Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Still having IBS Issues & staying gluten-free. Weird symptom.


zenith12

Recommended Posts

zenith12 Enthusiast

How come some nights,  always seems to be at 1 :30am after  I go to bed I get a gluteny kinda sensation coming on. Like low blood sugarish and shakey feeling like my body wants to detox, like my intestines are about to get active. It feels similar to an actual glutening but not as bad. Sometimes i may have the symptom without feeling low blood sugarish. I have pituitary issues and have constant low blood sugar problems. I am just wondering am I eating gluten mimicking foods?  (rice, corn) etc. Or is my IBS just instigated unrelated to my celiac? When ever that feeling comes on I don't sleep well. This morning i went to the bathroom 3 times or 4. I am good now though. And I did have low blood sugar probems this morning. I have been eating well and sometimes I can get low blood sugar problems not long after i eat.

If i am eating gluten mimicking foods maybe that is making my pituitary issue worse. 

I basically eat one ingredient foods except for some small gluten-free cookies, half brownie or 1/4, and the EVOL meal, and some Amys meals.  But there are some gluten mimickers in there: rice, corn, sorghum flours.

  So it is NOT uncommom to still have  IBS and it totally NOT be related to  celiac?  I am in the process of going to docs.  I just scheduled an appmt  with a food alergy doc. And then i will need to schedule one for a gastro doc and maybe primary care doc too, because i do want to see if I have any colon or stomache problems.  Maybe my PIT issue can just be unpredicatable. I felt that weird sensation in my head when i was in bed.  I think my body naturally detoxes when it wants to. Thanks 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Yes, you can have other issues, like IBS, in conjunction to celiac disease.   So, if your symptoms are not resolving on a gluten free diet, then you should see a medical doctor.  Things like cancer, Crohn’s, Ulcerative Colitis, SIBO, etc. should be ruled out.  

I could have sworn my niece had celiac disease based on her symptoms, but she does not (it could develop later in life).   She was diagnosed with Crohn’s via a pill camera (she did have both an endoscopy and colonoscopy).  Her damage was out of reach of both those scopes.  Luckily, they found the damage and was able to treat her with meds before having a chunk of her small intestine removed.  

Low blood sugar problems?  How do you know?  Do you check your blood sugar with meter?  Cause just feeling yucky does not necessarily mean low blood sugar.  You can purchase a cheap meter at Walmart and test it yourself.  
 

zenith12 Enthusiast
52 minutes ago, cyclinglady said:

Yes, you can have other issues, like IBS, in conjunction to celiac disease.   So, if your symptoms are not resolving on a gluten free diet, then you should see a medical doctor.  Things like cancer, Crohn’s, Ulcerative Colitis, SIBO, etc. should be ruled out.  

I could have sworn my niece had celiac disease based on her symptoms, but she does not (it could develop later in life).   She was diagnosed with Crohn’s via a pill camera (she did have both an endoscopy and colonoscopy).  Her damage was out of reach of both those scopes.  Luckily, they found the damage and was able to treat her with meds before having a chunk of her small intestine removed.  

Low blood sugar problems?  How do you know?  Do you check your blood sugar with meter?  Cause just feeling yucky does not necessarily mean low blood sugar.  You can purchase a cheap meter at Walmart and test it yourself.  
 

Thanks you so much. I did SMELL strong pizza last night when i went to my moms. Could that have done it? well i am NOT going over there anymore and smell pizza!!   Yes just like u said I will go to gastro doc to rule out those things.  I don't think I have SIBO. I never bloat just as long as i don't eat gluten or that General TSO chicken.  I have a faulty putuitary gland, as you know controls your whole body. I have to eat 3 times per day sometimes more because my body thinks it is having low blood sugar issues. If I don't eat i will get really dizzy , and the craps etc etc and have confusion just like diabetics with  LOW blood sugar do. It is called adrenal fatigue. MINE is not adrenal though, mine is called  " HPA axis".   I had a tumor on the gland !!!!!!

It was removed. But I still have problems.   There are 75 symptoms of pit problems aka  adrenal fatigue:   having low blood sugar problems but the  #s don't show it,    sensitive to sun,  caffiene, alchohol,  celiac problems,  digestive problems.   lol    

 

Look up  Dr Lam. He is an expert.    Yes i do have a meter and sometimes i do check it because sometimes i want to know if its in the 80s  or 107. It never goes above 117. I am sorry about your niece.  Cancer is scary that is what I a am always afraid of. But I will go to gastro soon. 

I am going to start keeping a log of my WEIRD feelings that always start at 1 :30am. Ok stay healthy.

BTW the mainstream  medical community is taught to not acknowlege adrenal fatigue.  I went to a natural doc and that is when she told me i was celiac.

My antibodies test proves it and so does my symptoms. Thanks    Now i just gotta make sure i dont have cancer. lol

zenith12 Enthusiast

This is my health problem in CONJUNCTION with celiac. I also have chemical sensitivites and smell sensitivities, and constant dizziness.

 

Characteristic Symptoms of Adrenal Fatigue

  1. Unable to fall asleep despite being tired
  2. Waking up in the middle of the night for no reason
  3. Heart palpitations at night or when stressed
  4. Consistently low blood pressure
  5. Low libido and lack of sex drive
  6. Low thyroid function, often despite thyroid medications
  7. Feeling of hypoglycemia though laboratory values are normal
  8. Depression, often unresolved after anti-depressants
  9. Endometriosis
  10. Polycystic Ovarian Syndrome
  11. Uterine fibroids
  12. Fibrocystic breast disease
  13. Hair falling off for no reason
  14. Irritable under stress
  15. Anxiety
  16. Panic attacks
  17. Feeling “wired” and unable to relax
  18. Feeling of adrenaline rushes in the body
  19. Foggy thinking
  20. Inability to handle stress
  21. Waking up feeling tired in the morning even after a full night’s sleep
  22. Feeling tired in the afternoon between 3:00 and 5:00 pm
  23. Inability to take in simple carbohydrates
  24. Needing coffee to get going in the morning and throughout the day
  25. Coffee, tea or energy drinks triggering adrenaline rush and adrenal crashes
  26. Feeling tired between 9:00 and 10:00 PM, but still finding it hard to go to bed
  27. Craving for fatty food and food high in protein
  28. Craving for salty food such as potato chips
  29. Dry skin more than usual
  30. Unexplained hair loss that is diffuse
  31. Exercise helps first, but then makes fatigue worse
  32. Chemical sensitivities to paint, fingernail polish, plastics
  33. Electromagnetic force sensitivity, including cell phone and computer monitors
  34. Delayed food sensitivities, especially to dairy and gluten
  35. Unable to get pregnant, requiring IVF
  36. Post partum fatigue and depression
  37. Recurrent miscarriages during first trimester
  38. Abdominal fat accumulation for no apparent reason
  39. Temperature intolerance, especially to heat or sunlight
  40. Dysmenorrhea advancing to amenorrhea
  41. Premature Menopause
  42. Constipation for no apparent reason
  43. Joint pain of unknown origin
  44. Muscle mass loss
  45. Muscle pain of unknown reason
  46. Cold hands and feet
  47. Premature aging skin
  48. Inability to concentrate or focus
  49. Psoriasis of no known reason
  50. Gastritis despite normal gastroscopy
  51. Low back pain with no history of trauma and normal examination
  52. Dizziness for no known cause
  53. Fructose mal-absorption
  54. Chronic Tinnitus (ringing in the ear)
  55. Numbness and tingling in extremities bilaterally
  56. Recurrent mouth sores
  57. Shortness of breath even though breathing is fine
  58. Presence of ovarian cyst

Cancer as a result of estrogen dominance is one of the symptoms of Adrenal Fatigue

  1. Breast cancer associated with estrogen dominance
  2. Grave’s disease
  3. Hashimoto’s thyroiditis
  4. Legs that feel heavy at times
  5. Dark circles under eyes that do not go away with rest
  6. Loss of healthy facial skin tone color
  7. Body feeling tense all over and unable to relax
  8. Postural Orthostatic Tachycardia
  9. Irritable Bowl Syndrome, with more constipation than diarrhea
  10. Chronic Fatigue Syndrome unimproved with medicine
  11. Fibromyalgia unresolved after conventional help
  12. Systemic Candida that gets worse when under stress
  13. Electrolyte imbalance despite normal laboratory values
  14. Irregular menstrual cycle that “stops and goes”
  15. Lyme Disease but unable to fully recover after medication or intolerance to drugs
  16. H. Pylori infection in the past and was told resolved but never feel the same since
  17. Heavy metal and mineral toxicity may mimic Adrenal Fatigue Syndrome

This list is not intended for you to self-diagnose Adrenal Fatigue Syndrome. If you think you may have some of these symptoms of Adrenal Fatigue Syndrome, the first task is to get more educated. Because of the rather convoluted and complex nature of this syndrome, always consult a qualified health professional prior embarking on any recovery plan. Most recovery programs fail and the condition may worsen if you lack a clear understanding of the symptoms of Adrenal Fatigue and what lies ahead.


Dr. Lam's Key Questions

Is an Adrenal Fatigue diet high enough in calories to support a healthy pregnancy?

How does yoga help those suffering from Adrenal Fatigue?

Is there a way to build muscle without bringing the heart rate up too much, which adversely affects those with Adrenal Fatigue?

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Lotte18's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      New painkiller, Journavx

    2. - Scott Adams replied to AllyJR's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Confused about my results

    3. - Lotte18 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      New painkiller, Journavx

    4. - Lotte18 replied to FayeBr's topic in Coping with Celiac Disease
      4

      Corn reaction and ataxia

    5. - Scott Adams replied to NightRaven92's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      I am wondering if my symptoms are Celiac Disease related..


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,632
    • Most Online (within 30 mins)
      7,748

    Laszlo
    Newest Member
    Laszlo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/  When I looked this one up I didn't see any gluten ingredients.
    • Scott Adams
      Your situation is actually more common than many realize, and while confusing, there are logical explanations for your test results. The key points are that your biopsy showing villous blunting and increased lymphocytes does indicate intestinal damage typically seen in celiac disease, despite your negative blood tests. This phenomenon is known as seronegative celiac disease, which affects about 10% of celiac patients. Your partial HLA-DQ2 genetic result doesn't rule out celiac either, as a small percentage of celiac patients don't have the complete genetic markers. The fact that you've responded so dramatically to a gluten-free diet is another strong indicator that this is likely celiac disease rather than NCGS, since NCGS doesn't usually cause intestinal damage. Your doctor might consider ordering additional tests like IgG-based celiac tests (tTG-IgG or DGP-IgG), or repeating the endoscopy after you've been gluten-free for a longer period to check for healing. Many celiac specialists would actually diagnose you with celiac disease based on your biopsy results combined with your positive response to the gluten-free diet, regardless of the blood test results. It may be worth consulting with a gastroenterologist who specializes in celiac disease for further evaluation. Your experience highlights why celiac disease can be so challenging to diagnose and why doctors need to look at the whole clinical picture rather than relying on any single test.
    • Lotte18
      Hi all, I have to have gum surgery tomorrow and was wondering if I should ask for this new drug, Journavx, instead of Vicodin.  I tried looking it up online and got, Not gluten free.  There is no gluten in the ingredients for this drug.  ????  Has anyone else had experience with Journavx?  Advice?   Many thanks, Charlotte
    • Lotte18
      Hi Faye,  Sorry I didn't see your post sooner.  I suffered from ataxia as well.  None of my drs. thought it was dairy.  They were wrong.  Turns out lactose intolerance was the cause.  Pancreas just isn't making the enzymes like it used to.  I now drink lactose free milk for the calcium and eat lactose free yogurt by Green Valley, when I can find it.  My ataxia problems vanished.  Hope this helps.
    • Scott Adams
      This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...