Vitamin B12

[Ldncrad]

I know it’s common to have low iron with celiac, but did anyone have a B12 deficiency prior to diagnosis?

[Fenrir]

Celiacs can be deficient in many vitamins and minerals including B12. As many as 40% of celiacs have a B12 deficiency before being diagnosed. 

Here's an interesting study on vitamin deficiencies in Celiacs:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3820055/

Edited February 26, 2020 by Fenrir

[DebJ14]

I always had low B-12 on blood work and was diagnosed with B-12 anemia on multiple occasions.  After heavy supplementation after diagnosis the levels improved, but not to where the doctor thought they should be.  Genetic testing showed  a genetic mutation that leads to low B-12.

[LJR1989]

My B12 was very low. I've been on injections for over a month and I am just starting to feel better. 

[Wheatwacked]

I have built up to 14 different vitamins pills a day, added one at a time to gauge it's effect. My health mental and physical is steadily improving, gut issues virtually gone, even when I occasionally eat gluten (by accident or rarely on purpose). My target is 100% of the minimum RDA's so I guaranty myself at least the minimum each day, even when my anorexia is rampant or before when I simply did not absorb what I did eat or don't eat what I need. I don't use multivitamins because the ones I have researched only supply an insignificant amount of most vitamins. Good marketing but not effective for me. They also have folic acid (synthetic folate), synthetic beta-carotene(called vitamin A) and synthetic vitamin E; all proven to have negative health effects. It is a pain swallowing so many pills each morning but better than the misery I was in before. It is sad that NASA's best nutrition discovery was Tang.

[knitty kitty]

Wheatwacked, 

I'm wondering about your anorexia.  I noticed in my research that a thiamine deficiency symptom is anorexia.  

I found this study....

https://www.ncbi.nlm.nih.gov/pubmed/11054793

I was having problems with type two diabetes and found this site....

https://www.hormonesmatter.com/navigating-thiamine-supplements/

which recommends high doses of lipothiamine, a therapeutic dose.  So I tried it and it's made a big difference in the glucose control and many other little things.  

https://www.ncbi.nlm.nih.gov/pubmed/31522667

https://biomedgrid.com/fulltext/volume3/thiamine-deficiency-and-benfotiamine-therapy-in-brain-diseases.000621.php

I was wondering if lipothiamine would help you.  

I take my vitamins separately, too.  Don't like the synthetic D and folic acid either.  The RDA's are set way too low.

 

Edited March 4, 2020 by knitty kitty
Added link

[Wheatwacked]

10 hours ago, knitty kitty said:

I was wondering if lipothiamine would help you.

Thanks. It looks intriguing, the whole beriberi thing and Japan. And I do drink lots of coffee. There is no upper RDA for thiamine. Now I think I understand why I seem to prefer fresh garlic. I am going to try a 60 day trial of it in addition to the thiamine hydrochloride in the B12 complex I am already taking. For $15 bucks it is a worthy experiment.

Quote

It was found to be a disulfide derivative of thiamine, produced as a result of enzymatic action on the thiamine molecule in garlic bulbs when the bulb is cut or crushed.

 

[knitty kitty]

Wheatwacked, 

So glad you've taken up the Celiac Guinea Pig challenge.  ? I hope you will keep us posted on your results.  Might I suggest a food/mood/poo'd journal to keep track of results?  

And to Ldncrad, 

Many Celiacs have vitamin deficiencies at the time of diagnosis.  Sometimes that's been the only symptom, but it's just the tip of the iceberg.  

It's important to remember that B12 needs some other vitamins (Vitamin C, folate, riboflavin, Vitamin A and D) to work properly.  (Check with medical professional), you might want to supplement all the eight B vitamins.  In some cases, minerals like copper and iron need to be  supplemented.  Once you're healed and absorbing nutrients better, you may not need to supplement by eating nutrient dense foods.  Eat more Liver!

Hope this helps!

Knitty Kitty

 

 

[Wheatwacked]

I started a rudimentary journal to track calories. The hardest part was getting out of ostrich mode. The last few years I've been eating only enough for sustenance, based on Fuhrman's six week plan, and the my adaptation of the protocol they used on me for pancreatitis (NPO and rest) when I was hospitalized for that back in 1995. So the anorexia was beneficial. But now my gut is healed so I need more calories. Over the years, since gluten-free,

11 hours ago, knitty kitty said:

So glad you've taken up the Celiac Guinea Pig challenge.  ?

I noticed that each attack would occur lower in my abdomen, working it's way from esophagus to anus.  At this point I am working on the inguinal hernia from a coughing fit caused by lisinopril my doctor thought would be good for high blood pressure. It wasn't and he asked me to find a new doctor. The umbilical hernia (2014 cough from smoking, still smoke though) is rarely evident at this point. Those and the non-healing sebaceous cyst 2014 (third eye blind) and my Biafra Baby Belly 2014 were the clues it took to accept that my son's (biopsy celiac diagnosis 1976) doctor was right about me also being celiac (10% chance). Who knows what life would have been like? What would have happened( or not happened) if they figured it out when I was that colicky baby back in 1951?. In 2004 my dad died of sepsis after surgery to fix intestinal blockage required a second surgery, colostomy, because the stitches leaked. In 2018 my older brother died after surgery to fix a stoma between his colon and bladder caused peeing out his ass?. Stitches leaked and required a colostomy and he eventually stroked out six months later. Think there is a pattern here?