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Gluten Ataxia

gloriajune
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gloriajune Newbie
gloriajune
Posted

How do i diagnosis Gluten Ataxia. I have Celiac diagnosed with a biopsy. 

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Scott Adams Grand Master
Scott Adams
Posted

If you have celiac disease and are having nervous system issues you should have your doctor refer you to a neurologist who could examine you for ataxia. Here is more info but antibody levels play a part, as well as a neurological examination and tests:

 

cyclinglady Grand Master
cyclinglady
Posted

How are you doing on the gluten free diet?  Have you healed?  How are all your follow-up tests?  Have your antibodies gone down?  Any other biomarkers improved (e.g. iron or vital deficiencies).

Gluten Ataxia is a relatively new disease.  It is celiac disease, but many doctors are not aware of gluten ataxia.  If you already have been diagnosed with celiac disease, the treatment is the same — no gluten.  Since nerves are involved (nerve and brain damage can be irreversible), I would recommend a super strict diet.  Like no eating out.  Avoiding all processed foods as much as possible.  Making my home 100% gluten free.  Immunosuppressive drugs might be helpful, but those are typically attempted when the diet has completely failed.  
 

Learn more and I would find an expert (the best is in England):

https://jnnp.bmj.com/content/74/9/1221

 

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