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Possible celiac struggling to manage

daisyb00
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daisyb00 Rookie
daisyb00
Posted

Hi, I’ve been really struggling to manage my symptoms of possible celiac disease and was just hoping for some guidance. (This is about to be very long so I’m sorry) 
 

Early December I had a bad fall and suffered some trauma to the head and was also under a lot of stress due to mock examinations. For a while I had been feeling fatigue but all of this was amplified after the fall and I was struggling to stay awake in lessons/ would just collapse after college. I was also having bad pain sometimes after eating and would get my worst fatigue after meals/ during the afternoon/ evening. I paid a visit to the GP and got some blood work done which came back low in iron and also high for celiac (very surprised but I do have a cousin with very bad celiac, been hospitalised etc). I got put on iron tablets and booked in for an endoscopy however this got cancelled due to the COVID-19 situation. 
 

My issue now is that my GP has advised to stay on the iron (I am starting my 5th month on 210mg 3x a day) and also keep eating gluten as we don’t know when my endoscopy will be as it could be a quick turn over (as in find out about it and then have it the week of) so we want to minimise chances of a false response. However I’m in such bad pain and so fatigue, my bloating is so severe I go up a dress size/ 2 and it’s like rock solid. My mum thinks I should cut out gluten for the foreseeable future to ease my pain. Just wondering if anyone can help with suggestions/ a bit of hope that things won’t stay like this. 
 

Many thanks

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GFinDC Veteran
GFinDC
Posted

Hi,

You don't need to eat a lot of gluten to keep the antibodies active for testing.  The equivalent of about a slice of wheat bread daily is enough.

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