Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reintroduced to gluten


daisyb00

Recommended Posts

daisyb00 Rookie

Hi folks,

I am curious about what to expect when eating gluten for the first time after following a non-gluten diet (accidental or purposeful). 
I am currently waiting for an endoscopy (was due to have one early March but got cancelled due to COVID). Since then I’ve been having really bad stomach pains and awful fatigue, amongst other complications. I spoke to my GP and they advised to avoid gluten until I get my letter about my endoscopy date and then reintroduce gluten to my diet. I know this isn’t normal procedure but they said due to the likelihood of me being celiac (blood test and family history) it’s best to ease the symptoms for now as it was seriously affecting me. After all these aren’t really normal times. 

I’m mainly wondering now what to expect when I start eating gluten again (it could be a few weeks or few months until this happens). Just wondering if anyone has had similar experiences or just can advise on how best to prepare myself with what to expect pain/ sickness wise. 
Many thanks 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Hi!  

It is hard to say how you will react when you start consuming gluten about two weeks from the date of your endoscopy (or what the GI instructs).  This is called a gluten challenge.  Celiac disease is like a chameleon.  Symptoms can and do change.  I am sure you will be instructed by your GI as to what to expect and what to do if your challenge becomes difficult.  

I have no experience doing this, but I suspect that avoiding foods that you already have intolerances to (e.g. dairy, soy or corn are common) could be avoided.  I have also heard that by consuming gluten before bedtime could be helpful.  

Let’s hope others chime in!  

daisyb00 Rookie
6 hours ago, cyclinglady said:

Hi!  

It is hard to say how you will react when you start consuming gluten about two weeks from the date of your endoscopy (or what the GI instructs).  This is called a gluten challenge.  Celiac disease is like a chameleon.  Symptoms can and do change.  I am sure you will be instructed by your GI as to what to expect and what to do if your challenge becomes difficult.  

I have no experience doing this, but I suspect that avoiding foods that you already have intolerances to (e.g. dairy, soy or corn are common) could be avoided.  I have also heard that by consuming gluten before bedtime could be helpful.  

Let’s hope others chime in!  

That’s great thank you, that’s what I’ve been thinking just eating it before I sleep so I (hopefully) minimise the discomfort. 
 

Hopefully they do!!

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,813
    • Most Online (within 30 mins)
      7,748

    Michele R
    Newest Member
    Michele R
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the  forum @maylynn! Have you had a follow-up endoscopy/biopsy of the small bowel to check for healing of the villous lining? If not, it's about time one was done. As Scott mentioned, I also wonder if you have food intolerances in addition to gluten. Oats (even gluten free oats), dairy, soy, corn and eggs are some of the most common ones in the celiac community.
    • Scott Adams
      Is your gluten-free diet strict? Do you eat out in restaurants? If so, you could be getting contamination, and over time that can slow recovery. You may want to get a follow up celiac disease antibody panel done to make sure that your levels have gone down since your last tests. Also, have you had various nutrient levels checked via a blood test, and have you been taking vitamin & mineral supplements since your diagnosis?  The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.    Do you still have celiac disease symptoms?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • maylynn
      Hello!  I am here as a last result, hoping for some advice, similar stories, etc. When I was 17, I was diagnosed with Celiac disease. By the time we figured it out my iron levels were so low I had to get infusions, and I had lost 20lbs. in two weeks going from a 5'11 130lbs woman to a 110 lbs. Now, I am 21 and have gained 4 lbs since. Every time I eat a meal, I get three bites in and feel so full that I feel sick. I can't eat a full meal. Something else has to be wrong right? This can't just be more "normal" right? I have done test after test and no doctor in my area can figure anything else out. They have told me I most likely have shrunken my stomach by now with how little I am eating so that has to do with some of the sick feeling. What have you done to gain the weight back? Foods? Workouts? 
    • Bronwyn W
      Thank you so much, Scott. I find it incredibly daunting navigating this celiac space and I find comfort in your wealth of knowledge. Thank you 🙏🏻
    • Scott Adams
      I am not sure about that brand specifically, but this article may be helpful:  
×
×
  • Create New...