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New Here: Gluten-free Toddler With Dairy And Nut Allergy


tigerlily

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tigerlily Newbie

Hi, I'm new here.

My 2-year-old daughter EDEN has recently started on a gluten-free diet ( 3 weeks ago) after she had suffered from constant diarrhea for 6 weeks (lost 5 lbs.) and was very miserable. Within 2 days, she was a different child altogether!!! She's much happier and so active now, unbelievable.

The blood test came back negative but she will have a biopsy in the near future.

My challenge with her diet is that she also has a dairy and nut allergy...and am I reading labels here or what! I think I know most of them by heart already....

Nice to meet you all!

Vanessa.


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dlp252 Apprentice

Hi Vanessa, welcome!

Kasey'sMom Enthusiast

Welcome to the forum!! My dd is gluten-free/gluten-free/NF as well.

Glad to have you here. :)

RiceGuy Collaborator

Does the nut allergy include peanuts (they aren't actually nuts)? If so, there is a peanut butter substitute you might like to try. I can eat peanuts so I have not tried it, but others here say it's good: Open Original Shared Link

What about casein, lactose, and whey? These are found in lots of gluten-free stuff. I'm guessing you've already been watching for that though. There are a lot of dairy/lactose/casein free favorites mentioned on the board, so search around or ask. I'm sure you'll get plenty of suggestions.

Glad to know your daughter is feeling better :)

elfkin Contributor

Hi! Wow, I can relate!

My toddler is celiac, we also carry an epipen for a peanut allergy, and he is lactose intolerant. It is a shame that so many gluten-free products also have nuts or are processed on shared equipement with peanuts. He is also not supposed to have tree nuts and fish. They will test him soon (at our next visit), but the doc didn't want him to try those at home! Hang in there! I just had to let you know that you aren't alone. :rolleyes:

tigerlily Newbie
Hi! Wow, I can relate!

My toddler is celiac, we also carry an epipen for a peanut allergy, and he is lactose intolerant. It is a shame that so many gluten-free products also have nuts or are processed on shared equipement with peanuts. He is also not supposed to have tree nuts and fish. They will test him soon (at our next visit), but the doc didn't want him to try those at home! Hang in there! I just had to let you know that you aren't alone. :rolleyes:

Thanks!!! Glad I'm not alone.

Vanessa.

Does the nut allergy include peanuts (they aren't actually nuts)? If so, there is a peanut butter substitute you might like to try. I can eat peanuts so I have not tried it, but others here say it's good: Open Original Shared Link

What about casein, lactose, and whey? These are found in lots of gluten-free stuff. I'm guessing you've already been watching for that though. There are a lot of dairy/lactose/casein free favorites mentioned on the board, so search around or ask. I'm sure you'll get plenty of suggestions.

Glad to know your daughter is feeling better :)

-----------------------------------------------------------------------------------------------------------------------------

No casein, lactose or whey - nope!!! She'll be sick straight away if she has any of those. She's okay with peanuts (they're legumes aren't they?) but I'm not giving her any, just in case! But a peanut butter substitute might be an idea, just to add some new flavors to her diet. THANKS.

Vanessa.

Eeyorific Rookie

Hi Vanessa,

Welcome! So Happy to hear that the diet is helping your daughter! My son would have 20-30 diarrheas daily prior to going gluten-free. I can't tell you how many hospital stays we had to endure! It's such a blessing to be able to see your child growing and healthy after going gluten-free.. especially if the tests work against you. At that point, you simply do what's best for your child inspite of the test results.

Which reminds me.. you mentioned she will have a biopsy in the near future. There is a chance that her being gluten-free prior to the biopsy, it could skew the results. I wouldn't wait too long.

Dealing with other food allergies and intolerances can be most frustrating. In addition to being Celiac, Matthew is also intolerant to all dairy and corn. Also refined sugar is a no-no for him. We find the corn very difficult. Not only is it in most things that are gluten-free, but it's also in most every medication, exc...

As you said.. all you can do is read, read, read!

God Bless!

Kristie

Hi, I'm new here.

My 2-year-old daughter EDEN has recently started on a gluten-free diet ( 3 weeks ago) after she had suffered from constant diarrhea for 6 weeks (lost 5 lbs.) and was very miserable. Within 2 days, she was a different child altogether!!! She's much happier and so active now, unbelievable.

The blood test came back negative but she will have a biopsy in the near future.

My challenge with her diet is that she also has a dairy and nut allergy...and am I reading labels here or what! I think I know most of them by heart already....

Nice to meet you all!

Vanessa.


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redheadheather Explorer

My son also is allergic to nuts [not peanuts] and was allergic to milk and soy as a baby. Just always looking for new and exciting meal ideas with those "restrictions" if you will... what are some things your child eats? DS is 6 1/2 now. [school lunches are the biggest deal right now]

Thanks!!

tigerlily Newbie

Corn! Oh no!!!! I can see that that would be a major challenge!!! Do you give him things that are mainly rice-based then?

With us its the nuts: most things that are dairy- and gluten-free are guaranteed to contain nuts!!!

Eden won't eat any (gluten-free) cereals nor drink any rice milk. Sometimes she will sip some soy milk.I have put her on a Calcium supplement. But she likes soy desserts.

She likes savory stuff and cookies as well as all fruit.

I think we will have to put her back on GLUTEN in order to get any results from the biopsy.

Is there anybody on here who has had a biopsy or whose child has had one? I would like to find out more about it BEFORE she has it.

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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