Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitamin B Shots


debmidge

Recommended Posts

debmidge Rising Star

Can anyone comment on this .....what's your experience with this? Do they help the depression and/or neurological symptoms? Anyone get them regularly? If yes, how often is recommended?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Meenucat Newbie

I get the B12 shots once a month now (I started out getting them every 2 weeks - I'm still at 1000mg but started out at 2000mg) and it took about 2 months of 1 shot per every 2 weeks before I started getting better - I still have the exhaustion and stomach symptoms but the tingling sensations in my feet and hands has improved (I still feel the pins and needles slightly on certain days, but overall things have improved) and my balance is also a bit better...

I think that recommended dose is dependant on low your B12 is - my level was 150 and the normal level starts at 243 or something (???)...My levels have gone up to 278 now, so I'm in the low normal range finally :)

Were you diagnosed with a B12 deficiency?

wildones Apprentice

I have wondered about B12 shots also, especially for one of my boys. He had 70% + of his small intestines removed at 6 days old, including the part that absorbs B12. We were told from the very beginning that B12 shots would be a necessity for him, because of the short gut. He has been tested regularly for vitamin deficiencies and has not had problems that needed to be treated (according to the tests at least) yet. He has taken supplements his whole life and will always take multi-vitamins at least. We have all been taking royal jelly (good source of B vitamins) recently. Does there need to be a noted defficiency, in order for the B12 shots to be ordered ?

debmidge Rising Star

I don't think a documented need is required for B shots for this simple reason: My sister in law and mother in law, who are not celiac, at least they've never been tested and I have a suspicion that my sis in law is celiac disease, but anyway they've been getting the shot from their G.P. for about 10 years now. Their complaint is that they are tired and he gives it to them. My brother who is not celiac disease has been getting the shot for about 8 years now but that's because he has neuological symptoms (numbness in legs) and it's apparent he's deficient, but he didn't have a blood test informing him of any deficiency.

I am trying to get my celiac disease husband to get the shot and I need the support of others with celiac disease - this way when I say to him, see others with celiac disease get it and it helps them, he'll do it. He won't do it if it's just me suggesting it to him, even though his own sister gets it for less of a reason than he would.

Guest shar4

Hi all,

I haven't posted in a while, but feel compelled to add my 2 cents worth. I started getting the B12 shots in December, and was getting them weekly for a while to try and boost the level. Then every other week, and now monthly. The level hasn't gone up dramatically, but I feel soooooooooooooo much better, I cannot fully comprehend how bad I was before I got the shots. That stuff is incredible. :P Plus, I only recently found out that my insurance is helping to pay for them, which is cool!!!

Guest shar4

I forgot to say that I no longer have the numbness in my feet like I was having before I was diagnosed, yet another B12 bonus!!!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,314
    • Most Online (within 30 mins)
      7,748

    Jodiet
    Newest Member
    Jodiet
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Soosieque
    • trents
      Welcome to the forum, @Soosieque! Immunoglubulin A, Qn, Serum (aka, "total IGA") is a test run to check for IGA deficiency. If you are IGA deficient, the other IGA tests (the ones ordered to specifically check for celiac disease) will give artificially low scores and cannot be trusted. You were not IGA deficient. The two tests specifically run to check for celiac disease in your case were IGA (short for tTG-IGA) and IgG. So, one of the two tests specifically run for celiac disease was an IGA test (and it looks to be negative from the low score) and the other was an IgG test. So, it does not look like you have celiac disease from the limited testing you have had done. There are other tests that could have been run, however, and if you were already on a gluten-free diet or a low gluten diet when the testing was done then the testing is invalid. Here is a primer on blood antibody testing for celiac disease:    There is also the possibility that you suffer from NCGS (Non Celiac Gluten Sensitivity) rather than celiac disease. They share many of the same symptoms but NCGS is 10x more common. NCGS does not damage the lining of the small bowel, however. Hope this helps.
    • trents
      Welcome to the forum, @barb simkin! How does it affect you when you eat chocolate and drink alcohol? I'm asking because these are common migraine triggers and migraines are a common in the celiac population.
    • Soosieque
      Immunoglobulin A, Qn, Serum is normal and Endomysial Antibody IgA is negative but <2 IgA and IgG. What would this mean?
    • Suze046
      Hi, so just to put you in the picture, I’ve had lots of digestive issues over the past 6 months, diarrhoea, constipation, gut ache, cramps, head aches, lost 2 stone in weight am perimenopausal.. need I go on. I know some of this is caused by stress and I’ve always had to watch what I eat so noting too processed of fatty and rich. I’ve had blood tests, stool tests gall bladder scan, repeated tests and nothing showed up (which is good) I tested negative for celiac back in March. I’ve just done 6 weeks gluten free and I have to say things got better. My doctor told me to reintroduce it so I did this 9 days ago but gently and I’m still keeping some gluten out of my diet. My question is how long can it take for a reaction because my diarrhoea constipation and cramps are back but only in the last 4 days and it started with a slight unsettling tum feeling first like it might kick off but not sure. So I’m wondering if this is just a coincidence or if it can take your body that long to react? Anyone else been through this? Advice needed! 
×
×
  • Create New...