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Can certain foods trigger celiac symptoms? I'm not a celiac


PuffleFuzz

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PuffleFuzz Newbie

Hey, my name is Jenna.

I have the strangest question, and a bonus question. Occasionally when I eat waffles I feel fine, then ___ minutes later I get a stomachache and all sweaty. I can eat other gluten foods just fine. Could it be Celiac's or just gluten intolerance?

Bonus: My nephew has full blown celiacs, and my half brother (nephew's dad) has it a little bit. What are my chances that i have it?


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cyclinglady Grand Master
1 hour ago, PuffleFuzz said:

Hey, my name is Jenna.

I have the strangest question, and a bonus question. Occasionally when I eat waffles I feel fine, then ___ minutes later I get a stomachache and all sweaty. I can eat other gluten foods just fine. Could it be Celiac's or just gluten intolerance?

Bonus: My nephew has full blown celiacs, and my half brother (nephew's dad) has it a little bit. What are my chances that i have it?

Very strong!  Celiac disease is genetic.  About 30% of the population carries the genes.  But  something triggers it because not all those people actually go on to get celiac disease. Experts used to think a 10% chance when you have a first degree relative (brother) but now they think about 48% chance based on a recently Mayo study.  Experts suspect a virus or stress triggers celiac disease.  Who knows? 

Get tested.  You can not tell by symptoms alone because they overlap with other illnesses.  Plus, there are over 200 symptoms.  

Do not stop eating gluten or celiac disease testing will not work.  Ask your doctor for a blood test. Research the topic because it runs in your family.  Know that some celiacs have no symptoms yet have significant intestinal damage.  

https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/

My cousin?  She could not eat pancakes.  Bread yes, but not pancakes.  Me?  I was anemic.  No stomach issues at all.  I knew dairy bothered me, but that was it.  I was shocked!  

Fenrir Community Regular

Yes, you can have celiac that's not active for many years. My celiac disease symptoms coincided with my mother getting ill and her prolonged decline in health and eventually passing away. I was actually diagnosed shortly before she died. 

I also had surgery around that time, which from what I understand another trigger. Apparently, many celiacs start having symptoms for the first time shortly after having a surgery. 

PuffleFuzz Newbie
On 2/10/2020 at 12:54 PM, Fenrir said:

Yes, you can have celiac that's not active for many years. My celiac disease symptoms coincided with my mother getting ill and her prolonged decline in health and eventually passing away. I was actually diagnosed shortly before she died. 

I also had surgery around that time, which from what I understand another trigger. Apparently, many celiacs start having symptoms for the first time shortly after having a surgery. 

I'm sorry for your loss, and that's interesting. I'm learning a lot.

PuffleFuzz Newbie
On 2/10/2020 at 11:16 AM, cyclinglady said:

Very strong!  Celiac disease is genetic.  About 30% of the population carries the genes.  But  something triggers it because not all those people actually go on to get celiac disease. Experts used to think a 10% chance when you have a first degree relative (brother) but now they think about 48% chance based on a recently Mayo study.  Experts suspect a virus or stress triggers celiac disease.  Who knows? 

Get tested.  You can not tell by symptoms alone because they overlap with other illnesses.  Plus, there are over 200 symptoms.  

Do not stop eating gluten or celiac disease testing will not work.  Ask your doctor for a blood test. Research the topic because it runs in your family.  Know that some celiacs have no symptoms yet have significant intestinal damage.  

https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/

My cousin?  She could not eat pancakes.  Bread yes, but not pancakes.  Me?  I was anemic.  No stomach issues at all.  I knew dairy bothered me, but that was it.  I was shocked!  

I didn't know there was over 200 symptoms. My nephew had croup a lot as a baby. Well even now at 11, almost 12 he still sometimes gets it. Maybe that triggered his disease. I know that I'll have to take SO much out of my diet. I love macca's (McDonald's. I hang out with british people online way too much lol) If only there was a copycat McDonald's fry recipe...

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    • trents
      Should not be a problem except for the most sensitive celiacs. The amount of gluten that would get in the air from cooking alone has got to be miniscule. I would be more concerned about cross contamination happening in other ways in a living environment where others are preparing and consuming gluten-containing foods. Thinks like shared cooking surfaces and countertops. And what about that toaster you mentioned?
    • knitty kitty
      Hello, @NCalvo822, Blood tests for Celiac Disease test for antibodies our bodies make in response to gluten exposure.  These Tg IgA 2 antibodies mistakenly attack our own bodies, causing problems in organs and tissues other than just the digestive tract.  Joints can ache, thyroid problems or the pancreas can develop.  Ataxia is just one of over two hundred symptoms of Celiac Disease. Some people with Celiac Disease also make tTg IgA 6 antibodies in response to gluten exposure.  The tTg IgA 6 antibodies attack the brain, causing ataxia.  These tTg IgA 6 antibodies are also found in people with Parkinson's disease, though they may not have Celiac Disease.  First degree relatives (parents, siblings, children) of those diagnosed with Celiac should be tested as well.  Celiac is genetic.  Your mom and sister should be tested for Celiac, too!   Definitely a good idea to keep to a gluten free diet.  
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      @Rebeccaj,  When you smell toast or pasta cooking, that means that particles of that food are floating around in the air.  Airborne gluten can then be inhaled and swallowed, meaning the food particles get into your digestive tract.   If you're careful to avoid gluten and are still having symptoms, those symptoms could be caused by vitamin deficiencies.  
    • Rebeccaj
      ok thanks for your advice. But my question was what happens when someone you know in a house is cooking pasta or toast that's flour  Airbourne without eating.?
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