Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Test Results

Rachel--24

By Rachel--24
in Related Issues & Disorders

Recommended Posts

Guest BERNESES
Guest BERNESES
Posted

Having been "under their care" for a year while I lived in California, i can say I'm glad you're outta there too. There's no doubt you'll get better!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 63
  • Created
  • Last Reply
ianm Apprentice
ianm
Posted

Best of luck and I hope this is what is really at the root of the problem.

slpinsd Contributor
slpinsd
Posted

Jen H: Yeah- it was Blue Steel. Zoolander is my favorite movie, too! I switched it w/the real me now, though.

Rachel: I'm glad you don't have H. Pylori. I'm done w/my course of antibiotics, and onto probiotic treatment. Flagyl tastes nasty. I really don't notice any difference in my symptoms. The reflux is improved but my intestinal issues are pretty much the same. I believe that it may be from Candida that I have. Rachel, did you do a salivary test for the adrenals from BioHealth? I did that same test! Mine showed low DHEA and a high DHEA/cortisol ratio. Yeah, I am really happy with BioHealth's tests.

Nancy M: I am in SD, too. I know a really good Naturopath that does BioHealth's testing. PM me if you are interested. She WILL look for the root causes of your problems!

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Rachel: I'm glad you don't have H. Pylori. I'm done w/my course of antibiotics, and onto probiotic treatment. Flagyl tastes nasty. I really don't notice any difference in my symptoms. The reflux is improved but my intestinal issues are pretty much the same. I believe that it may be from Candida that I have. Rachel, did you do a salivary test for the adrenals from BioHealth? I did that same test! Mine showed low DHEA and a high DHEA/cortisol ratio. Yeah, I am really happy with BioHealth's tests.

I just started my antibiotics. I'm not taking Flagyl. They gave me Tinitazole. Its very new....it wasnt even in the pharmacist's computer yet. I guess its sorta related to Flagyl but with less side-effects....but they did say I'd probably get a metallic taste in my mouth. I just hope it works. Are you doing anything for the Candida? They just told me that once the c-diff is gone the probiotics should get the candida under control but they may decide to give me something for it. They said Candida is not my main problem...its just there cuz I have an infection thats holding it in place right now. Yeah...I did have the same adrenal test. My DHEA was normal but my DHEA/cortisol ratio was a little high. Did you ever take the stool test for pathogens? Thats the test that detected my C-Diff. It seems like people with H. Pylori dont really get very many symptoms from it...if any. Maybe thats why you dont feel any different....also didnt you just start gluten-free?....its gonna take some time for you to heal. Are you going to retest to make sure the H. Pylori's gone? I have to retest 30 days after I finish my antibiotics.

P.S. I see you got your pic up now! No more Zoolander guy. :)

Guest BERNESES
Guest BERNESES
Posted

Go Rachel- We're all rooting for you! Please keep us posted as to how things go. Best, Beverly

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Best of luck and I hope this is what is really at the root of the problem.

Thanks Ian! You're one of the people on here who pretty much never complains about life after gluten. Well how could you...new girl, new job, great health! :D

I love how positive you are about the diet. We shared similar symptoms and circumstances and hopefully soon I'll have great health too....and some of that "bonus" stuff wouldn't be so bad either. :D

ianm Apprentice
ianm
Posted

This is happening to you for a reason. I couldn't see it when it was happening to me then but I can see it clearly now. It is to prepare you for bigger and better things to come but you mind and body have to be ready for them.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest BERNESES
Guest BERNESES
Posted

[quote name='Rachel--24' date='Feb 14 2006, 10:26 PM' post='103408 Hopefully soon I'll have great health too....and some of that "bonus" stuff wouldn't be so bad either. :D

thomas3000 Rookie
thomas3000
Posted

Hey Ian,

What were your symptoms before going gluten free if you don't mind me asking? I think I read it in another thread but can't find it, just curious if you had depression/anxiety/brainfog/headaches and how long did it take before they cleared up??

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
This is happening to you for a reason. I couldn't see it when it was happening to me then but I can see it clearly now. It is to prepare you for bigger and better things to come but you mind and body have to be ready for them.

I know my mind is ready...just waiting for my body to catch up now. :D

For anyone interested my doctor gave me the wrong meds. She didnt give me the antibiotic (Flagyl) which is what I need to be taking for C-Diff. She gave me some kind of anti-protazoal agent which clearly states on the instruction sheet that it is NOT effective in treating infections caused by bacteria. So I wasted 2 days and the cost of the perscription. I went on the C-Diff forum and told them what I was taking and everyone questioned why in the heck I was taking that for C-Diff....apparantly its not even an antibiotic. I was just starting to really trust my new doctors and now this. :(

Oh well...starting over today. Picking up the CORRECT meds after work. :)

Judyin Philly Enthusiast
Judyin Philly
Posted
D

For anyone interested my doctor gave me the wrong meds. Oh well...starting over today. Picking up the CORRECT meds after work. :)

Good grief Rachel,

you really aren't catching a break are you.

I know we can research things to death..but it paid off for you going on the c diff forum.

judy in philly

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Good grief Rachel,

you really aren't catching a break are you.

Aint that the truth! I guess life was too easy for me the first 3 decades so now I'm making up for it all in the last 3 years. <_<

BUT... I was definately given a break when I found you guys! ;)

ianm Apprentice
ianm
Posted
Hey Ian,

What were your symptoms before going gluten free if you don't mind me asking? I think I read it in another thread but can't find it, just curious if you had depression/anxiety/brainfog/headaches and how long did it take before they cleared up??

Severe brain fog, fatigue and obesity. The way those things were destroying my life did lead to a period of depression. Overall it has been a two year process to become completely healthy. The worst symptoms cleared up within a few weeks but better for me would have been still really bad for anyone else. It takes time, no two ways around it.

thomas3000 Rookie
thomas3000
Posted

Thanks for the reply Ian.. Lots of my family have depression/brain fog/anxiety/obesity, but won't listen to me about going gluten free. I tried like hell to tell them but they said they "need" their spaghetti...HMMM. Makes you wonder doesn't it. I'm trying to help people with this but nobody seems to believe that gluten can cause mental problems. I'm glad you self diagnosed because your right, doctors are clueless, unless of course you find one like mine and Rachels. I'm doing my best to get the word out that it's our diets that is causing these symptoms. Heck, if I can make a difference in 1 persons life and make some ripples, then I'll be happy with that. Your story is truly inspirational and I'm glad you are trying to help others...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    2. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in...
    3. SilkieFairy
      - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash...
    4. catnapt
      - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      learned I had a high PTH level in 2022 suspected to be due to low vit D got my vit D level up a bit but still have high PTH I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption
    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

      I am on day 13 of eating gluten and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748
    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      By catnapt · Posted

      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.