the "3 slices for 3 months" rule of thumb?

I ask because on the celiac.com FAQ, Dr. Horvath answers the question "How long must gluten be taken for the serological tests to be meaningful?" with:

"Our recommendation is to ingest at least 0.3 g/kg/day of gluten for two months prior to the serological tests. However, if somebody experiences symptoms during the gluten challenge we recommend to perform serological tests earlier.

The protein content of wheat flour is between 7-15% and approximately 90% of the protein content is gluten. That means a slice of bread may have 2-3 g of gluten."

I weigh about 180 lbs, which is about 82 kg. At 0.3 g/kg, I'd need to eat about 24-25 g. of gluten, or about TEN slices per day. If you weigh about 110 lbs, or 50 kg, it works out to 5-6 slices of bread per day. That's a lot more than 3 slices per day.

Anyone have any thoughts/recommendations?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

I have heard that from several doctors with good reputations with regards to celiac. You really need to be eating alot of it and if you have been gluten free for any period of time that is especially importamt.

VydorScope Proficient

I do not know the origin of the rule of thumb, but I can say I think its totaly wrong, and I would go with the numbers in the FAQ. Thats just based onmy expence.

Merika Contributor

I've heard some people make antibodies in 3 months, but *everyone* makes them in 6 months, so unless you start feeling really cr&ppy before 6 months, I'd go with that. If you've been eating gluten up til now, though, don't sweat it, just take the test.

Merika

Canadian Karen Community Regular

I think, and although this is not backed up by scientific evidence, but I don't think anyone can put a "number" to the amount of gluten needed for testing. I base my belief on the fact that everybody's body reacts differently, some severely, some mildly, some not at all. You might have some who would react to three slices, but then again, someone who is micro-sensitive, might react to 5 crumbs a day. I honestly don't think there is enough knowledge about it yet to say definitively how much is necessary......

Good Luck with the testing!

Karen

ebrbetty Rising Star

I was 98% gluten-free before my blood test, My Dr said "lets do it anyway, because there are so many ppl that get negative results even eating gluten" my results came back boaderline positive..he said if I was eating gluten everyday it would have been a higher positive result. I was told it stays in our system for 6 months, but I don't know if thats correct..I read so much on celiac disease and get so many different answers!

one Dr, my Gastro actually told me I could not possibly have celiac disease because I don't get diarrhea and thats the only symptom of celiac disease not severe stomach pain!! :blink:

Canadian Karen Community Regular
one Dr, my Gastro actually told me I could not possibly have celiac disease because I don't get diarrhea and thats the only symptom of celiac disease not severe stomach pain!! :blink:

Yikes!!!! :o

Hope you didn't go back to him! ;)

Karen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ebrbetty Rising Star

LOL no never, but I will send him a copy of my blood tests!!

it took my primary care Dr to say lets test you, you've been in severe pain for a year everytime you eat!

VydorScope Proficient
I think, and although this is not backed up by scientific evidence, but I don't think anyone can put a "number" to the amount of gluten needed for testing. I base my belief on the fact that everybody's body reacts differently, some severely, some mildly, some not at all. You might have some who would react to three slices, but then again, someone who is micro-sensitive, might react to 5 crumbs a day. I honestly don't think there is enough knowledge about it yet to say definitively how much is necessary......

Good Luck with the testing!

Karen

ITs worse then that, some ppl liek me and my son will NEVER show postive on the main "screening" test, and yet still have celiac disease. Only the full panel might find it in our case. (Well did in his case, I never got hte full panel!)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,590
    • Most Online (within 30 mins)
      7,748

    uhlissuh
    Newest Member
    uhlissuh
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.