Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Itching


BrenLou

Recommended Posts

BrenLou Rookie

I have had chronic hives for years which we're determined to have been caused by celiac. The hives have diminished by at least 90% and I rarely get new ones however, some are lingering and still itch terribly. Is it possible to know how long it might take for itching to stop? I have been gluten free six and a half weeks. Thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

My last bout of chronic hives lasted about six months and was linked to a gluten exposure.    It sounds like you are healing much faster than me!  Keep to the diet.  My allergist prescribed a cocktail of antihistamines which eliminated at least the itching.  
 

Funny though, my allergist blamed my Hashimoto’s.  Some report that it could be a stand-alone autoimmune disorder.  Learn more:

https://www.aocd.org/page/Urticaria

BrenLou Rookie
17 hours ago, cyclinglady said:

My last bout of chronic hives lasted about six months and was linked to a gluten exposure.    It sounds like you are healing much faster than me!  Keep to the diet.  My allergist prescribed a cocktail of antihistamines which eliminated at least the itching.  
 

Funny though, my allergist blamed my Hashimoto’s.  Some report that it could be a stand-alone autoimmune disorder.  Learn more:

https://www.aocd.org/page/Urticaria

Thank you for taking time to answer me.  I have had chronic hives for nearly 10 years.  They have gotten worse and worse until I had hives on top of hives, severe bruising under there hives and sometimes bleeding under the hives.  For a very short time  last year (8 months) they were fairly mild after my allergist prescribed Allegra 180 but then they flared up worse than ever for months.  My daughter commented to me that she was beginning to itch around her ankles after she completed the Healthy 30 and reintroduced gluten.  That's why I went gluten free but I was so shocked when my digestive and intestinal problems began clearing up also.  Well, that's a lot, isn't it?  I just need to give it more time, I believe.  And from what I've been reading, they may never fully clear up because that's the nature of autoimmune issues.  Again, thank you!

cyclinglady Grand Master
(edited)

Autoimmune Disorders fall under the umbrella of Hypersensitivity.  Celiac disease is under type 4.  You can have issues with several hypersensitivity  types (like an IgE Type 1 allergy to cats).  You can learn more here:

https://www.amboss.com/us/knowledge/Hypersensitivity_reactions
 

What I am trying to say is that all of these types are linked.  If one flares up or is activated, it can impact other types.  For example, once allergy season hits, my nut and horse allergy becomes worse.  If my celiac disease is activated, it triggers my hives.  I still get hives today, though they are mild and often appear when I am exposed to say, a bug bite (1 mosquito bite causes almost 100 hives around the bite).  I swell up and get hives all over my body from many medications.  It is way worse if I am also dealing with active celiac disease.  But my everyday-starting-at 4:00 pm-hives (beginning with a tummy ache, an itchy head and a cascade of eruptions down to me feet), has finally resolved.  Prevention?  No gluten!   

 As a kid and up until just recently, I was allergic to the cold.  Yep.  Swelling and hives from cold water, air or snow.  Made it hard to ski, but I did it.  That seems to resolve with healing based on my last ice cube test. Calming down all my autoimmune and avoiding my triggers is key.  
 

Google Mast Cell Activation Syndrome for other “allergy type” explanations.  

A gluten free diet just might do the trick for your hives too.    But keep at it.  It takes time.  Avoid your known triggers and try to identify new ones.  

If you have kids, consider getting them tested, especially if symptoms warrant and before they go gluten free.  Celiac disease is systemic, genetic and co-exists with other autoimmune disorders.  
 

Good Luck!  

 

Edited by cyclinglady

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,517
    • Most Online (within 30 mins)
      7,748

    Heather24
    Newest Member
    Heather24
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Russ H
      I hope you are on the mend soon. About 1 in 5 people who contracted chicken pox as a child go on to develop shingles in later life - it is not uncommon. There are 5 known members of the herpes virus family including chicken pox that commonly infect humans, and they all cause lifelong infections. The exact cause of viral reactivation as in the case of shingles or cold sores is not well understood, but stress, sunburn and radiotherapy treatment are known triggers. Some of the herpes viruses are implicated in triggering autoimmune diseases: Epstein-Barr virus is suspected of triggering multiple sclerosis and lupus, and there is a case where it is suspected of triggering coeliac disease. As to whether coeliac disease can increase the likelihood of viral reactivation, there have been several cohort studies including a large one in Sweden suggesting that coeliac disease is associated with a moderate increase in the likelihood of developing shingles in people over the age of 50. US 2024 - Increased Risk of Herpes Zoster Infection in Patients with Celiac Disease 50 Years Old and Older Sweden 2018 - Increased risk of herpes zoster in patients with coeliac disease - nationwide cohort study
    • Russ H
      BFree bread is fortified with vitamins and minerals as is ASDA own-brand gluten-free bread. All the M&S bread seems to be fortified also.
    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.