Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Chronic Diarrhea Since October 2019


TrishaFisher

Recommended Posts

TrishaFisher Newbie

Sorry if this is a bit long winded and thank you for accepting me to your group!

I have had chronic diarrhea since October 2019. I have had an endoscopy and a gastroscopy and am awaiting the results of 4 x biopsies they took. In the notes, they have said query Caeliac disease, erosive gastritis and intestinal metaplasia ao they also want tests for pancreas. So, I asked my GP if she thought it was caeliac disease and she said I may have a wheat intolerance but we'd await the results.

Symptoms, in addition to chronic diarrhea, are low ferritin levels (anaemia - ferritin levels are 5 and apparently that is low) for which they are now giving me Iron tablets, fatigue, bloating, very smelly gas and rapid weight loss.

Unfortunately, I already have a host of other health issues - diabetes (insulin), 2 heart attacks, cervical cancer (free from cancer for 25 years!!), Fibromyalgia, CFS and peripheral neuropathy. I am in a wheelchair but can walk a few yards around my home with a walking aid. I am, and have for many years, always tired, but this tiredness over the past few months has been a lot worse. I can barely stay awake but I can't sleep a full night because I am up and down literally 6 or 7 times daily to go to the loo!

I am suffering from depression currently because I lost my daughter in November, so when they ask me if I'm depressed, I've been depressed and stressed for3 years because she was so very poorly and has now passed away at only 39.

I really don't feel on top of that I am even capable of changing a diet, or doing anything, but then I'm scared to eat because I spend the next few hours suffering! I also don't know what I can eat, other than fruit and salad, so my diet is very limited and I do need to eat certain things for the diabetes!

Sorry - I know its all very complex but I really would appreciate some advice!

 

Many thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

First keep eating gluten daily til all testing is done...celiac requires you to eat 1-2 slices of bread a day for 12 weeks for blood test or 2 weeks for intestinal biopsy. 
Go ahead and look at the Newbie 101 section if you will and check out the things about CC and the foods to avoid.

If your just a type 2 diabetic then something like a paleo/keto diet would be in line. I follow this and do well, eggs, bacon, certain brands of sausage, homemade meat loafs, pasta with miracle noodles or palmini pasta, baked chicken, baked fish, homemade pot roast, deviled eggs, soups, etc.
Most keto meals are gluten free, try like maria emmerich, ketogenic girl, and keto summit for ideas. BUT PLEASE talk with a doctor if it would be safe for you to attempt and keep a eye on your glucose.

BTW when starting off remove dairy the villi tips produce the enzymes to break it down and til they heal you most likely will have a intolerance. Oats are another thing some celiacs react to regardless of being gluten free versions. You

  • 1 year later...
Audrey22 Newbie

Hi Trisha - I just found this thread and wanted to say, I'm sorry you've gone through all of that and I really hope you've gotten some answers from your doctors and are feeling better.

I am so sorry to hear about the loss of your daughter on top of all the troubles you've had with your health, what a terribly stressful situation to be in. Would love to know how you're doing now :)

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,993
    • Most Online (within 30 mins)
      7,748

    Kelly C
    Newest Member
    Kelly C
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.