Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly diagnosed & need advise


Dani Leea

Recommended Posts

Dani Leea Newbie

I have only recently been diagnosed with celiac and have been sticking to my diet religiously, however I had a family function last night and thought “what the hell, one slip up won’t kill me”..... I had some pizza and have had tummy aches since then (it’s now 10 hours later). 
When diagnosed, my symptoms were only ever constipation, I never had aches, pains or diarrhoea. I am wondering if it’s coincidence or being gluten free for the few weeks has caused the changes in symptoms when eating gluten??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

Many have this, I for years only had constipation and all my other issues I thought were normal...I had also become quite numb to pain. Reactions after going gluten free were much worse and kept hitting back harder if I slipped up.

One thing to consider is that every time you cheat you risk gaining new food intolerance/sensitivities or getting secondary issues. Every time I got exposed I seemed to have to cut my diet down to only a few things for months or risk getting sick from even some other gluten free items. Others also have had to go to a very basic whole foods only diet after getting glutened and only eating bland and cooked to mush food til our intestines settle down. One exposure can leave your immune system attacking for up to 6 weeks.

Dani Leea Newbie
21 minutes ago, Ennis_TX said:

Many have this, I for years only had constipation and all my other issues I thought were normal...I had also become quite numb to pain. Reactions after going gluten free were much worse and kept hitting back harder if I slipped up.

One thing to consider is that every time you cheat you risk gaining new food intolerance/sensitivities or getting secondary issues. Every time I got exposed I seemed to have to cut my diet down to only a few things for months or risk getting sick from even some other gluten free items. Others also have had to go to a very basic whole foods only diet after getting glutened and only eating bland and cooked to mush food til our intestines settle down. One exposure can leave your immune system attacking for up to 6 weeks.

Wow, thank you so much for this information, I will definitely ensure I don’t slip up again.

I’ve been excellent sticking to it except this one time, not realising there would be any repercussions. Now knowing this, there will be no temptation!

NNowak Collaborator

Ennis TX is correct, each time you “poke the bear,” you risk additional food sensitivities, or autoimmune conditions. Accept that you will be tempted to eat things that are convenient if you don’t plan in advance and eat a well balanced diet. Hunger and cravings are not our friends. 
 

Celiac is a type IV hypersensitivity so most symptoms occur at 12-72 hours. Now that you have been gluten-free for a period of time, your reaction is much more noticed and clear. As you progress with your autoimmune disease, you may notice additional symptoms as you just don’t return to full health. A food/symptom log may help you identify the foods that cause ill health. 
 

Hopefully you will feel better soon. Please don’t hesitate to post questions. 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,171
    • Most Online (within 30 mins)
      7,748

    kyle68j
    Newest Member
    kyle68j
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...