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Symptoms

Kayleen007

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Kayleen007 Rookie
Kayleen007
Posted

First off..I don't even know for certain if I have celiac disease. I have been diagnosed with a few other things like Irritable Bowel..but when I had a horrible attack at my father's house (and it was not long after I ate a bunch of French Toast) he said it looked and sounded like celiac disease (a friend of his has it) and gave me this website to go to. And it sounds exactly like what I have. The thing is, I don't have the money (and no insurance) to be tested.

So..I've just gone completely gluten-free. It's only been about a week, and for the first few days (even now) I was still getting the hang of it. Exactly how long should it be before I start feeling even a little better?? I've had a few severely bad attacks in the last week. I know that depending on the damage to your intestines, it could take a while before you feel better. But exactly how long should I give it before I start to think that maybe it's not celiac disease? Any suggestions?? :unsure:

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Guest jhmom
Guest jhmom
Posted

Hi, it can take some people months to feel better. I can tell you that after I was gluten-free for a couple of days the (daily) abdominal pain I had lived with for over a year was GONE!!! If you continue to have problems after a coule of weeks you need to make sure you are not getting any "hidden glutens".

Also when you get a little money you could be tested through Open Original Shared Link it is a stool panel test which is more sensitive than blood and you DO NOT have to be eating gluten for it to be accurate. The test I bought (gluten sensitivity) was around $120.00 (overnight shipping charges were included).

There is a lot of info on this site, in particular the section where you posted this message. If you get a chance read through some of the stories, I think it will help you.

Good luck and take care :D

kaylee Rookie
kaylee
Posted

Hi,

I think everyone must wonder about this question - it's such a seemingly simple treatment for often a whole host of problems. And, in reading previous answers to this question as mentioned above it quickly becomes evident that the gluten-free diet treatment works almost immediate wonders for some people, takes a lot longer for others, and is only part of a solution to what turns out to be more than one problem (frequently people with celiac find out they also have other food intolerances/allergies).

As many people have said in other posts, you might consider going for a dairy-free spell as well, at least for a while at the beginning while your body works things out. Taking things more simply foodwise for a while seems to agree with many people newly gluten free.

Best,

Kaylee

travelthomas Apprentice
travelthomas
Posted

One human trait seems to be the belief that if it

celiacfreeman Contributor
celiacfreeman
Posted

I feel younger and more energenic. gluten-free for 4 months and feel fully recovered from

anemia. I have had 7 or 8 people tell me I look 10 to 15 years younger. Gotta love that. I thank the lord for giving me a physicain who pushed me to a gastro doc who looked at me and said, I wonder if you have Celiac disease. It's incredible, given my symptoms as just being anemic.

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  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Is this celiac?

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      ttg iga high (646 mg/dl) other results are normal

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  • Posts

    • knitty kitty
      Is this celiac?

      By knitty kitty · Posted

      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Is this celiac?

      By trents · Posted

      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      ttg iga high (646 mg/dl) other results are normal

      By trents · Posted

      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
    • trents
      Fiber Supplement

      By trents · Posted

      Another great fiber option is dried apricots. Four of them give you 3g of fiber and I find they don't produce all the gas that some other high fiber options do. They taste good too. Costco sells a large bag of them that are labeled gluten-free so you don't have to worry about cross contamination issues like you might in bulk grocery settings.
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