Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Itching


BrenLou

Recommended Posts

BrenLou Rookie

I have had chronic hives for years which we're determined to have been caused by celiac. The hives have diminished by at least 90% and I rarely get new ones however, some are lingering and still itch terribly. Is it possible to know how long it might take for itching to stop? I have been gluten free six and a half weeks. Thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

My last bout of chronic hives lasted about six months and was linked to a gluten exposure.    It sounds like you are healing much faster than me!  Keep to the diet.  My allergist prescribed a cocktail of antihistamines which eliminated at least the itching.  
 

Funny though, my allergist blamed my Hashimoto’s.  Some report that it could be a stand-alone autoimmune disorder.  Learn more:

https://www.aocd.org/page/Urticaria

BrenLou Rookie
17 hours ago, cyclinglady said:

My last bout of chronic hives lasted about six months and was linked to a gluten exposure.    It sounds like you are healing much faster than me!  Keep to the diet.  My allergist prescribed a cocktail of antihistamines which eliminated at least the itching.  
 

Funny though, my allergist blamed my Hashimoto’s.  Some report that it could be a stand-alone autoimmune disorder.  Learn more:

https://www.aocd.org/page/Urticaria

Thank you for taking time to answer me.  I have had chronic hives for nearly 10 years.  They have gotten worse and worse until I had hives on top of hives, severe bruising under there hives and sometimes bleeding under the hives.  For a very short time  last year (8 months) they were fairly mild after my allergist prescribed Allegra 180 but then they flared up worse than ever for months.  My daughter commented to me that she was beginning to itch around her ankles after she completed the Healthy 30 and reintroduced gluten.  That's why I went gluten free but I was so shocked when my digestive and intestinal problems began clearing up also.  Well, that's a lot, isn't it?  I just need to give it more time, I believe.  And from what I've been reading, they may never fully clear up because that's the nature of autoimmune issues.  Again, thank you!

cyclinglady Grand Master
(edited)

Autoimmune Disorders fall under the umbrella of Hypersensitivity.  Celiac disease is under type 4.  You can have issues with several hypersensitivity  types (like an IgE Type 1 allergy to cats).  You can learn more here:

https://www.amboss.com/us/knowledge/Hypersensitivity_reactions
 

What I am trying to say is that all of these types are linked.  If one flares up or is activated, it can impact other types.  For example, once allergy season hits, my nut and horse allergy becomes worse.  If my celiac disease is activated, it triggers my hives.  I still get hives today, though they are mild and often appear when I am exposed to say, a bug bite (1 mosquito bite causes almost 100 hives around the bite).  I swell up and get hives all over my body from many medications.  It is way worse if I am also dealing with active celiac disease.  But my everyday-starting-at 4:00 pm-hives (beginning with a tummy ache, an itchy head and a cascade of eruptions down to me feet), has finally resolved.  Prevention?  No gluten!   

 As a kid and up until just recently, I was allergic to the cold.  Yep.  Swelling and hives from cold water, air or snow.  Made it hard to ski, but I did it.  That seems to resolve with healing based on my last ice cube test. Calming down all my autoimmune and avoiding my triggers is key.  
 

Google Mast Cell Activation Syndrome for other “allergy type” explanations.  

A gluten free diet just might do the trick for your hives too.    But keep at it.  It takes time.  Avoid your known triggers and try to identify new ones.  

If you have kids, consider getting them tested, especially if symptoms warrant and before they go gluten free.  Celiac disease is systemic, genetic and co-exists with other autoimmune disorders.  
 

Good Luck!  

 

Edited by cyclinglady

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,342
    • Most Online (within 30 mins)
      7,748

    Setb1210
    Newest Member
    Setb1210
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      My reaction to a gluten bolus exposure is similar to yours, with 2-3 hours of severe abdominal cramps and intractable emesis followed by several hours of diarrhea. I don't necessarily equate that one large exposure to gluten with significant intestinal lining damage, however. I think it's just a violent reaction to a what the body perceives to be a somewhat toxic substance that I am no longer tolerant of because I have quit exposing myself to it regularly. It's just the body purging itself of it rather than an expression of significant damage. Before diagnosis, when I was consuming gluten daily, I had little to no GI distress. I was, for the most part, a "silent celiac". The damage to my small bowel lining didn't happen all at once but was slow and insidious, accumulating over a period of years. The last time I got a big shot of gluten was about three years ago when I got my wife's wheat biscuits mixed up with my gluten-free ones. There was this acute reaction after about two hours of ingestion as I described above. I felt washed out for a few days and fully recovered within a week or so.  Now, I'm a 74-year-old male. So, I'm not worried about being pregnant. And I don't want to contradict your physicians advice. But I just don't think you have done significant damage to your small bowel lining by one episode of significant gluten ingestion. I just don't think it works that way.
    • Skydawg
      Wondering about some thoughts on how long to wait to try to get pregnant after a gluten exposure?  I have been diagnosed for 10 years and have followed the diet strictly. I have been cross contaminated before, but have never had a full on gluten exposure. I went to a restaurant recently, and the waiter messed up and gave me regular bread and told me it was gluten free. 2 hours later I was throwing up for the whole evening. I have never had that kind of reaction before as I have never had such a big exposure. My husband and I were planning to start trying to get pregnant this month. My dr did blood work to check for electrolytes and white blood cells, but did not do a full nutritional panel. Most of my GI symptoms have resolved in the past 2 weeks, but I am definitely still dealing with brain fog, fatigue and headaches. My dr has recommended I wait 3 months before I start to try to get pregnant.   I have read else where about how long it can take for the intestine to fully heal, and the impacts gluten exposure can have on pregnancy. I guess I am really wondering if anyone has had a similar experience? How long does it take to heal after 1 exposure like that, after following the diet so well for 10 years? Is 3 months an okay amount of time to wait? Is there anything I can do in the meantime to reduce my symptoms? 
    • ShadowLoom
      I’ve used tinctures and made my own edibles with gluten-free ingredients to stay safe. Dispensary staff don’t always know about gluten, so I double-check labels or just make my own.
    • Scott Adams
      It's great to hear that there are some good doctors out there, and this is an example of why having a formal diagnosis can definitely be helpful.
    • RMJ
      Update: I have a wonderful new gastroenterologist. She wants to be sure there’s nothing more serious, like refractory celiac, going on. She ordered various tests including some micronutrient tests that no one has ever ordered before.  I’m deficient in folate and zinc and starting supplements for both. I’m so glad I decided to go to a new GI!
×
×
  • Create New...